#59~ CFSACmeeting~ 4/10/10 Public Comment ???

Would YOU wait bedridden for 6 months for a 3 min. public comment?

I was SO Shocked and Personally INSULTED when I saw this that I just HAD to post about it to all of you... Are you AWARE that not ONLY will this be a ONE DAY (instead of the usual 2 ) meeting BUT the Public Comments have been reduced 
to 3min each ( instead of the usual 5 minutes ) AND NOW I SEE that there will 
ONLY be 30 minute IN TOTAL allowed for Public Comment ??? 


That is a HUGE Slap in the FACE to the Constituents they ARE Being PAID to Represent and they won't even give us adequate time to comment ?  I HOPE all commentators have brought FAST SPEAKING Helpers or a prerecorded version 
that they can play in FastForward Mode "chipmunk voice" so that their entire statement  CAN be made.. Sheez.. 25 years of PTSD and now this ???


THANKFULLY, Annette Whittemore of WPi HAS been granted 3 minutes to speak. Hallelujah ~


If the QUALITY of this MEETING is NOT EXCELLENT enough to make up for the lack of time/days allowed... I think it is TIME for there to be a VERY Vocal 
Public Input... I won't say exactly WHAT and to WHOM yet we will be directing
all of our input, (obviously Elected Officials ) among MANY Other PLACES...


I'm talking a HUGE Patient UNITED Campaign... WAY MORE than the CFIDS Assoc has ever done.. as WE WILL BE HEARD THIS TIME .... IT IS TIME FOR THIS 
DISGRACE AND Lack of HELP to those of us that WANT to be WORKING AND PAYING TAXES AGAIN.. Hello ? Help this Economy ?? Do I need to add up for you the MILLION of Dollars/Sterling/Euros that the NEGLECT of the ME/CFS Community has COST not only the USA but the UK and other countries
around this world.. It might be truthfully enough to make a REAL dent 
in the deficit.


But FIRST, some folks NEED to Take the PLUGS OUT Of Their EARS
and "Get a CLUE"...


I *Thought*  we were having a World Recession...TOO BAD they decided NOT to help 28 million people that COULD be Working and Helping our countries... but NO.... We ARE Being ignored and falling thru the cracks and unless this meeting BLOWS the ROOF OFF the Building...because it is SO FANATASTIC.... then our plans WILL be put into action...
Enough is Enough...
We WILL Be Silent NO MORE. Period !!!


Please Be SURE to "Tune IN" on May10th or whatever DAY/Time it is based on your timezone ♥♥♥ 

For further contact:
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Office of Public Health and Science
U.S. Department of Health and Human Services
Hubert H. Humphrey Building, Room 712E
200 Independence Avenue SW.
Washington, DC 20201
(202) 690-7650 (Voice)
(202) 401-4005 (FAX)
cfsac@hhs.gov (Email)

Agenda

May 10, 2010

9:00 am

Call to Order Opening Remarks Roll Call, Housekeeping

Dr. Christopher Snell Chair, CFSAC Dr. Wanda Jones Designated Federal Official

9:15 am

Welcome Statement from the Assistant Secretary for Health New Members Statement on CFSAC Interests/Goals

Dr. Howard K. Koh CFSAC New Members

10:00am

Remarks from Dr. Elizabeth Unger

Dr. Elizabeth Unger

10:30am

Blood Safety Update on XMRV

Dr. Jerry Holmberg

11:00am

Review/Update of past CFSAC recommendations

Committee Members

12:30pm

Subcommittee Lunch

Subcommittee Members

1:30pm

Public Comment (on CFSAC charter)

Public

2:00pm

Review and Discussion of CFSAC Charter and ByLaws

Committee Members

4:00pm

Adjourn

#55~ XMRV-Positive Doctor Believes Other Doctors Should Consider Treatment NOW

XMRV-Positive Doctor Believes Other Doctors Should Consider Treatment NOW

              AND

XMRV-positive Doctor Begs Us to Fight for WPI

I am a 56 year old physician with ME/CFS/atypical MS. I have a daughter with ME/CFS/Lyme Disease.

I was an emergency physician. After I got sick, I recovered enough to have a private practice. I treated brain injury with neurofeedback and HBOT.

In that context, I treated patients with Lyme/CFS/ASD/PTSD/mood disorders. I am also well versed in complementary, alternative, integrative, functional medicines and bioidentical hormone replacement.

