#87~ CFSAC~ Science Day 1 Agenda

Gentle Reminder:

To Set your Alarm clocks, turn your computers ON and  'Log-IN" to be Counted by the Govt to PROVE that WE are NOT Invisible...and that WE ARE WATCHING..

Also remember that this meeting is for the Next 3 days , EDT in Wash DC, USA.
That's -7 GMT depending on~ if your country is still on Daylight Time or not,
and we need you to log in NO MATTER WHERE YOU ARE IN THE WORLD- PLEASE

The agenda's for the next two days  I posted  a few posts back when they were first announced. or you can find them HERE at this link also..BELOW Day 1

Oct CFSAC 2010 Agenda

Also, you need to already have... "Real Player" installed ON your computer as that's the webinar program they use.. Easily obtained here www.real.com

And Dr. Wanda Jones runs a pretty tight ship and things stay pretty much on time,
and we have HER to Thank for making this available to us via webinar and for making all of the Testimonies and webinar available later online for our on-going veiwing.

To WATCH the meeting and to Log-IN Please go  HERE at the appropriate time.

If you know anyone that will be leaving home to go to work and they have a computer at home they could "log-on" with for us to Help the Count Numbers.. Please CALL THEM Today and ask them...
No computer should ever be lonely or idle ♥

Thanks Ladies, Gents and Germs... for Helping US be Visible.

Chronic Fatigue Syndrome Advisory Committee
US Department of Health and Human Services

Agenda -- CFSAC Fall 2010 Meeting

Agenda
October 12, 2010 - Science Day The purpose of these sessions is to update the latest developments in etiology, natural history, clinical studies, and related areas for chronic fatigue syndrome.
8:30 am	Opening Remarks / Housekeeping
	Panel 1	Chris Snell, Moderator
8:40 am	Immune system	Dr. Nancy Klimas
9:35 am	Chronic Fatigue Syndrome and the Pathophysiology of EBV Infection: Trying to Connect the Dots to Make Sense	Dr. Ron Glaser
10:30 am	XMRV	Dr. Stuart Legrice
11:20 am	Break
11:30 am	Speakers convene as a panel for interactive discussion and Q&A
12:15 pm	Lunch
	Panel 2	Dr. Chris Snell, Moderator
1:15 pm	Genetic and Genomic Markers of Change	Dr. Alan Light
1:55 pm	Other Biological and Non-Biological Measures of Change	Dr. Leonard Jason
2:35 pm	Anti-Viral Treatments	Dr. Martin Lerner
3:15 pm	Break
3:30 pm	Speakers convene as a panel for interactive discussion and Q&A
4:30 pm	Summary of the Day/Wrap Up	Dr. Michael Houghton
5:00 pm	Adjourn

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#86~ CFSAC "Computer Act-Up" Please....

OH~ Can you PLEASE do us a HUGE Favor????
YES, this applies to ALL of you Around the World

Many ME/CFS folks "Around the World" have been.... shall I say 

"a bit MORE Than UPSET" at the Lack of Topics included in the 

Proposed Agenda  AND some of the topics INCLUDED in the Agenda...

For ALL of the TALKING and WRITING for 25 years this Agenda
seems to be nothing more than a Rubber Stamp of the CDC revised website.

This is NOT "to be tolerated" as we have been FED UP with the CDC
and their cover-up, their belittling naming of this illness causing mass WORLD Confusion, their INtentional Continued use of the WRONG Definition of this illness and thereby dummying down the cohort they select to test with..

Their "Can't Detect C*^p"  tunnel-vision is NOT to be Tolerated, esp. AFTER they had been sent Active LIVE Strains of the the XMRV Retrovirus+"Explicit Instructions for Detection" 
back in Oct 2009.
What did Reeves DO with them? 

Since MOST of us ARE "really" too  sick to do a "Mass March" on the CDC Building.

And we doubt SERIOUSLY that the CAA will do anything EQUALLY effective to Bring the MASS MEDIA PR attention to OUR Plight that 

they "claim" to represent.

It is now time for us to do the one thing we CAN DO.......

"Wage a Computer LOG-IN"  of the CFSAC meetings ~  ALL 3 days.....

Log-in and BE Counted !!!!

We are Trying REALLY Hard for 3 days or as much as possible
to "get the WORD OUT" if you can get as many 
members/friends/family as Possible, that would be GREAT !
even if they will be sleeping during this time....
to "Log-in their computer" to the 3 days of the CFSAC meetings
covered LIVE via webcast..and just "LET IT RUN"........
they can "turn down the volume" to sleep even....
as these WILL be captured and put on Youtube shortly after
and then will be MUCH easier to View..

