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Showing posts with label Medical Research. Show all posts
Showing posts with label Medical Research. Show all posts

Saturday, March 27, 2010

#51~ Nominate Annette Whittemore for CNN 2010 HERO



Welcome to Spring...my pretties...♥♥♥


OK, Now that we in the northern hemisphere are all getting cheerie 
cuz Spring is here, it's time to finish a project I started at the end of last year...
Back then I was ahead of myself...I guess. Who knew ?


Many of us for the last 25 or so years, many from all over the world have been
frustrated because in the USA the CDC has been either ignoring us 
or mis-naming our illness or using OUR research monies for OTHER projects...


the list goes on and on.. and in the UK they have their own list of abuses and insults by their 
Ministers of Health also and the psychos of the med world that have been given orders to 
corral us like they were part of the cast of "New Moon"...LOL


NO, we don't have the Yuppie Flu, or we are NOT just lazy and tired all the time, and 
YES we have TRIED "Every" blessed test, pill, supplement and therapy you have subjected us to....
well....NO MORE..     You are abusing us NO MORE...

GOT IT ???  We're DONE. We found some REAL Dr's & Scientists that CARE and Honor their Hippocratic Oath.




No, it is NOT "just Chronic" Epstein-Barr Virus, 
No, it is NONE of the many things you tried to pin on us.. 
We are NOT your little voodoo dolls to be pricked poked and
exercised and GET/CBT to the grave and until we are ready to SCREAM....

You have already killed enough of us.. made enough of us GO Crazy cuz of your YEARS of ignoring us, insulting us and abusing us....to the point of PTSD.
We became even afraid to come back and have an appt. with you....
THAT IS VERY Pathetic !!! and in fact, probably criminal....tbd later.



Years of making Families FIGHT in Court to Keep their children because YOU were too lazy to do the REAL research to find out what they REALLY had....Dr. Bell has it ALL documented.

You have given WAY too many of us PTSD from YEARS of unending abuse...
when we trusted you with our very LIVES... we even Paid YOU to help us..

Want a few examples to SEE We're NOT joking or exaggerating at all?  OK.
"NO problem"... we have videos and lists... 25 year's worth..... Here's one of each...



There has also been MANY online advocates that have worn themselves out
or been threatened with additional harassment to the point that the added stress made them stand down for their own health and there is one I would like to
Make sure they KNOW we miss them and I hope they see this video making the rounds... 
and thanks to the creator for speaking for us *Hugs*



One last page I would like to list is a memoriam page for all of those (that we KNOW of) that have passed on before us because of this TOO LONG Ignored 
illness...Here is a short list we have been able to compile from our beds
being the lazy people we are.... 

Thank You Andrea Martell for putting this BRC4ME site together.

Blue Ribbon 4ME Memorial Site

So FINALLY a New Millennium has arrived and YES even a New Decade and we even have NOW 
our VERY OWN Institute started because as the old movie Network said 
"I'm mad as HE**, and I'm NOT going to take it any more."

So this courageous woman and mother became Founder and President
of an Institute "devoted" to ignoring all of the nay-sayers ALL OVER THE WORLD,
and with a single-minded purpose established a non-profit organization in the USA called a 501C3 and teamed up with the University of Reno negotiating for some grants and room to get started using their lab years before "their building" was even started or a shovel turned.... and Voila ! 

We HAVE the


Whittemore-Peterson Institute for Neuro-Immune Disease<--Mouse OVER for WPI Link.

by jiggers.... someone I think that's really "got it" !!!! They UNDERSTAND ♥♥♥


And here is a little background history for those that haven't been with us here
for the last few years, a video, so you can meet the other participating partners
helping DO the Research and flip all the switches backstage like the Wizard of Oz.
PLEASE BE SURE TO WATCH BOTH PARTS OF THE VIDEO TO THE END...
and KEEP in Mind that this was "just 2 years ago" and NOW already
they have "accomplished Scientific HISTORY" published in Science magazine
regarding the 3rd HUMAN Retrovirus XMRV with a link to CFS ...
...and Seriously ... The Do NOT even HAVE their OWN LAB YET folks....think about it...seriously.. THAT takes Dedication !!!
They are still building it.. So this is cutting edge and they NEED
Research AND Building Fund Raising so they can provide EVERYTHING
you will HEAR in these 2 videos, OK? Thanks.....

Part #1~


Part #2~


Their website even says on their front page....
"NOT for the lazy buggers" BUT


“The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.”

May they be Blessed by Every God by Every Name..... 

And especially the LADY, the Mother, the Woman that is it's Leader 
and Face to the World for us..... Annette Whittemore... 

OUR HERO for 28 million people worldwide.....

That IS.....SO Far..........more testing to determine actual totals



                         

 I started early at the end of last year and asked on Facebook who would like to 
Join me and Name her Mother of the YEAR for 2010 and the number of Facebook
members that joined in was amazing....

