#76~ NIH/FDA vindicates WPI paper= BooYah!

Latest Paper links 85% of ME/CFS patients with a form of Retrovirus !!

This is "one" of the days we've been waiting for... and it did NOT disappoint.
Here is a pdf copy of the Alter/Lo paper if you want to read the whole thing..
PNAS-2010-Lo-1006901107.pdf

As of this moment's count over 104+ articles have been written per Google by various new agencies/papers about this research Paper on the latest RETROVIRUS Family that is infecting HUMANS...a good number of them unfortunately tho seem to MISS the Major POINT Here.. that THIS is a Retrovirus... NOT just your average "I've got a cold" Rhinovirus.. 
Maybe they forgot HIV that caused AIDS is a RETROVIRUS ??

The NEXT Question is WHEN are they going to take it SERIOUSLY with regard to the "Public Blood Supply" and DEMAND that the blood supply be screened for this Family of Retroviruses so that every person about to "donate/receive" blood or receive a transfusion does NOT have to worry about passing on the Horrible Diseases that those of us for the last 24 years have suffered from... it may not kill you IMMEDIATELY Like AIDS, but Trust me, it WILL Kill your Life As YOU Knew it...

It is Progressive and can/will go on to cause other organs to fail and take your families energies, bankrupt bank accounts and any semblance of a "normal life" they had with it.
**************************************************************

Statement by Whittemore Peterson Institute
August 23, 2010

Statement on XMRV/Chronic Fatigue Syndrome 

Positive replication study confirms WPI’s findings

The Whittemore Peterson Institute(WPI) would like to congratulate the distinguished authors of the recently released replication study linking XMRV with Chronic Fatigue Syndrome, Dr. Shyh‐Ching Lo of the Food and Drug Administration (FDA) and Dr. Harvey Alter of the National Institutes of Health (NIH). Their published findings in the Proceedings of the National Academy of Sciences (PNAS), confirm the central thesis of WPI’s 2009 study associating a new human gamma retrovirus, XMRV, with patients diagnosed with myalgic
encephalomyelitis/chronic fatigue syndrome (ME/CFS) while also providing answers for the failure of others to find such a link.

Validation by these prestigious researchers from two United States governmental agencies demonstrates the need for expanded research on human gamma retroviral infection and its association to ME/CFS and other neuro‐immune diseases.

“We are hopeful that with continued collaboration between our government, the biomedical industry and institutions such as the WPI, we will continue to discover answers for the millions around the world who suffer with neuro‐immune diseases,” said Annette Whittemore, president and founder of the Whittemore Peterson Institute. For additional thoughts by Dr. Judy Mikovits, please view (below).

The WPI is committed to the research and further understanding of XMRV and its
relationship to neuro-­immune disease. With the recent opening of the institute’s new translational research facilities located on the medical school campus of the University of Nevada, Reno, come expanded opportunities for new avenues of research and development of effective diagnostics and treatments for those affected by neuro-­immune disease.


http://www.wpinstitute.org/news/docs/WPI_pressrel_082310.pdf


Annette Whittemore


Dr Judy Mikovits


MORE Research is Needed NOW more than EVER so we don't have to go thru another Epidemic without the Research having been DONE when we KNOW we have the knowledge, the Scientific talent and the Drug companies are ready to alter their meds and start Trials ASAP... Please Help us Help YOU>

If you wish to Help:

*You can pass this article on to someone you know that NEEDS to know this info.

*You can pass this article on to someone that you feel would be in a position to Help us. 

*You can write a letter to the Dept of HHS and ask Sec Kathleen Sebelius to screen the country's blood supply ASAP for the family of the MRV Retroviruses.

*You can Help by even spreading the Word that a 3rd Retrovirus is OUT THERE or Rather IN OUR BLOOD and the Public needs to BE AWARE NOW....

*You can also be aware that there is a HUGE Difference between "chronic fatigue" and "Chronic Fatigue Syndrome" aka ME/CFS myalgic encephalomyelitis.. that the CDC has Refused to ACKNOWLEDGE FOR 25+ YEARS... "as if diseases will Honor County borders.." in the rest of the world this is called M.E.

*You can also even if it's just $5 Help us by donating to the WPI...