Cuz we VERY MUCH NEED people to "Log-in"

as "the Gov't COUNTS the # of people logged-in"

and we are wanting a HUGE Number to SHOW

them we ARE Paying ATTENTION

to what they are doing... OK??? Pretty Please...

You will have to convert the date/time but it's
Oct 12, 13, 14- 8:30am-5pm EDT in Wash DC..
Info schedule and "click links" on the Right of THIS page...
http://www.hhs.gov/advcomcfs/index.html

"PLEASE" *VERY IMPORTANT*
Make SURE you EACH go to the website for Real Player
http://www.realplayer.com ASAP
and have the MOST RECENT Version installed
"AHEAD of Time and have it installed"~ OK?
It is NEEDED to watch and log in.~

Thx and ♥Hugs♥ and pass this to as many people as you can
around the WORLD, as THIS is the 1st Meeting AFTER the XMRV Workshop
and Day 1 is a Science Day and Day 2 + 3 are
the meetings w/public input by folks you will probably know ♥

But the AGENDA has us REALLY UPSET !!!
And This is "But one" of our ways of Registering" with them

So they CAN SEE that we ARE Paying ATTENTION

and will NOT PUT up with any CDC- BS
they try to use that on us.. capiche?

 

 Tell Everyone to Mark Their Calendars and HELP US in

THIS Cause. Pretty Please..

We ARE Trying to get a MINIMUM of 1,000 computers "LOGGED-IN"

Just make SURE you Download the Most Current Version of Real Player NOW..
and  SHARE this with your friends and whomever you think WILL HEP US...
and  we will send you out a reminder a few days before the Actual time  to 
Log-In.. cuz you can NOT log in very much in advance..OK?

You CAN "Commit" Right NOW to Helping us by  making sure you have the

Latest version of "Real Player" and are "READY TO GO !!!"

Thanks in advance for ALL of your HELP.. to Help US BE Counted...
We will NOT Be INVisible ANY LONGER...period.

Help us Stand UP 2ME

Help us Stand UP 2CFS

Help us Stand UP 2 the CDC

Help us stand up to this Crime Against Humanity.

Help us by Agreeing to "LOG-IN"

It's FREE, No PEM afterwards, and you WILL have DONE somthing to Help US BE COUNTED.

Thank You in Advance and Bless you.♥♥♥


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#85~ CFSAC (Draft) Meeting Agenda Oct. 13/14, 2010

Remember ~ Day 1 is Science Day.....

This would be for Day 2 + 3 with the Public Comments.

BE SURE TO WATCH Please........................

Funny~ I don't SEE a part where they discuss the Actions taken on 
their Recommendations from the Last meeting......  Do YOU???

Please comment and let me know if I am going BLIND ???

Agenda -- CFSAC Fall 2010 Meeting (Draft)

Chronic Fatigue Syndrome Advisory Committee
US Department of Health and Human Services

Agenda -- CFSAC Fall 2010 Meeting
October 13, 2010

9:00 am

Call to Order Opening Remarks Roll Call, Housekeeping

Dr. Christopher Snell Chair, CFSAC Dr. Wanda Jones Designated Federal Official

9:15 am

Cognitive Functioning in CFS

Dr. Gudrun Lange

10:15pm

Committee Discussion

Committee Members

10:45 am

Public Comment

Public

11:45 am

Subcommittee Lunch

Subcommittee Members

1:00 pm

Physical Therapy Vocational Therapy

Ted Becker and Kathy Reid

2:15 pm

SSA presentation on Improving Disability Assessment Process (data, training process for adjudicators, success rate)

SSA Representative

2:45 pm

DOL/ERISA presentation

DOL Representative {Invited}

3:15 pm

Health Care Reform—Impact on Persons with CFS

HHS OHR Representative {Invited}

3:45 pm

Committee Discussion

Committee Members

4:15 pm

Public Comment

Public

5:15 pm

Adjourn

9:00 am

Call to Order Opening Remarks Roll Call, Housekeeping

Dr. Christopher Snell Chair, CFSAC Dr. Wanda Jones Designated Federal Official

9:15 am

Science Day—Key Points and Discussion

Committee Members

10:15 am

Extramural CFS Research at NIH

Program Officials from Trans-NIH Working Group

11:15 am

Agency Progress on Recommendations

Ex Officio Agency Representatives

12:00 pm

Subcommittee Lunch

Subcommittee Members

1:00 pm

Public Comment

Public

2:00 pm

Committee Discussion:  Finalize Recommendations

Committee Members

4:30 pm

Adjourn