#83~ DoD ~ Medical FY2011 Budget announced

For Immediate Release:       September 14, 2010
Contact:  Senate Appropriations Committee, (202) 224-7363


Summary: FY 2011 Department of Defense Appropriations Bill


Defense Health Programs ...............$31.5 billion
 
* Provides $595 million above the President’s budget request
 
* Provides $240 million for cancer research. 
        The total amount is distributed as follows:
            • $150 million for the Breast Cancer Research Program
            • $80 million for the Prostate Cancer Research Program
            • $10 million for the Ovarian Cancer Research Program

* Provides $60 million for the Peer Reviewed Psychological Health 
              and Traumatic Brain Injury Research Program

* Provides $50 million for a medical research fund (under this category)
            Peer Reviewed Medical Research Program.—The Committee has
        provided $50,000,000 for a Peer Reviewed Medical Research Program.
        The Committee directs the Secretary of Defense, in conjunction
        ...with the Service Surgeons General, to select medical research
        projects of clear scientific merit and direct relevance to military
        health. Research areas considered under this funding are restricted
        to: amyotrophic lateral sclerosis, autism, blood cancer, 
        chronic fatigue syndrome, chronic migraine and post-traumatic headache,
        dental research, drug abuse, epidermolysis bullosa, epilepsy, 
        fragile x syndrome, inflammatory bowel disease, interstitial cystitis, 
        kidney cancer, lupus, melanoma, mesothelioma, multiple sclerosis,
        neuroblastoma, neurofibromatosis, osteoporosis and related bone
        disease, Paget’s disease, pancreatitis, Parkinson’s, pediatric cancer,
        pheochromocytoma, polycystic kidney disease, post-traumatic osteoarthritis,
        scleroderma, social work research, tinnitus, tuberous sclerosis complex, 
        and vision research. 

The Committee emphasizes that the additional funding provided under the Peer Reviewed   Research Program shall be devoted only to the purposes listed above.

* Provides $8 million for the Peer Reviewed Gulf War Illness Research Program


*******************************************************************

Hello??? ~ and YOU might WONDER "WHY" 

we keep asking YOU to PLEASE write to your Senators ?? 

and your  Congressional House Reps to HELP us get more 

than 

$1 of research money allotted per ME/CFS patient.. 

This is a downhill amount from last year where we had $3. 

PLEASE use the form on the Right of this blog and find out NOW who your Congressional Senator and House Rep. are  and PLEASE "Write them ASAP." 

And you wonder WHY we keep "begging" for funding for money for Private Research for places like WPI that actually CARE about us 

and have been working Hard to actually DO Research and Publish peer reviewed papers. LOOK what they have done in the last few years even BEFORE their building was finished and their doors had Opened... because They CARE ABOUT US.....

Let your Senator and Rep KNOW that you DO VOTE 

and this lack of Research in the face of the CDC "25 years of Cover-UP" and since they "Can't Detect Crap" STONGLY  Request that some Research money be given to places that actually are trying to Help the 4 million effected citizens that have suffered for WAY TOO LONG< and the 10 million that are walking around with probably tainted blood in light of the
XMRV/MRV recent papers and discovery.... 

$1 dollar per patient is an INSULT>>>>>>>>>> PERIOD !!!!!


Is THAT what YOUR Agony and Life are Worth ???


Addressing Members of Congress

To:     The Senate Appropriations Committee
          Senate Office Building
          United States Senate
          Washington, DC 20510

To Your Senator:

The Honorable (full name)
(Room #) (Name) Senate Office Building
United States Senate
Washington, DC 20510
Dear Senator:

To Your Representative:

The Honorable (full name)
(Room #) (Name) House Office Building
United States House of Representatives
Washington, DC 20515

Dear Representative:

The above addresses should be used in email messages, as well as those sent through the Postal Service.

 Finding Their Addresses

Senate and House of Representatives
U.S. Senators (web sites and mailing addresses)
To find your US Senator's contact info:

Write Your U.S. Representative (A service of the House that will assist you by identifying your Congressperson in the U.S. House of Representatives and providing contact information.



Here are some key things you should always and never do in writing to your elected representatives.

