#94~ Dr. Mikovits 4th Anniv ~ WPI Research Director

I would personally like to take this opportunity to "Give Thanks" TODAY, on this, the 4th Anniversary of Dr. Judy Mikovits becoming the Research Director at the Whittemore Peterson Institute.


Because of the the persistence of the WPI and Dr. Mikovits unwavering determination 
to find the Real True Honest cause of ME/CFS and her insistence to meticulous methods 
and continually detailing her progress and her co-operation with other Medical Research Organizations AROUND the world, we CAN ALL say "without a Doubt" that it WAS her 
participation in the "Oct 2009 Science Paper" that has put ME/CFS back ON the radar of the medical and patient community.

Dr Mikovits Bio:  she's one smart cookie :)



"Dr. Mikovits spent more than 20 years at the National Cancer Institute in Frederick MD during which time she received her PhD in Biochemistry and Molecular Biology, investigating mechanisms by which retroviruses dysregulate the delicate balance of cytokines in the immune response. This work led to the discovery of the role aberrant DNA methylation plays in the pathogenesis of HIV. Later in her career at the NCI, Dr. Mikovits directed the Lab of Antiviral Drug Mechanisms (LADM) a section of the NCI's Screening Technologies Branch in the Developmental Therapeutics Program. The LADM's mission was to identify, characterize and validate molecular targets and to develop high-throughput cell-based, genomic and epigenomic screens for the development of novel therapeutic agents for AIDS and AIDS-associated malignancies (Kaposi's sarcoma). Formally trained as a cell biologist, molecular biologist and virologist, Dr. Mikovits has studied the immune response to retroviruses and herpes viruses including HIV, SIV, HTLVI, HERV, HHV6 and HHV8 with a special emphasis on virus host cell interactions in cells of the hematopoietic system including hematopoietic stem cells (HSC). Dr. Mikovits' commercial experience includes serving as a senior scientist and group leader at Biosource International, where she led the development of proteomic assays for the Luminex platform that is used extensively for cytokine activity assessment in therapy development. She also served as Chief Scientific Officer and VP of Drug Discovery at Epigenx Biosciences, where she led the development and commercialization of cell and array-based methylation assays for drug discovery and diagnostic development. Dr. Mikovits has co-authored more than 40 peer-reviewed publications that address fundamental issues of viral pathogenesis, hematopoiesis and cytokine biology. "


Before the WPI and Dr Mikovits the prior 10 years
I could hear the sound of the hallow empty vacuum
sucking the life out of all of us nonstop. 
NOW because THAT paper has revitalized the Research community , 
patient involvement and advocacy we all are 
vowing 
that THIS TIME we are going to grab this Golden Ring and 
NOT let GO until they have Found a CURE for ME/CFS.


This year after the CFSAC saw it's new Chair Chris Snell, PhD in April and 
the CFSAC~FDO Wanda Jones PhD, getting in contact with Dr Koh the Asst. Sec 
to Kathleen Sebelius, Sec of the DHHS that sits on the Obama Cabinet, 
and Dr Koh for the 1st TIME EVER attended part of the April CFSAC meeting.
I have absolutely NO DOUBT that it was Dr. Jones past history with the 
HIV retrovirus and her knowledge of the 3rd human retrovirus XMRV
that had now been connected to ME/CFS patients that prompted a 
First Time EVER Response from Kathleen Sebelius to the CFSAC regarding 
their recommendations to her. 
Here is her letter that was dated just 
Before the Sept. 2010 CFSAC meeting that has been 
documented here previously...

As we all know, that Science Day was a smoke-screen for the truth that
that the following 2 days of the public meeting would uncover, particularly due to the Well Participated in "Time for Action" Campaign by the patients and the CFSAC members that have had First hand patient experience and could speak tho the Truth.

With this post I wish to accomplish 2 things..

Thank Dr. Judy Mikovits for her ground-breaking research that has been of tremendous help to us in advancing the "real science" and interest in our plight... 

...and thus because "at this present time" there is NO other Research place like WPI that has been totally built in conjunction with  a medical school and other researchers and a public/private partnership with the University of Nevada at Reno, that will include a patient clinic when it opens SOON, I hereby ask anyone reading this to PLEASE ask anyone that will possibly be asking you what you want for a Holiday gift.. ???  to....