When I read the paper in Science about XMRV being highly associated with CFS, it was apparent to me as a physician and a patient that this was it.

When I realized that the virus is sensitive in vitro to existing safe HIV drugs, I thought and still think that it is a miracle. In fact, I am stunned by the sudden overabundance of caution in the treating physicians

It would seem that nobody wants to try it. Despite being given the key. Never mind that we are a patient population that has been experimented on for decades.

Frankly, I didn’t see what I had to lose. We are culture positive at VIP Dx. We have tried everything to no avail.

So with the assistance of a wise, compassionate friend who is an ID doc, and a smart family practitioner, I started AZT 300mg on March 4 and Isentress 400mg on March 11, both twice a day.

It was my intention to wait for some sort of confirmatory data before reporting anything publicly. But watching all that isn’t happening with respect to figuring out how to help the patients, I don’t think that anything should depend on how a few patients do, especially a patient like me who may have been infected for as many as 40 years.

I don’t think it is wise to wait while scientists argue about the validity of lab tests. There are too many who need help emergently.

HAART is a safe existing protocol for AIDS which includes three drugs which inhibit XMRV in vitro. We even know that the three possible combinations of those drugs are each synergistic in vitro.

But, the sickest will die while the scientists try to figure it out, so it seems to me that it is up to the doctors to treat with the information available. As always.

I believe that there is a rationale for treating the sickest patients now. Physicians are allowed to prescribe drugs off-label. I think they should be testing their patients, at VIP Dx, the only commercial lab right now that seems to be able to find XMRV in peripheral blood, using the methods validated in the Science paper.

I would be happy to share with any physician willing to consider treating.

I certainly don’t expect that it will be as easy as taking a few pills. There is lots of downstream damage that will need to be treated. But treating all of the problems that have been identified over the years in this patient population will likely be more effective for many more patients than it has been in the past.

We will finally be able to identify the commonalities and differences in the various neuroimmune cohorts. Always treat the causative agent if you can. Then modify the host environment to the best of your ability so that whatever is left functions at its highest possible level.

In my opinion, too many of our physicians have gotten caught up in their own ideas and lost track of the goal, which is to get the patients well. As a group, doctors and patients alike, we must support a willingness for the truth to come out, whatever that is. New discoveries have to be incorporated into our thinking as they occur.

I thought that it would be OK to sit back and let the dust settle. Whenever momentous discovery happens in medicine, there is a flurry of resistance from those who have been made wrong.

But this is uglier than that. Now the WPI is in need of funding. Connect the dots. And the band is playing on while we go down…

I am no activist. I am politically naive. But I know the power of the internet. I know how marginalized we have been as patients.

The people at the WPI are our friends. They are fighting for us, when no one has. As a community, we are often too sick to fight. So we have to let others slay the dragons for us. We have to support them in any way we can. Read: SEND AS MUCH MONEY TO THE WPI AS YOU CAN AFFORD. Please tell everyone you know. Pull out all the stops.

Sincerely,
Jamie Deckoff-Jones MD
Santa Fe, NM

I posted the above message from Dr. Jamie Deckoff-Jones with her permission. She wrote, "Please post anywhere you
want with my name."

#51~ Nominate Annette Whittemore for CNN 2010 HERO

Welcome to Spring...my pretties...♥♥♥


OK, Now that we in the northern hemisphere are all getting cheerie 
cuz Spring is here, it's time to finish a project I started at the end of last year...
Back then I was ahead of myself...I guess. Who knew ?


Many of us for the last 25 or so years, many from all over the world have been
frustrated because in the USA the CDC has been either ignoring us 
or mis-naming our illness or using OUR research monies for OTHER projects...


the list goes on and on.. and in the UK they have their own list of abuses and insults by their 
Ministers of Health also and the psychos of the med world that have been given orders to 
corral us like they were part of the cast of "New Moon"...LOL


NO, we don't have the Yuppie Flu, or we are NOT just lazy and tired all the time, and 
YES we have TRIED "Every" blessed test, pill, supplement and therapy you have subjected us to....
well....NO MORE..     You are abusing us NO MORE...
GOT IT ???  We're DONE. We found some REAL Dr's & Scientists that CARE and Honor their Hippocratic Oath.

No, it is NOT "just Chronic" Epstein-Barr Virus, 

No, it is NONE of the many things you tried to pin on us.. 