The ONLY Place like this in the WORLD> Seriously !!! They need EVERY Penny for Research they can...They were the FIRST even w/o their building to make the First Breakthru on this illness, but this is ONLY the first skirmish... we have Far to GO...

http://www.wpinstitute.org/help/help_donation.html

In the last CENTURY the World has NEVER seen a facility like this built around the patient, with researchers, scientists and Dr's to treat the patients... This is HISTORY MAKING AND NEEDS YOUR SUPPORT cuz you KNOW "The Insurance Co" sure as heck aren't gonna pay for this... So PLease check this out and then collect those pennies, nickels, dimes, dollars and whatever you can gather.. any kind of Fund Raiser you can think of...PLEASE....
Do I need to tell you HOW many children also have this illness ?? 
You would be crying and not be able to read this blog. Seriously ....

This is what we have been working HARD for and This Building JUST OPENED last weekend... so they are just beginning..

Without your Help EVERYTHING will take LONGER....and Retroviruses 

spread Fast and do NOT discriminate against age, sex or profession.

The NEW WPI Facility~



The 17million (so far) around the World ♥THANK YOU♥

#49~ Wake UP Kaiser, HMO's, AMA & medical schools

I am writing today's post because I just found out about something that
in light of recent medical news, events over the last 4 months, have been such a game-changer to 4 million Americans, and the 28 million worldwide and today I find out that KPMG aka Kaiser Permanente Medical  Group an HMO throught-out the USA is NOW in some of its facilities NOT going to be replacing the Rheumatologist/Infectious Disease MD's and is referring their ME/CFS patient back to their Primary Care MD's.

What the Heck is this ??? Going backwards in Medical Care?
SHAME on you Kaiser...   Henry J. would be ashamed of YOU..

NOW when ME/CFS patients are mostly likely being shown to have
a Retrovirus, you are dumping them  back on their GPs ???



Hope you have MANY hours of CME credits planned for them to
(continued medical education) take to come UP to speed and
Suddenly turned INTO RetroVirology Specialists ??
Wouldn't it be MORE Practical to have at least ONE Virology MD
on your Staff? Who treats your AIDS patients now ??? 
That's a Retrovirus also, in case you forgot...???

..as recently come to light, to the "public," but LONG-KNOWN by
the long suffering patients, the regular MDs that most of us have
learned to TRUST over the years have NEVER BEEN Educated about
ME/CFS and the Professors that try to educate the Medical Groups
around the country/world have been threatened with Termination and
others already have been.
Even future medical students have testified that they KNOW ME/CFS
is REAL yet they fear they will  not be properly educated about it and
will be threatened if they even discuss it as others in medical schools have been.

This info has been documented  and presented to the CFSAC meeting
(under the HHS.gov) webcast LIVE and it has been backed up by other testimonies and the experiences of many patients because " your average Joe MD" has NOT been taught about this disease
and has been advised to pigeon-hole everyone with a "Psych label" and
told that it was "all in your head" when there IS actual clinical criteria
(SEE Dr Donnica's article below) and forms of testing that can PROVE
that this illness is REAL and yet Kaiser in this 21st Century, who pays for these TV commercials about how much they care about you ONLY cares about their bottom line..
Another example of a Health  Maintenance Org. that is ONLY
trying to maintain THEIR Financial health..not your physical/emotional
health ~ NOT yours...



"Chronic Fatigue Syndrome (CFS) has received relatively little consideration since it was first described in 1988,  but the recent finding published in the prestigious journal Science showing an association between CFS and a retrovirus, XMRV has focused media and medical attention on this serious, devastating and debilitating neuro-immune condition.

While there are some people with CFS (PWC) who are able to continue
working and doing some of their activities of daily living, there are
many at the opposite end of the spectrum who are bed-ridden,
completely disabled, and can’t even get to the bathroom without assistance. While CFS doesn’t kill many people, it does take away their lives and, in many cases, their livelihood."

Excuse me, but because of the PTSD and many YEARS of Mental abuse 

perpetrated by the Medical Profession upon these victimized patients

trying to honestly get HELP and Medical CARE from their Dr's they are "suppose to  be able" to TRUST.. that have sold them down the river, caused their families YEARS of unnecessary mental and financial abuse, bankrupted families because of the Court Costs for parents of children with  ME/CFS having to PROVE that they are 

"fit parents" cuz the kids are too sick to attend school and the DSW

shows up at their door.... and MANY other abuses over the years..

I am sorry to say that there are MANY that havd died because of 

ME/CFS, just as we have had soldiers commit suicide from the PTSD from the sites of war...Well, many patients with ME/CFS have PTSD from

the years of Medical abuse and  I am sad to say that Suicide is a Sad but 

Often END to the Abuse and Pain.