NOW I see there is this CNN 2010 HERO Contest and I said... well...
She OUR HERO...absolutely not even ONE question about THAT....
So Let's get cracking mates and get this BRAVE Lady that has stood UP
for ALL of us "Far AND Wide", has Campaigned in Washington DC for us.
Has spoken in front of the CFSAC meeting for us... If there is ANYTHING
she could/can do for us she would and WILL... make NO Bones about that....

So let's ALL Join together and FILL OUT Those CNN 2010 HERO Forms and 
Help get her OFFICIALLY  Named the 2010 HERO, OK?

Remember it's NOT just for us, but for the Millions that have already gone on
ahead of us, and those that will come after us... we MUST DO OUR PART
as she has done her's... to also Help Bring more Publicity to our illness
and Research monies via the PR to WPI to help our cause....





HELP ME Nominate her for CNN 2010 Person of the Year !!! by using this link:
http://www.cnn.com/SPECIALS/cnn.heroes/nom/

For this contest PLEASE use the WPI contact info for her address and phone and email, as she IS the President there, they can contact her thru the Admin offices there...OK?


If needed her Birthday is April 26, 1952.
For the forms: contact info....

Annette Whittemore
Whittemore Peterson Institute
6600 N Wingfield Pkwy
Sparks, NV 89436
(775) 348-2335
email: info@wpinstitute.org


Annette's Pres. message from
WPI :http://www.wpinstitute.org/about/about_presmsg.html

I think the rest of you KNOW how to express how what she has done and how it has changed our lives this year 'so far' after waiting 25 years for the CDC
or "someone" to do SomeTHING... we...can NOW with this little thing to try in some small way to THANK Her..
For the FIRST TIME after ALL of these years.. HER WORK has not only given us a medical reason to undertand WHY SO many of us have different symptoms YET "just how" they ALL fit together and WHY. 
NOW we can see HOW BIG our Family of sufferers REALLY is....
There is even some PROOF that XMRV is also a source of Gulf War Syndrome.. So the soldiers have fought for the country, and then come home and "Join US" and fight this INSULT, especially in the way the Medical Profession.... EVEN those at the Veteran's Admin. has been mistreating the military that already given above and beyond.... 

Annette is as BRAVE and any Soldier... She IS OUR Hero !!!
She WILL Fight THIS WAR.... until this WAR is WON...and you KNOW there is NO Question about THAT... no reason to even question it.
Can you at least Help our Cause by Nominating her for this 
Worldwide Honor and THIS is a Worldwide Illness ???


YOU know she is deserving and has been ALREADY Fighting right there
in the trenches along with us.. in fact, she was OUT THERE when we were stuck in bed...and couldn't get out into the trenches.. 

Bless you and "Thank YOU" for Helping us Nominate
such a Loving Worthy Humble Deserving Lady and Mother to US all....

We all LOVE you Annette and everyone at WPI......♥♥♥♥♥  
You have "Inspired US" and Given us back our HOPE 
that was LOST and forgotten for SO many years!!

Monday, January 11, 2010

#48~ Maybe I'll do a 3 day Medical Study & Publish it?



If psychiatrists can research retrovirology,
and publish medical research papers on 

the same Hey..maybe I can also?  

Heck, why don't we get
a few photographers in, a philosopher 

or two and make it a real party. Not to 
mention an astronomer, a comedian and 
an arborist to keep it balanced! 
Anyone else in?  Look how much 
"media" attention it would get! 
Aren't you TIRED of listening to False
BAD news every day? Let's go 
"on Strike" and only watch/read
THE GOOD NEWS & The TRUTH
from Now ON.. and "Most Importantly" 
Expose the Imposters & Scammers, OK?

Earlier this month that's exactly what
happened in the U.K. regarding a VERY
Important Medical Issue of 

World Importance.

As opposed to waiting for the REAL
Medical Researchers to complete a
REAL study that would replicate the
findings of a new Retrovirus that has
World Health implications...
...tiny minded folks in the pysch
community tried to whip out a
3 day study & write a paper...

When knowing that to do "REAL Research"
takes TIME and meticulous repetition of
not only the EXACT technique originally
used, but also looking for the same strain
of the retrovirus, and using a pool of
test subjects that have been
drawn from the SAME diagnostic criteria
as the original study was...
or else.. 


this Imposter is just THAT..
..and TOTAL SHAM and a disgrace out 

there to the REAL Psychiatrists that are
trying to do some REAL help for their
patients.. 


Especially, if the psychiatrist
that in this study has been previously
involved in muddy situations of possible
child/patient abuse in the past.

And SHAME on the Newspapers &
Magazines and ezines that have so quickly
"jumped onto" this story instead of doing
PROPER "Investigative Reporting."
Obviously, these issues are what we
call in the industry "rags" and not really
producers of Real NEWS, but rather
gossip and BS attention headline grabbing
garbage.... which result in articles that
match the quality of the 3 day study paper
they were "supposedly" reporting on..
aka "Garbage IN = Garbage OUT."