We are NOT your little voodoo dolls to be pricked poked and

exercised and GET/CBT to the grave and until we are ready to SCREAM....

You have already killed enough of us.. made enough of us GO Crazy cuz of your YEARS of ignoring us, insulting us and abusing us....to the point of PTSD.
We became even afraid to come back and have an appt. with you....
THAT IS VERY Pathetic !!! and in fact, probably criminal....tbd later.

Years of making Families FIGHT in Court to Keep their children because YOU were too lazy to do the REAL research to find out what they REALLY had....Dr. Bell has it ALL documented.

You have given WAY too many of us PTSD from YEARS of unending abuse...

when we trusted you with our very LIVES... we even Paid YOU to help us..

Want a few examples to SEE We're NOT joking or exaggerating at all?  OK.
"NO problem"... we have videos and lists... 25 year's worth..... Here's one of each...



There has also been MANY online advocates that have worn themselves out
or been threatened with additional harassment to the point that the added stress made them stand down for their own health and there is one I would like to
Make sure they KNOW we miss them and I hope they see this video making the rounds... 
and thanks to the creator for speaking for us *Hugs*



One last page I would like to list is a memoriam page for all of those (that we KNOW of) that have passed on before us because of this TOO LONG Ignored 
illness...Here is a short list we have been able to compile from our beds
being the lazy people we are.... 

Thank You Andrea Martell for putting this BRC4ME site together.

Blue Ribbon 4ME Memorial Site

So FINALLY a New Millennium has arrived and YES even a New Decade and we even have NOW 
our VERY OWN Institute started because as the old movie Network said 
"I'm mad as HE**, and I'm NOT going to take it any more."

So this courageous woman and mother became Founder and President

of an Institute "devoted" to ignoring all of the nay-sayers ALL OVER THE WORLD,

and with a single-minded purpose established a non-profit organization in the USA called a 501C3 and teamed up with the University of Reno negotiating for some grants and room to get started using their lab years before "their building" was even started or a shovel turned.... and Voila ! 

We HAVE the


Whittemore-Peterson Institute for Neuro-Immune Disease<--Mouse OVER for WPI Link.

by jiggers.... someone I think that's really "got it" !!!! They UNDERSTAND ♥♥♥

And here is a little background history for those that haven't been with us here
for the last few years, a video, so you can meet the other participating partners

helping DO the Research and flip all the switches backstage like the Wizard of Oz.

PLEASE BE SURE TO WATCH BOTH PARTS OF THE VIDEO TO THE END...
and KEEP in Mind that this was "just 2 years ago" and NOW already
they have "accomplished Scientific HISTORY" published in Science magazine
regarding the 3rd HUMAN Retrovirus XMRV with a link to CFS ...
...and Seriously ... The Do NOT even HAVE their OWN LAB YET folks....think about it...seriously.. THAT takes Dedication !!!
They are still building it.. So this is cutting edge and they NEED
Research AND Building Fund Raising so they can provide EVERYTHING
you will HEAR in these 2 videos, OK? Thanks.....

Part #1~


Part #2~


Their website even says on their front page....
"NOT for the lazy buggers" BUT

“The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.”

May they be Blessed by Every God by Every Name..... 

And especially the LADY, the Mother, the Woman that is it's Leader 
and Face to the World for us..... Annette Whittemore... 

OUR HERO for 28 million people worldwide.....

That IS.....SO Far..........more testing to determine actual totals

                         

 I started early at the end of last year and asked on Facebook who would like to 

Join me and Name her Mother of the YEAR for 2010 and the number of Facebook

members that joined in was amazing....

NOW I see there is this CNN 2010 HERO Contest and I said... well...

She OUR HERO...absolutely not even ONE question about THAT....

So Let's get cracking mates and get this BRAVE Lady that has stood UP

for ALL of us "Far AND Wide", has Campaigned in Washington DC for us.

Has spoken in front of the CFSAC meeting for us... If there is ANYTHING

she could/can do for us she would and WILL... make NO Bones about that....

So let's ALL Join together and FILL OUT Those CNN 2010 HERO Forms and 

Help get her OFFICIALLY  Named the 2010 HERO, OK?

Remember it's NOT just for us, but for the Millions that have already gone on
ahead of us, and those that will come after us... we MUST DO OUR PART
as she has done her's... to also Help Bring more Publicity to our illness
and Research monies via the PR to WPI to help our cause....





