#44~ New "Post Dr." 4 XMRV & CFS & UK Research

ATTN: Please SHARE this Info with 

anyone you know that might be 

interested in This  Position..

....to Help us Study this, OK?


News fresh from the field.... 

Share ASAP!!!

Post Dr Assoc
Cornell University
Cornell University, located in Ithaca, 
New York, is an inclusive, dynamic, and 
innovative Ivy League university and New 
York's and-grant institution. Its staff, faculty, 
and students impart an uncommon sense 
of larger purpose and contribute creative 
ideas and best practices to further the 
university's mission of teaching,
research, and outreach.

The Department of Molecular Biology and 
Genetics seeks a postdoctoral research 
associate to study the role of the newly 
discovered retrovirus XMRV in chronic 
syndrome (CFS).  Blood from a cohort of 
CFS patients and controls in upstate 
New York will be examined for the presence
of virus, viral proteins, and antibodies to
viral proteins.  Sequences of XMRV from 
different patients will be obtained in order 
to characterize the diversity of viruses in 
the population.  Whether virus sequences 
correlate with functional status of CFS 
patients will be determined.  This project 
will be undertaken in collaboration with the 
Whittemore-Peterson Institute in Reno,
Nevada and the Columbia University Center 
for Infection and Immunity as well as with 
several physicians treating CFS patients.  
For more information regarding the 
Department of Molecular Biology and
Genetics, visit http://mbg.cornell. edu/.

Qualifications:
PhD degree in an area of Molecular Biology 
and/or Biochemistry or Virology.  
Prior experience with mammalian cell 
culture and/or retroviruses is desirable 
but not required.

Please send cover letter and CV with 
names of three references to 
Prof. Maureen Hanson, 
Dept of Molecular Biology and Genetics, 
323 Biotechnology Bldg., 
Cornell University, 
Ithaca, NY   14853 or to
cfs.study@gmail. com.  
Applications will be received for 
consideration until a suitable candidate 
is identified.

Cornell University is an equal opportunity, 
affirmative action educator and employer.

Job: Molecular Biology & Genetics
Primary Location: Ithaca
Requisition Number: 11845
Organization:  
Molecular Biology & Genetics - AG

~posted originally by~ 
 ***********************************
New Research FINALLY in the U.K...
but then Dr Peterson is in London <;-)))

ME Solutions and Invest in ME are
working together to maximize the
opportunities to fund research into
ME/CFS. The research project is -
The role of XMRV in modulation of NK
cell cytotoxicity and NK cell gene
abnormalities in ME/CFS patients and
normal blood donors.
The project will be carried out by
Dr Jonathan Kerr and his team from
St. George's University, London, and
Dr Amolak Bansal of the Department of
Immunology, Epsom & St Helier
University Hospitals NHS Trust.


Full article HERE

*gentle Hugs* and keep those Letters 
heading to your Ministers of Health or 
Congress, HHS, Surgeon General, or
whomever has Power in your Country, OK?

#39~ Raise Research $$ while you are Searching

In an attempt to quickly 

"Kick-Start" this Fund Raising Campaign 

for the Whittemore-Peterson Institute

that is a "bottom UP" Grass Roots WORLDWIDE

organizing machine who's TIME HAS COME...

Here is a Simple way we can get started

to raise some money WHILE we are
doing our research to write our letters
to send out to our local & federally
elected officials, newspapers, etc.

It is "SO simple" in fact it was posted 
on Facebook by a number of "Great Thinkers"
that think alike and have started the rest 
of us using it already...

Simply "Search" AWAY and pass it on to 

EVERYONE and Repeat OFTEN ;-)

Each search will earn $.02 for the WPInstitute.
If all the 1,190 fans of WPInstitue on Facebook
did 5 searches a day for a year, 

it would earn $43,435.

If all of the 4 million PWC in the USA 

did it = a lot MORE.
If all of the 28 million in the World 

did it = a GINORMOUS Amount.

Who the heck said 

"Your 2 cents wasn't worth much?"