Please just ask them to Donate to the WPI to help advance research, treatments and hopefully one day a Cure 4 ME/CFS patients with NeuroImmune diseases.

Donating can easily be done by clicking HERE. 

I am including the links so you can easily pass them on to those who might ask.

http://www.wpinstitute.org/help/help_donation.html
Those on Facebook can easily donate using the "Cure 4 ME" FB Cause page HERE.
and http://www.causes.com/causes/399439

The 2nd thing I wish to accomplish is 

...to bring your attention to helping our other "Sister Center" that we are working 

to get built on the East Coast of the USA, the future NEI Center (TM) 

that will be for  NeuroEndocrineImmune disorders.

This would also be a wonderful time if you haven't yet to "Please sign ONE of the petitions" asking Sec. Sebelius to meet with a representative from PANDORA concerning the NEI Center. This would be a perfect time to remind her how the future NEI Center would help and benefit those with NEI disorders.

HERE is the petition on change.org
and HERE is the petition on FB.

Please remember to ONLY sign ONE of the Petitions, OK.

Most of you already know that the Gift of Health is the Best gift you could give anyone. Please help us all reach this Dream for the 40 million of us with these illnesses. As the USA approaches their Thanksgiving Holiday next week

let us Help GIVE the Gift of Health by a simple donation and one signature.

After that~ your Thanksgiving meal, I promise, will taste Better ♥

I will NOT apologize for sharing this video 
with you again ♥ and Please "Sing Along"
Together we CAN DO This!!!





If you are now feeling Motivated and 
want to do MORE...
Please up Top Under where it says "Current Event"
and Click on Any RED Action and pick 
an action you would like to participate in 
Help us Spread the word of This Action also, OK?

♥ We "Thank YOU" from around the World ♥

PS: While you are here, please 
take my Reader Survey :D


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#79~ CFSAC Letter Time~ "Crimes and Dimes"

Kathryn has given me permission to post her letter to this blog for your education......
**************************

   For printing and dissemination at CFSAC Oct. 12-14, 2010:

   Dear Committee Members, President Barack Obama, Sec. Kathleen
   Sebelius, DHHS, and Director Collins, NIH, and Senate HELP Committee

   CRIMES AND DIMES
 
   The NIH and CDC have willfully and criminally ignored their mandates and over 5,000 scientific studies of patients with CFS, which was originally M.E. (Myalgic Encephalomyelitis), which they intentionally mis-named in order to cover-up sporadic outbreaks of ME. This was done for at least two reasons:  First,  CFS/ME arose as HIV/AIDS was killing people and the CDC could not mentally manage a parallel infectious disease that the public would learn about and demand answers. The CDC had the mental problem, not us patients. 

Secondly, the CDC also knew how disabling ME could be, making more people eligible for medical care and disability benefits along with the burgeoning list of HIV/AIDS patients. Their disregard of our care must have been sanctioned by very powerful, higher echelon government agencies (NIH?, DHHS?); I don't believe they could have done this without it.

   These inhumane violations of our civil right to disability benefits, appropriate testing and treatment trials has meant 30 years of possibly criminal neglect of the American people. They have violated their own mandates to research and define CFS in a scientific and responsible manner.

   Now Reeves has been transferred...so what!? He is still publishing garbage based on his erroneous, misleading "Empirical Definition" on almost a weekly basis, and getting away with it. Who are the scientific, clinical peer-reviewers of the psychobabble he gets away with; what are their inherent interests in perpetuating the myths of child abuse, psychological problems and lack of neurological and immune system symptoms in this devastating disease?

    NIAID is setting up multi-centered clinical trials. The Question of NIH Director Collins assured patients at the recent XMRV conference of Sept. 8-9, 2010, that "we are on track. Things will happen." The QUESTION of the Day is: Based on WHAT DEFINITION? The CDC's depressed or wrongly diagnosed GA cohort, selected by random phone calls? 
The Canadian Consensus on ME/CFS? 
The 1994 Fukuda definition? 

Only one is acceptable: 

The Canadian Consensus.
 