HELP ME Nominate her for CNN 2010 Person of the Year !!! by using this link:
http://www.cnn.com/SPECIALS/cnn.heroes/nom/

For this contest PLEASE use the WPI contact info for her address and phone and email, as she IS the President there, they can contact her thru the Admin offices there...OK?


If needed her Birthday is April 26, 1952.
For the forms: contact info....

Annette Whittemore
Whittemore Peterson Institute
6600 N Wingfield Pkwy
Sparks, NV 89436
(775) 348-2335
email: info@wpinstitute.org


Annette's Pres. message from
WPI :http://www.wpinstitute.org/about/about_presmsg.html

I think the rest of you KNOW how to express how what she has done and how it has changed our lives this year 'so far' after waiting 25 years for the CDC

or "someone" to do SomeTHING... we...can NOW with this little thing to try in some small way to THANK Her..

For the FIRST TIME after ALL of these years.. HER WORK has not only given us a medical reason to undertand WHY SO many of us have different symptoms YET "just how" they ALL fit together and WHY. 

NOW we can see HOW BIG our Family of sufferers REALLY is....

There is even some PROOF that XMRV is also a source of Gulf War Syndrome.. So the soldiers have fought for the country, and then come home and "Join US" and fight this INSULT, especially in the way the Medical Profession.... EVEN those at the Veteran's Admin. has been mistreating the military that already given above and beyond.... 

Annette is as BRAVE and any Soldier... She IS OUR Hero !!!

She WILL Fight THIS WAR.... until this WAR is WON...and you KNOW there is NO Question about THAT... no reason to even question it.

Can you at least Help our Cause by Nominating her for this 

Worldwide Honor and THIS is a Worldwide Illness ???

YOU know she is deserving and has been ALREADY Fighting right there

in the trenches along with us.. in fact, she was OUT THERE when we were stuck in bed...and couldn't get out into the trenches.. 

Bless you and "Thank YOU" for Helping us Nominate

such a Loving Worthy Humble Deserving Lady and Mother to US all....

We all LOVE you Annette and everyone at WPI......♥♥♥♥♥  
You have "Inspired US" and Given us back our HOPE 
that was LOST and forgotten for SO many years!!

#49~ Wake UP Kaiser, HMO's, AMA & medical schools

I am writing today's post because I just found out about something that
in light of recent medical news, events over the last 4 months, have been such a game-changer to 4 million Americans, and the 28 million worldwide and today I find out that KPMG aka Kaiser Permanente Medical  Group an HMO throught-out the USA is NOW in some of its facilities NOT going to be replacing the Rheumatologist/Infectious Disease MD's and is referring their ME/CFS patient back to their Primary Care MD's.

What the Heck is this ??? Going backwards in Medical Care?
SHAME on you Kaiser...   Henry J. would be ashamed of YOU..

NOW when ME/CFS patients are mostly likely being shown to have
a Retrovirus, you are dumping them  back on their GPs ???



Hope you have MANY hours of CME credits planned for them to
(continued medical education) take to come UP to speed and
Suddenly turned INTO RetroVirology Specialists ??
Wouldn't it be MORE Practical to have at least ONE Virology MD
on your Staff? Who treats your AIDS patients now ??? 
That's a Retrovirus also, in case you forgot...???

..as recently come to light, to the "public," but LONG-KNOWN by
the long suffering patients, the regular MDs that most of us have
learned to TRUST over the years have NEVER BEEN Educated about
ME/CFS and the Professors that try to educate the Medical Groups
around the country/world have been threatened with Termination and
others already have been.
Even future medical students have testified that they KNOW ME/CFS
is REAL yet they fear they will  not be properly educated about it and
will be threatened if they even discuss it as others in medical schools have been.

This info has been documented  and presented to the CFSAC meeting
(under the HHS.gov) webcast LIVE and it has been backed up by other testimonies and the experiences of many patients because " your average Joe MD" has NOT been taught about this disease
and has been advised to pigeon-hole everyone with a "Psych label" and
told that it was "all in your head" when there IS actual clinical criteria
(SEE Dr Donnica's article below) and forms of testing that can PROVE
that this illness is REAL and yet Kaiser in this 21st Century, who pays for these TV commercials about how much they care about you ONLY cares about their bottom line..
Another example of a Health  Maintenance Org. that is ONLY
trying to maintain THEIR Financial health..not your physical/emotional
health ~ NOT yours...