Disagreements over how the condition is dealt with by health care systems has resulted in an expensive and prolonged conflict and the EARLYDeath of many patients...

(Dr. Donnica 12/02/2009 article)

KPMG this current plan on non-action on your behalf I fear is a step backwards for the medical profession and will cause patients to trust their Dr's even LESS... and show that YOU are NOT staying "current" with what is already known WorldWide and ignored by you like an
ostrich sticking your head in the ground to play ignorant & play Dumb ?
If you are Ignorant of This Game changing News.. Please avail yourself of the MANY places the info has been posted.. maybe
even watch the CFSAC Meeting ?May I suggest you WATCH BOTH Days?

Many ME/CFS patients would LOVE to be able to GO back to work  or work from home online and Have a Life again and even be able to Pay Taxes...Why are you NOT Helping this country by Helping it's citizens have better health care so we can work?

And SHAME on the AMA and whoever is  in charge of the Rules governing the Medical Education and Schools in thisCountry... You are definitely complicit in this cover-up and "intentional"lack of education and thus trauma you are and have been causing the millions of ME/CFS patients that you have been shoveling over to the Psych Dept when they have a VERY Real Biological Disease that is NOT "all in their head."

YOUR illusion that this will "go away" and that we will NOT stand UP to you and demand to be treated like HUMAN and not the mice that passed this retrovirus on proves it is all in YOUR Head... WAKE UP..

In fact, the Blood Supply of the Country and World needs to be screened just as it was for HIV and the Dr's on the  CFSAC Committee have even passed that VERY same Recommendation on to the Secretary of the HHS so we will NOT have another "an the band played on" situation like we did during the 1980's with HIV being passed on to many people
having transfusions...not to forget all of the organ and tissue transplants.

WAKE UP KAISER ~ WAKE UP Citizens~ WAKE UP HHS Sec. Sebelius~
WAKE UP CDC & FDA~ WAKE UP MD's around the world~
WAKE UP Minister's of Health~

Ignorance we HAVE a Cure for.. but Stupidity we do NOT...
If you choose to NOT educate and teach about a subject, WHY should we TRUST you? Trust needs to be EARNED. You are currently Losing it....
SHOW us you have the Guts to Be Honorable and Live up to your
Hippocratic oath of "Do NO Harm."





I am asking everyone that is reading this to either write to their Congressional Reps, Ministers of Health, HMO's, Letters to their
Editor, anyone they can think of and MORE to bring this subject to the forefront.

How many poor patients of catastrophe's are going to receive transfusions w/o knowing if the blood they receive has  XMRV in it ?? that they might develop one of the MANY Neuro-immune diseases 

or Cancers that  is linked to..

Why do you think Michael Jackson had to HIDE the fact that he had 

Lupus and Vitiligo... because the  medical world had NOT done their 

part to learn and educate themselves and the public so that this GREAT

Star did not have to live the Life of a Recluse as do many of the patients

with other neuro-immune diseases.

WE understand the problems he HAD sleeping because we have them 

ALSO. We understand the Stigma the CDC and medical profession

had imposed on these patients...

Not to forget the PTSD they have inflicted on them by abusing their

Trust and sending them to Psych....SHAME on you.....

You have made their illness WORSE by your action/OR "Lack thereof" and you HAVE caused HARM.

Why wait for Big Pharma to invent a  med to treat EACH and every illness Choose to Back the Researchers that  are Helping to find the Cause and Cure these diseases... such as in the USA...  
the WPI in Reno, NV.

WRITE THOSE LETTERS...  Give to the Researchers...
Speak UP and Question.     It's YOUR Life.. Keep it ♥

#43~ CDC Re: XMRV Inter-Agency Working Group

NEWSFlash...  both Good and Questionable......

The CDC will be part of an interagency working group 
on XMRV, led by Dr. Jerry Holmberg. 
A three-part study will be initiated:

#1) The first part will consist of standardizing and 
validating laboratory methods and reagents for 
XMRV testing. This stage will use samples provided 
by samples collected by Dr. Judy Mikovitz. 
The intention is to create an FDA approved test.

#2) The second part will test a much larger sample 
than the initial study, trying to determine the 
prevalence of XMRV in the general population, 
and the blood supply.