1. Be courteous and respectful without "gushing."
2. Clearly and simply state the purpose of your letter. If it's about a certain bill, identify it correctly. If you need help in finding the number of a bill, use the Thomas Legislative Information System.
3. Say who you are. Anonymous letters go nowhere. Even in email, include your correct name, address, phone number and email address. If you don't include at least your name and address, you will not get a response.
4. State any professional credentials or personal experience you may have, especially those pertaining to the subject of your letter.
5. Keep your letter short -- one page is best.
6. Use specific examples or evidence to support your position.
7. State what it is you want done or recommend a course of action.
8. Thank the member for taking the time to read your letter.

Never

1. Use vulgarity, profanity, or threats. The first two are just plain rude and the third one can get you a visit from the Secret Service. Simply stated, don't let your passion get in the way of making your point,
2. Fail to include your name and address, even in email letters.
3. Demand a response.

Identifying Legislation
Cite the legislation when writing to members of Congress:

OK, if YOU think you have suffering is worth MORE  than $1 of Research next year
Write TONIGHT... Write ASAP... 
Your Life is Depending on THIS Research....
If you do NOT Write than do NOT Complain...........Period.
Same as your Vote..........if you don't VOTE, ..........don't complain.

Use your VOICE and send them an email NOW

Let them KNOW you ARE paying attention....

and state what reasons and history you can in one page..

Mention the loss of taxes because we have been ignored and our inability to work even from home has caused this economy of 

this country we love and we NEED their Help...

Like Gerry McGuire said... "Help me, Help You."
Help us return to work so we CAN pay taxes...
Help us STOP this Crime to Humanity that has been 
ongoing for over 25 years.

OK> you just got Told YOUR Worth... Are you gonna sit there and Take it?

Act-UP and Write Back NOW......

OK, Now ** GO TEAM GO**

#38~ "Call to Arms" WPI~Pres. & NYT article

Hail WPI fans :-) we HAVE "news" from
one of our Chiefs.. sent to us Nov 12th.

...and with this NEWS comes OUR
"Marching Orders.."

For those in the U.K. you have the
addresses & letter that I posted in
a previous blog post.

Enough blathering.... READ Annette's Letter
and then read my notes Below...
Then......***GO TEAM GO***

*******

Since we published the XMRV study the WPI

has been extremely busy establishing new 

collaborations and moving the work forward. 

This is truly a world changing event for the 

field of neuro immune diseases and patients 

who suffer from them. 

First I want to thank you for all of your kind

words of support and very generous donations. 

They give everyone at the WPI the added strength

and motivation to continue full speed ahead. 

Secondly, let me explain some of the things 

we have doing to since the article was published.

We have been working for you. We have been in 

Washington, DC explaining the significance of 

these findings to our representatives of the 

state of Nevada and our country. 

We have spoken to representatives of the 

institutes' of health encouraging them to 

dedicate funding to XMRV research. 

Patient studies must be done outside of the

NIH to bring answers that will end this 

cycle of disease.

We are overwhelmed but very excited 

about the possibilities this finding will 

bring for our loved ones. 

The recent conference at the Cleveland Clinic

of 75 Scientists included Dr. Mikovits, 

Dr. Vincent Lombardi and many others who

understand the role of retoviruses in 

human disease. They were able to develop

key relationships and collaborations in support 

of research of XMRV. 

We are confident that good science will 

ultimately lead to the answers. But we need you.

We need every person suffering from this

debilitating disorder to help by writing your 

congressmen and senators and asking for 

research funding for the WPI to continue 

its studies of XMRV in CFS and other 

neuro immune diseases. 

We must have funding to establish mechanisms

of disease and treatments for patients. 

Clinical research centers must be created 

to establish effective treatment protocols 

as quickly as possible.

There's so much more to come. 

Thank you for all your love and support,
Annette

--
Annette Whittemore
Founder and President
Whittemore Peterson Institute
for Neuro Immune Disease
6600 N Wingfield Pkwy
Sparks, NV 89436
775-348-2335 Phone
775-348-2350 Fax
annette.whittemore@wpinstitute.org

*************************

Here is another more recent article
about the Whittemore's and the
History of the founding of the Institute...
in the  New York Times
**************************
I have provided you with many
links to info, to the CFSAC meetings,
and places from which to acquire
statistics to add to your letters.