"Chronic Fatigue Syndrome (CFS) has received relatively little consideration since it was first described in 1988,  but the recent finding published in the prestigious journal Science showing an association between CFS and a retrovirus, XMRV has focused media and medical attention on this serious, devastating and debilitating neuro-immune condition.

While there are some people with CFS (PWC) who are able to continue
working and doing some of their activities of daily living, there are
many at the opposite end of the spectrum who are bed-ridden,
completely disabled, and can’t even get to the bathroom without assistance. While CFS doesn’t kill many people, it does take away their lives and, in many cases, their livelihood."

Excuse me, but because of the PTSD and many YEARS of Mental abuse 

perpetrated by the Medical Profession upon these victimized patients

trying to honestly get HELP and Medical CARE from their Dr's they are "suppose to  be able" to TRUST.. that have sold them down the river, caused their families YEARS of unnecessary mental and financial abuse, bankrupted families because of the Court Costs for parents of children with  ME/CFS having to PROVE that they are 

"fit parents" cuz the kids are too sick to attend school and the DSW

shows up at their door.... and MANY other abuses over the years..

I am sorry to say that there are MANY that havd died because of 

ME/CFS, just as we have had soldiers commit suicide from the PTSD from the sites of war...Well, many patients with ME/CFS have PTSD from

the years of Medical abuse and  I am sad to say that Suicide is a Sad but 

Often END to the Abuse and Pain.

Disagreements over how the condition is dealt with by health care systems has resulted in an expensive and prolonged conflict and the EARLYDeath of many patients...

(Dr. Donnica 12/02/2009 article)

KPMG this current plan on non-action on your behalf I fear is a step backwards for the medical profession and will cause patients to trust their Dr's even LESS... and show that YOU are NOT staying "current" with what is already known WorldWide and ignored by you like an
ostrich sticking your head in the ground to play ignorant & play Dumb ?
If you are Ignorant of This Game changing News.. Please avail yourself of the MANY places the info has been posted.. maybe
even watch the CFSAC Meeting ?May I suggest you WATCH BOTH Days?

Many ME/CFS patients would LOVE to be able to GO back to work  or work from home online and Have a Life again and even be able to Pay Taxes...Why are you NOT Helping this country by Helping it's citizens have better health care so we can work?

And SHAME on the AMA and whoever is  in charge of the Rules governing the Medical Education and Schools in thisCountry... You are definitely complicit in this cover-up and "intentional"lack of education and thus trauma you are and have been causing the millions of ME/CFS patients that you have been shoveling over to the Psych Dept when they have a VERY Real Biological Disease that is NOT "all in their head."

YOUR illusion that this will "go away" and that we will NOT stand UP to you and demand to be treated like HUMAN and not the mice that passed this retrovirus on proves it is all in YOUR Head... WAKE UP..

In fact, the Blood Supply of the Country and World needs to be screened just as it was for HIV and the Dr's on the  CFSAC Committee have even passed that VERY same Recommendation on to the Secretary of the HHS so we will NOT have another "an the band played on" situation like we did during the 1980's with HIV being passed on to many people
having transfusions...not to forget all of the organ and tissue transplants.

WAKE UP KAISER ~ WAKE UP Citizens~ WAKE UP HHS Sec. Sebelius~
WAKE UP CDC & FDA~ WAKE UP MD's around the world~
WAKE UP Minister's of Health~

Ignorance we HAVE a Cure for.. but Stupidity we do NOT...
If you choose to NOT educate and teach about a subject, WHY should we TRUST you? Trust needs to be EARNED. You are currently Losing it....
SHOW us you have the Guts to Be Honorable and Live up to your
Hippocratic oath of "Do NO Harm."





I am asking everyone that is reading this to either write to their Congressional Reps, Ministers of Health, HMO's, Letters to their
Editor, anyone they can think of and MORE to bring this subject to the forefront.

How many poor patients of catastrophe's are going to receive transfusions w/o knowing if the blood they receive has  XMRV in it ?? that they might develop one of the MANY Neuro-immune diseases 

or Cancers that  is linked to..

Why do you think Michael Jackson had to HIDE the fact that he had 

Lupus and Vitiligo... because the  medical world had NOT done their 

part to learn and educate themselves and the public so that this GREAT

Star did not have to live the Life of a Recluse as do many of the patients

with other neuro-immune diseases.