HERE it is worth a LOT 

and it will ADD up FAST if we all do it 
together and ask  others to 
"Simply Search" when they think of us..
It will cost them NOTHING to Help us
in this way.. 
Suggest that they Bookmark/Favorite 
this url / Link and go there Often...

Please share with your Friends & Family.
Ask them to "simply SEARCH" as 

part of their Holiday gift to you.

They don't have to wrap it, use any 

gas to go get it, or pay any postage

to send it to you..

Go here to participate:
http://isearch.igive.com/index.cfm?b=15271

Happy Searching and you can 
Literally add up the Good you are
doing Daily with each search.. 

So don't think you don't have any $$$

to donate for Research... if you can read this

than you CAN Search and Help us Raise

Research money for the Whittemore

Peterson Institute that helped to bring us

and ME/CFS into the current World Spotlight

and there we WILL stay until they can do 
enough Research to help us find a CURE
so our "28 million Voices 4 a CURE" 
will NO longer need to be quiet whispers 
and we will be helped, 

so "Go Forth and "Search."

#38~ "Call to Arms" WPI~Pres. & NYT article

Hail WPI fans :-) we HAVE "news" from
one of our Chiefs.. sent to us Nov 12th.

...and with this NEWS comes OUR
"Marching Orders.."

For those in the U.K. you have the
addresses & letter that I posted in
a previous blog post.

Enough blathering.... READ Annette's Letter
and then read my notes Below...
Then......***GO TEAM GO***

*******

Since we published the XMRV study the WPI

has been extremely busy establishing new 

collaborations and moving the work forward. 

This is truly a world changing event for the 

field of neuro immune diseases and patients 

who suffer from them. 

First I want to thank you for all of your kind

words of support and very generous donations. 

They give everyone at the WPI the added strength

and motivation to continue full speed ahead. 

Secondly, let me explain some of the things 

we have doing to since the article was published.

We have been working for you. We have been in 

Washington, DC explaining the significance of 

these findings to our representatives of the 

state of Nevada and our country. 

We have spoken to representatives of the 

institutes' of health encouraging them to 

dedicate funding to XMRV research. 

Patient studies must be done outside of the

NIH to bring answers that will end this 

cycle of disease.

We are overwhelmed but very excited 

about the possibilities this finding will 

bring for our loved ones. 

The recent conference at the Cleveland Clinic

of 75 Scientists included Dr. Mikovits, 

Dr. Vincent Lombardi and many others who

understand the role of retoviruses in 

human disease. They were able to develop

key relationships and collaborations in support 

of research of XMRV. 

We are confident that good science will 

ultimately lead to the answers. But we need you.

We need every person suffering from this

debilitating disorder to help by writing your 

congressmen and senators and asking for 

research funding for the WPI to continue 

its studies of XMRV in CFS and other 

neuro immune diseases. 

We must have funding to establish mechanisms

of disease and treatments for patients. 

Clinical research centers must be created 

to establish effective treatment protocols 

as quickly as possible.

There's so much more to come. 

Thank you for all your love and support,
Annette

--
Annette Whittemore
Founder and President
Whittemore Peterson Institute
for Neuro Immune Disease
6600 N Wingfield Pkwy
Sparks, NV 89436
775-348-2335 Phone
775-348-2350 Fax
annette.whittemore@wpinstitute.org

*************************

Here is another more recent article
about the Whittemore's and the
History of the founding of the Institute...
in the  New York Times
**************************
I have provided you with many
links to info, to the CFSAC meetings,
and places from which to acquire
statistics to add to your letters.

Remember to NOT make them whiney
letters, but statements of FACT about
How long YOU have been sick,
Were you a young child then or a 
working-tax-paying citizen doing what?

How much your Dr's have NOT been
educated about treating this illness,
the hardships it has placed on your 
family, the loss of your ability to 
work and be a Productive TAX-paying
citizen that you WISH to BE, but how 
you NEED to be well enough to do so.


How you have knowledge of Millions
in the USA, U.K., Europe, Australia,
New Zealand because we are 
ALL in Contact.... there are 28 Million
of us Worldwide.


