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Dec.2014 LauraHillenbrand FaceTheNation
ME+Unbroken Interview HERE -

AND
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NIH="InsufficientResearch"=DUH !
Treatment= more"SELF Management"
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Showing posts with label Chronic Lyme Disease. Show all posts
Showing posts with label Chronic Lyme Disease. Show all posts

Thursday, April 21, 2011

#112~ "If this was HIV, it would be 1983"


For those that do only have dial-up and can not watch videos I wanted to post the text of one statement that needs to be heard Around the World. I would like to also thank the person that did this transcribing and gave me permission to repost  it for everyone to read.. cuz this needs to be known.. 


I am one of the SeroPositive XMRV plus co-infection people that has been sick since 1987 and maybe before because I have NOT had any vaccinations since the 1970s and you can't grow antibodies to something you have never been exposed to.. so any lab contaminations that may have taken place after 1992 had nothing to do with my blood or what antibodies I have created. 


The fact that there are also now literally 3 generations of sick people and some have them within one family, and some even have adoptions so that would rule out bodily fluids.. so the Real Question here also is.. is this merely Infectious or also Contagious ???


And Now~ Here's Judy  
from the NIH State of Knowledge April 8th, 2011
*************



Mikovits: I would like to say that what I've seen here this week says that, clearly, XMRV at best, what we originally set out to do 5 years ago was a systems biology approach. We used those genomic technologies by Gene and Mary Carrington. We used a microarray from the NCI to screen all the pathogens. And what we saw was what we heard from Mary Schweitzer, that a lot of active pathogens and things like shingles, things like enteroviruses, things like EBV, CMV, HHV6--they're all totally on in that microarray. In NCI's infinite wisdom, it didn't put XMRV on it, so that's how we ended up going back. But we didn't look with a hypothesis for retroviruses.

We took the systems biology approach, collected samples from patients who had the well-defined characteristics that Tony Komaroff talked about and that were in the Lo Study and Dan Peterson had done--these patients--had data on them for decades. We took samples over three years. So it wasn't that we found the virus in every sample. It was like the macaque study, where it quickly went into the tissues, like the mouse study that came out this week that said the antibody responses were weak and transient. We don't know everything about this virus.


But HIV does not cause AIDS. The CDC definition is HIV and one of 25 co-pathogens. So the Lyme, the EBV, the enteroviruses, Martin Lerner's patients who don't get better with Valcyte. This is a reasonable hypothesis because we see the same thing. We've developed a cytokine signature that is distinct from Nancy's cytokine signature and from Ben Natelson's. So this is a marker to follow on clinical trial improvement, but there's no doubt these people are infected. With HTLV-1, if you're seropositive and you're sick, you can get some kind of treatment.


I'm not saying antiretrovirals. I'm saying immune modulators. So the patients that are found to be infected now--and there are thousands of them--need something now, not three years from now when Lipkin decides there is an association. Whatever their disease is, they're sick. And I know John--Chia--has patients who are co-infected and they don't treat the same way, so we can get together with the physicians who have co-infected patients. Even Lyme doctors, whom we are working with across the country. We can start doing something now. Take it out of CFS. It's not about CFS. It's about a retrovirus we don't understand very well. As Frank Ruscetti said at a meeting a month or so ago, "If this were HIV, it would be 1983." That's all. 

*****************************************************
Thank You Patricia Carter of the  http://www.mecfsforums.com/ for permission to repost this transcription for the World to read. ♥
*****************************************************

If THIS is not a Call to Help the Thousands of us that ARE sick and Need Help NOW I don't know what is... Thank You, Dr. Judy, for "Caring About us" and for taking on this extremely HARD job during these challenging times while 
"The Band Plays On"............................................

Next on Deck is the CFSAC meetings on May 10th + 11th and then the International Awareness Day on May 12th.

May everyone Please "Help Raise Awareness"  ~This YEAR, HERE and NOW

If XMRV proves to be Contagious... you might be Next.


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Friday, April 1, 2011

#109~ The Birth of "Advocates 4 Answers"


OH Happy Day ♥ Happy Birthday Dr Judy  
and for the birth of "Advocates 4 Answers"

Happy April 1st everyone... and it's NO Fools Joke !

Please Help us wish our very own, Dr Judy Mikovits' Birthday today !!  
Birthday Greetings  for Dr. Judy maybe emailed HERE

Also, Congratulations to Dr. Judy in her New Position at WPI as the 
Director of Translational Research. What a perfect fit for her and blessing for WPI and the patients.

What a Perfect Day to Launch the New Website and New Advocacy Campaign  
for Neuro-Immune Diseases. 

Dr. Judy and WPI epitomize the essence of real
science, passion and compassion~ along with now a new advocacy campaign ~























 The website is UP and Available NOW for you to Sign the Guestbook, so you can Help be one of the "Advocates 4 Answers" and becoming a part of WPI's "May Awareness Month" for neuro-immune disease.
 
Throughout the month of May, we are inviting you to join us in raising awareness and funds for the important research into the underlying causes of neuro-immune diseases. Every day there will be an opportunity to show your support. By signing our guest book, you are pledging that you want to be a part of our movement and will participate at a level you are comfortable with to show your support.

You will receive an email prior to May 1 to help get you started. 

You will also be show the link for the New Facebook page link for this Campaign also...

Be an "Advocate 4 Answers" and sign up today~ by going here ~

Please SHARE this post and  get everyone you know 
friends, family, and care-takers to help and participate. 


We look forward to an Exciting 2 months of Advocacy and Beyond......

Mobilize and "Join Our Energies TOGETHER" so we can be Positive Source for advocacy at this much needed time with all of the recent research developments thanks to WPI and our Heroes "on the Reno Hill."

I sincerely look forward to Joining with you ALL and taking part in this 
"much needed" long over-due United Campaign for the millions that these illnesses effects.. 

Its it TIME to Unite behind the diseases and drop any political illusions of us being separate and work with the one place that we already KNOW and TRUST

We are as Powerful as our United Voices.

Our time HAS come.. Let's Grab this Brass Ring and Run with it, OK ?

We are now on our 3rd Generation that is being effected with these illnesses and it is Time NOW for us since the Universe has seen fit to unite us with this technology to help Be "Our Own Voice" ~ 

Please Come Join us... 30 years is long ENOUGH

It is TIME for the People to USE their Voices..



XMRV will NOT Quit and Neither will WE or WPI, OK

















Heartfelt Thanks for Participating and Joining us 
on this New Campaign of Advocacy !

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