   At the same meeting, Dr. Gottesman, Dep. Dir., Intra-Mural Research, NIH, said there will be more funding and more publications, explaining there was a "lack of concrete scientific, clinical and medical findings and published papers" .... does he SELECT OUT the 5,000 CFS publications, or is he just as ignorant as the CDC's scientists? Is he also blind or willfully ignorant? He was clueless out the patient's abhorrence of Strauss and Fauci's past actions towards us, so he obviously has never read Hilary Johnson's "Osler's Web", either. This brilliant history of the CFS criminal saga should be required reading for everyone from President Obama, to Secretary Sebelius, Director Collins,  Director Friedan (CDC) and whomever gets the new post as head of the CDC's CFS research
program, before any more damage is done to us.
 
   Gottesman did say that the "Alter/Lo publication will change everything for our illness." Maybe we could start by getting the dentists and psychiatrists now on the CFS research grants team replaced immediately.  
Dr. Peterson was at this meeting, and informed Dr. Gottesman that the major researchers of CFS are not getting funding. The patients in attendance there stated the research grants process for CFS is flawed and needed fixing.  There are four research teams that I know of that could be funded immediately: Dr. Nancy Klimas, Dr. Ila Singh, Dr. Paul Cheney and the Whittemore Peterson Institute. The PANDORA organization needs funding for the already approved New Jersey Center of Excellence. It's needs to be built at once, with clinical trials for treatment of the myriad diseases of th NeuroEndocrineImmune spectrum, including CFS, FM, GWI, Autism, atypical MS, among others. Then we need at least six or more, so patients don't have to kill themselves just getting to one for evaluation and treatments.
 
   DIMES have been spend on CFS, or should I say misspent? We demand the NIH release at least $100M over the next YEAR, to forward the research into the third Retrovirus found to infect mankind. XMRV/MLVs may not be the primary cause, but retroviruses have not been found to be benign and its association with CFS is no longer in doubt, no matter where it came from, no matter that not everyone positive for it is not
(yet) sick.
 
   The CDC has spent about $3 per patient per year on CFS. This is unconscionable for a disease far more prevalent than MS, for one, and just as disabling to certain patients as HIV in their last few months of life.
 
   The dimes need to be exchanged for dollars now...lots of them!
 
    The crimes against humanity must stop. Real science, real research, real clinical trials, and real treatments must begin. Start with the XMRV positive patients, and retest often those sick but testing negative. Just click on 
"Start"!  CLINICAL TRIALS NOW!
 
   Remove the CDC from all CFS related programs; they must be at the NIH's NAIAD division, immediately.
 
   Strong measures must be taken to protect the nation's blood supply; not questions eliciting whether a patient feels 'unwell' at the time.
 
   Let's trade CRIMES for TRUST
   Let's trade DIMES for DOLLARS
 
   Let's do it together. NOW IS THE TIME.
   From: We Three in One Home; All with CFS/ME
   Kathryn Stephens
   Mary L Arispe
   Kathy L. Lorentz
******************************************************





Thank You Kathryn for sharing your letter with all of us..
I agree with Everything you state.. We all know it to be true..
If not now ~ WHEN ???
We have been ignored like my dead car battery...

Support Our Troops? Gee... WHOM do you think has been receiving

the MOST blood transfusions with this tainted blood and they have

been accused that their Gulf War Syndrome is "all in their heads."

Our Best and Brightest.. Now you know how WE feel.....

STOP the Progress of all of the immune illnesses and cancers

that these Retroviruses are allowing to invade our bodies..

CDC ~ Center for Disease Control... Poppycock...

More like "Can't Detect Crap" even after they were SENT +Positive

sample strains of XMRV ... 

You can't find a Peach Pit in an Orange... and That is EXACTLY

what the CDC has been doing by using the WRONG Definition 

all of these years we have been suffering.....

They did INDEED Purposely IGNORE all of the Evidence ever since

the beginning.. and this is INDEED a CRIME against Humanity !!!

If XMRV is SO harmless... maybe they would like to be injected with 

the tainted blood and then let's SEE if it's all in their Heads ??

If you would like your letter to be printed just let me know..
I am hoping this will HELP inform and educate the many that
are unable to watch the CFSAC meetings and yet KNOW what
they have been told by the TOO-LONG Suffering Patients..