It's HARD enough to get the money
to get REAL Scientific Research funded..
We do NOT need to waste time nor money
for these sham studies or give them ANY
Credibility.... When you read an article,
read the "fine print" also... the details of
who was involved in the study, did they
use proper techniques and reputable
research partners and take the proper
amount of time and use the proper
controls of whom was involved in the
study ??

Just like everything else in life
"Caveat Emptor" = Buyer Beware.
BE an Informed Reader/Patient
/Traveler/ whatever the topic du jour.

My friend that was a reporter taught 

me WELL..
Just because something is in Print
does NOT mean that is it TRUE...
Just because you hear on the radio
doesn't mean it's TRUE...
Just because you read it on the
internet doesn't mean it's TRUE..
Seeing a pattern here?
You mean to tell me you believe every
stupid commercial and ad you read ??
I don't think so....
Unless you are a scammers Dream?

with THAT.. I will give you the Statement
provided from the Original researchers
that did the Original Study that also
collaborated with the Cleveland Clinic 

and the USA National Cancer Institute.

*******************************
Official Statement from the 

Whittemore Peterson Institute 
Regarding UK Study
 

Wednesday, January 6, 2010 at 1:00pm
FOR IMMEDIATE RELEASE

Frankie Vigil
R&R Partners for
Whittemore Peterson Institute
775-336-4555
frankie.vigil@rrpartners.com

Official Statement from the 

Whittemore Peterson Institute 
Regarding UK Study

The Whittemore Peterson Institute (WPI) 

has reviewed the paper entitled 
“Failure to Detect the Novel Retrovirus 
XMRV in Chronic Fatigue
Syndrome.” This study did not duplicate 

the rigorous scientific techniques used 
WPI, the National Cancer Institute and 
the Cleveland Clinic, therefore it cannot 
be considered a replication study nor can
the results claim to be anything other 
than a failure not just to detect XMRV, 
but also a failure to suggest 
meaningful results.

The scientific methods used by WPI are
very exact and require specific techniques
 to ensure accuracy. Differences in
techniques employed by Erlwein et al.
not only explain their failure to

replicate the WPI study, but also render 
the conclusions meaningless.
These differences include, but are
not limited to the following:

1) blood sample volumes and processing;
2) patient criteria/population differences;
3) number and type of tests done to assure
       accurate results, including white blood 

       cell culture;
4) use of a molecular plasmid control in water
       versus a positive blood sample; and
5) different primer sequences and 

       amplification protocol used to find 
       the virus, which were not 
       validated by a clinical control.


The WPI study was published after 

six months of rigorous review and three 
independent lab confirmations, proving 
that contamination had not taken place 
and that infectious XMRV was present in
67 percent of CFS patients diagnosed 
according to the Canadian and
Fukuda criteria


In contrast, this latest study
was published online after only three days
of review. Significant and critical questions
remain as to the status of patient samples
used in the UK study as those samples may
have been confused with fatigued psychiatric
patients, since the UK has relegated
“CFS” patients to psychiatric care and not
traditional medical practices.

“Little is known about the prevalence of
XMRV world-wide, much less the incidence
of XMRV in ME/CFS or prostate cancer”
emphasizes Dr. Judy Mikovits.
“WPI and its NCI collaborators are actively
engaged with international research teams
to investigate these important questions.”

WPI does not recommend the use of
anti-retroviral drugs that have yet to be
proven to be effective in treating XMRV
infection. However, several large
pharmaceutical companies have expressed
interest in developing anti-retroviral and
immune modulating drugs that will
effectively treat XMRV associated 

diseases.

WPI looks forward to the results of other
scientific groups around the world, 

serious about replicating its scientific 
results, by using the same techniques as
WPI and its collaborators. The fact that 
XMRV was detected in 67 percent of the 
CFS samples in the U.S. study determined
a significant association between XMRV
and CFS, demanding a much more 

serious inquiry by responsible health 
agencies around the world as to the 
cause of this debilitating disease.

-###-

Whittemore Peterson Institute
The Whittemore Peterson Institute for
Neuro-Immune Disease exists to bring
discovery, knowledge, and effective 

treatments to patients with illnesses that
are caused by acquired dysregulation of 
the immune system and the nervous 
system, often results in lifelong disease
and disability. 

The WPI is the first institute in the world
dedicated to
X associated neuro-immune disease 

(XAND), and other X associated diseases,
integrating patient treatment, basic and
clinical research and medical education.
*******************************

Wouldn't the world be in even a worse 

mess if all the people from different 
walks of life could do a 3 day Medical study
and then publish them as if they were 
Medical FACT, while trying to negate the 
work of the Real Scientific Researchers
that have devoted their lives to doing 
REAL WORK in any certain specific field
of Medical Research ?

Besides the Investor Scammers let's
start throwing a wider net and keep 
and eye Open for the Scammers in
other areas of life that are also
Important to us also....like our Health !!!


Doesn't matter WHAT country or 
continent they are from... wrong is 
wrong.

As one my old Favorite movies use to say:
"I'm MAD as Hell and I'm 
NOT going to take it any more."