WE understand the problems he HAD sleeping because we have them 

ALSO. We understand the Stigma the CDC and medical profession

had imposed on these patients...

Not to forget the PTSD they have inflicted on them by abusing their

Trust and sending them to Psych....SHAME on you.....

You have made their illness WORSE by your action/OR "Lack thereof" and you HAVE caused HARM.

Why wait for Big Pharma to invent a  med to treat EACH and every illness Choose to Back the Researchers that  are Helping to find the Cause and Cure these diseases... such as in the USA...  
the WPI in Reno, NV.

WRITE THOSE LETTERS...  Give to the Researchers...
Speak UP and Question.     It's YOUR Life.. Keep it ♥

#10-many ME/CFS/FM can "also" have PTSD

Every day I seem to Learn something NEW that

amazes me, as a 22 yr ME/CFS patient, even tho

my cluster of symptoms is "Classic" to ME, due

to the lack of credible research/Respect for the
last 25 yrs by the CDC for their "so called CFS",

and only recently have some others come forth

with some truly enlightening info, so we have

been able to "get some Validation" about the
things we have been "feeling & suspecting"
for years now.

One of the phrases that particularly rang true

for me was: "I've had patients who met 

post-traumatic stress disorder criteria... 

where their trauma was their interaction 

with their physician around this illness. 

They came to a doctor with Chronic 

Fatigue Syndrome; they left the doctor 
with PTSD. 

         – Nancy Klimas, M.D.
Miami Herald, March 24, 2009
www.miamiherald.com/living/story/963475.html


I have experienced that myself....
be it from either arguing over labeling me as
the Wrong diagnosis with an illness I displayed
NO symptoms of, to a 2nd opinion Dr. that was
 "suppose to be" the "enlightened one" but was 
FORCED to comply with the restrictions of the 
HEAD Dr that ran the medical group he was 
practicing within, thus his actions were limited 
and could not even do the things that Obama IS 
asking the Medical Profession to DO right now, 
and I was, like "confer with another Dr" so they 
could compare records and history so I could 
have what we call "Continuity of Care" and 
not be "made to" duplicate/rePeat everything
and we could ALL be on the same page...

Add in the many that have experienced 
"spousal abuse", that has also now been
by the Medical Insurance Industry as labeled as
"a Pre- Existing Condition", of what I say.?
Hello, yes, you've guess it.. PTSD...
aka years of battering and the "shock"
involved and stress to the psyche.

Because of the MANY that may not have

the external physical scars, but DO have the 

internal scars, I am also adding a wonderful

PTSD blog site (in the Right column) I have found 

that you might find will mirror many of the CBT 
and other therapies that many recommend for us.

And ADD to the list not only spousal abuse but

natural disasters, terrorism, war , medical 
dramas, sexual and child abuse, and the list 
gets HUGE.

Mind you these therapies can help us deal with 

the abuses that have been hurled in our direction

but they can NOT CURE ME/CFS and the 

physical "organ damages that it CAN 
cause" and HAS in many of it's 28 million
patients..

All of the issues surrounding the cause of 

the added PTSD is "in addition TO" NOT

the cause OF the ME/CFS...........Period.

Yes, it causes the ME/CFS to Flare,

and causes many of us to relapse, but these  

are/were totally separate issues, but can be 
related, because they ADD insult to the injury.

MOST Dr's seem as of yet, unable to distinguish

the chicken from the egg, although if they simply

would take and LISTEN to a GOOD HISTORY

it would help them make a differential diagnosis

a LOT easier...

The WHO categorizes us under

"G93.3 Postviral fatigue syndrome 

Benign myalgic encephalomyelitis", 

and it effects the Central nervous System

it is considered a Brain Disorder, but

it is NOT simply "all in your head."

Your Brain is your body's computer..

So it effects your Entire Body and 

ALL of its' related symptoms, and maybe

even for many other's organs, as we are

all ruled by our circuitry. 

As a matter of fact, after the 1st Gulf War the 

Medical head of the Army told  soldiers that 

presented with PTSD to tell their Dr's 

they had CFS and they would be treated 

appropriately, as PTSD was not being 

acknowledged at that time.

Please continually check the Links listed

on the Left, as I may add new ones in between

blog posts many times. Also, if you come across

a blog/website that you feel would serve our

community at large, either patients or those that

help us, please let me know and I will add it 

to the list for all to have access to, OK?

Till next time... Remember to be Gentle

with yourself... and Rest WELL ♥