Remember to NOT make them whiney
letters, but statements of FACT about
How long YOU have been sick,
Were you a young child then or a 
working-tax-paying citizen doing what?

How much your Dr's have NOT been
educated about treating this illness,
the hardships it has placed on your 
family, the loss of your ability to 
work and be a Productive TAX-paying
citizen that you WISH to BE, but how 
you NEED to be well enough to do so.


How you have knowledge of Millions
in the USA, U.K., Europe, Australia,
New Zealand because we are 
ALL in Contact.... there are 28 Million
of us Worldwide.


For those in the USA:
Here is your link to find out who is
your Federal Congressional Rep/Senator:
http://www.visi.com/juan/congress/index.html

Refer them to the Oct CFSAC meetings
and testimonies given there by not ONLY
the Dr's & researchers, but also by all
of the PWC's and their Families.

Make reference to the 
Obama/Biden Transition letter that
was sent to the Administration-to -be 
back in Jan. but was written in Dec. 
after the Election.

Write as many "Drafts" as you need to..
Collaborate with other FB or PWC's friends.
Try to make your bullet points in Time Order
culminating with the Report in early Oct
published in Science thanks to the 2 yrs of 
work by WPI, after waiting 25 yrs for other
Governmental agencies to Help us for not.
...and then the Crescendo of the CFSAC
meetings and how this ALL ties in with 
Health Care Reform. NO Dr's can Help us
if the PROPER Research has NOT been done.


Try to be MORE Positive about How the 
HELP for Research NEEDS to be "Targeted
to Places such as WPI" that have a PROVEN 
Record of producing RESULTS, instead of 
places that  have floundered for years.
Time = $ = HEALTH = Life = Citizens = work = taxes
4 Million sick = loss of taxes & family stress. 


Ask them to HELP US ~ Help the Country..
Help us get Well and we will work and pay taxes.
Use your own wording, but I think you get 
my point.. work for a Win/Win... 
Give them a REASON To Help Us...
Use my list of Famous People to show
that all strata of the society get  this.
Use my list of articles and websites
to gather info...then edit it for concise
bullet points.


If you have NO idea what to write
please use the previous posted 
letter "as a guide" and change the 
names & figures as needed to make
it fit the USA or your location.

If you are as FB user, brainstorm on a 
Discussion Page Topic if you wish on

the WPI FB page. Otherwise, gather
together with YOUR "local" ME/CFS
group, use your local online Forum for
CFS, use Twitter, Use My Space, 
CALL IN ALL THE TROOPS.
Gather ALL of your thoughts...


1) Send letters IN...
2) Follow them up after with a phone call.
3) Follow that up with an email.

Maybe some of us can write a 
Main "Petition Letter" and we can
send you the text, you can print it out
and get ALL of YOUR Friends & Family
to Sign it and, make a copy of it, to keep
as PROOF, and IF Possible DELIVER  
the Signed Petitions to the Local Office 
of your Rep/Senator when they 1st get home
for the Holiday break.

Co-ordinate with your local groups and 
NOTIFY your local PRESS both TV & Radio.
Send a copy of your letter/Petition to your
local newspaper if you still have one.
Send a copy to your Largest Regional
Newspaper. Write Letters to the Editor.
Keep the Ideas coming and post them
for others to brainstorm about.

These are just my First few thoughts
off the "Top of my Head" ,as they say...
No one has urged me to say these things,
the words are all my own...
"Thoughts From the 4am Vault" ;-)


Post Ideas to Annette on the FB page
if you have any questions about anything
you feel you might need Permission to do.
That was Everyone can SEE the answer.
We ARE in contact with each other NOW..
Let's KEEP this ball rolling and make it 
HUGE like that ball in Raider's of the Lost Ark.
We are the Raiders now and  WPI is our ARK
that is trying to SAVE US...
May History Repeat itself...
NOAH, are you Listening???

As one of the old lines from one of my 

fav late night shows use to say.....

"Talk amongst yourselves." ;-)

Like my screen name says....

NOW is the TIME for 

ME+CFS=UNITE and GO FOR IT !!