#3) The third part will consist of how XMRV is 
transmitted, how it causes disease, and how it 
affects various subgroups of the population.

Some are "claiming".... but "I'm NOT Convinced yet"

CDC ~  Face saving action:

CDC ME/CFS Group Relieved of XMRV Research

"In a stunning move, responsibility for XMRV research
has been taken away from the ME/CFS working group
within the CDC, and re-assigned to the division of
HIV/AIDS prevention. "

I hate to sound like a downer.... 
but I see a different side to this coin..


"This group will be in charge of replicating findings 
of the Whittemore-Peterson Institute, rather than 
the group under the control of Dr. Reeves. "

  Reeves had ALREADY told us that HIV/AIDS 
was NOT in his CFS working group..
and that HE did NOT work on Viruses... 

Remember all of those long many emails sent
back and forth between him and another about 
WHY he would not come to a conference about 
HHSV or any such thing...?? about a year ago???

"The move is highly significant: it appears that the 
CDC is now acknowledging the serious nature 
of XMRV. "

They are allocating the research of a "retrovirus" 

to the HIV/AIDS section  ----> as it should be.
They are "Simply" researching a virus DUH...

in the the Viral Dept... if they Didn't we would have 
MORE to complain about..and I mean the 
Entire Public..NOT ONLY the ME/CFS folks...

"The forceful demotion of Dr. Reeves is a sign that 
the CDC is in damage control mode." 

They have NOT yet declared that THEY believe 

that XMRV "IS" the Cause of ME/CFS.
This just says to me... that they could also 

be giving Reeves "cover" because

they don't feel that ME/CFS is a virus... get it??? 

It's from Depression.. .Remember? ??

"The HIV/AIDS prevention group in the CDC has 
many capable retrovirologists, who can provide 
years of expertise. This turn of events should lead 
to balanced, common sense research."

I am Hoping that this IS TRUE for XMRV and 
the general Health of ALL of us...
Whether they AGREE with the findings of
WPI.. is yet to be determined...
They de-faced Dr. DeFreitas... 

Will this time be any different??
Be Aware.... VERY aware...study every 
bit of wording.. to NOT read it the way
YOU want it to read..  
Remember they have PAID "PR folks" to 
word things so they will be "spinned" a certain way.

This is the UN-Spin Zone... 

ONLY  in the #3 part at the top would the studying 
of ME/CFS and XMRV come into play and possibly 
interract... THIS tells me that the CDC is studying 
XMRV...NOT that they are studying ANY connection
between XMRV and ME/CFS..... YET>.. like I said...
Maybe in Part #3 IF we stay ON them....
so do NOT Party YET ...Please...

I don't see HOW this YET changes anything 
regarding Reeves or ME/CFS.
It'll take a BETTER argument than this...
PLEASE...Convince me...I "beg" you..... 

BUT....they are supposedly taking action
on "Part of this" ....Do NOT let up the Pressure..
We have Made Great Strides This Year...
Let Us ALL OVER Continue United 
Gentle with ourselves but STRONG against
anyone that tries to perfrom any Cover-up 
OR any more Delays....OK?

**GO TEAM GO** 

#11- we ARE the NEWS------------> "XMRV" a link to MECFS

Yesterday, ALL Day in the USA and even
today in the UK news Headlines
WE "are" the News...

A New 3rd Retrovirus has been determined to
be linked almost 95% to ME/CFS patients.
I am currently TOO exhausted due to working
all day to spread the news around the world
getting it out to the 28 million of us via Twitter.
I Tweet with ME/CFS patients in Canada,
the U.K., Australia, New Zealand,  Belgium,
Germany and more..

Let me just refer you to 2 articles
so you can read the medical part
and a patient blog that both sorta
sum it up at the moment.

Sum it up to say that after 22 years
and if you refer to my post #3 you
will understand WHY this is REALLY
BIG News for us ALL and many more..

exhausted and sore I leave you now
with 2 articles....

if you want MORE just Google
" XMRV, chronic fatigue syndrome"
and the list will be LONG that pops up.

Game Changer

Whittemore-Peterson site
also check out the News &
Q&A section.

If this were the SETI project...
Our voice is going to be Heard now..
We ARE on the radar ;-)
Please spread the Word, OK?

Kinda funny that this is the SAME DAY
as NASA will be exploding a rocket
INTO the Moon, and just now
Breaking news...
Pres. Obama wins the
"Nobel Peace Prize."
Definitely a History making Day!