For those in the USA:
Here is your link to find out who is
your Federal Congressional Rep/Senator:
http://www.visi.com/juan/congress/index.html

Refer them to the Oct CFSAC meetings
and testimonies given there by not ONLY
the Dr's & researchers, but also by all
of the PWC's and their Families.

Make reference to the 
Obama/Biden Transition letter that
was sent to the Administration-to -be 
back in Jan. but was written in Dec. 
after the Election.

Write as many "Drafts" as you need to..
Collaborate with other FB or PWC's friends.
Try to make your bullet points in Time Order
culminating with the Report in early Oct
published in Science thanks to the 2 yrs of 
work by WPI, after waiting 25 yrs for other
Governmental agencies to Help us for not.
...and then the Crescendo of the CFSAC
meetings and how this ALL ties in with 
Health Care Reform. NO Dr's can Help us
if the PROPER Research has NOT been done.


Try to be MORE Positive about How the 
HELP for Research NEEDS to be "Targeted
to Places such as WPI" that have a PROVEN 
Record of producing RESULTS, instead of 
places that  have floundered for years.
Time = $ = HEALTH = Life = Citizens = work = taxes
4 Million sick = loss of taxes & family stress. 


Ask them to HELP US ~ Help the Country..
Help us get Well and we will work and pay taxes.
Use your own wording, but I think you get 
my point.. work for a Win/Win... 
Give them a REASON To Help Us...
Use my list of Famous People to show
that all strata of the society get  this.
Use my list of articles and websites
to gather info...then edit it for concise
bullet points.


If you have NO idea what to write
please use the previous posted 
letter "as a guide" and change the 
names & figures as needed to make
it fit the USA or your location.

If you are as FB user, brainstorm on a 
Discussion Page Topic if you wish on

the WPI FB page. Otherwise, gather
together with YOUR "local" ME/CFS
group, use your local online Forum for
CFS, use Twitter, Use My Space, 
CALL IN ALL THE TROOPS.
Gather ALL of your thoughts...


1) Send letters IN...
2) Follow them up after with a phone call.
3) Follow that up with an email.

Maybe some of us can write a 
Main "Petition Letter" and we can
send you the text, you can print it out
and get ALL of YOUR Friends & Family
to Sign it and, make a copy of it, to keep
as PROOF, and IF Possible DELIVER  
the Signed Petitions to the Local Office 
of your Rep/Senator when they 1st get home
for the Holiday break.

Co-ordinate with your local groups and 
NOTIFY your local PRESS both TV & Radio.
Send a copy of your letter/Petition to your
local newspaper if you still have one.
Send a copy to your Largest Regional
Newspaper. Write Letters to the Editor.
Keep the Ideas coming and post them
for others to brainstorm about.

These are just my First few thoughts
off the "Top of my Head" ,as they say...
No one has urged me to say these things,
the words are all my own...
"Thoughts From the 4am Vault" ;-)


Post Ideas to Annette on the FB page
if you have any questions about anything
you feel you might need Permission to do.
That was Everyone can SEE the answer.
We ARE in contact with each other NOW..
Let's KEEP this ball rolling and make it 
HUGE like that ball in Raider's of the Lost Ark.
We are the Raiders now and  WPI is our ARK
that is trying to SAVE US...
May History Repeat itself...
NOAH, are you Listening???

As one of the old lines from one of my 

fav late night shows use to say.....

"Talk amongst yourselves." ;-)

Like my screen name says....

NOW is the TIME for 

ME+CFS=UNITE and GO FOR IT !!

#22~ Free Tidbits from Dr Cheney Research

I am hoping that we can find a way
to contact Dr. Cheney and let him see
that with holding info from already
gouged and belittled ME/CFS patients
that are already having to decide
between meds & food after YEARS
of no help, no insurance, no disability,
many no family, etc etc, is actually
MORE Mental Cruelty..so if you figure
out a way for us to contact him PLEASE
let me know...

in the meantime here are some tidbits
from his NEW research site...
He updates them frequently so I will
try to add them to the list on the side
and see if they update. If not, you'll
just have to check back about once a week
and see if he's uploaded a new one..

I see that there is info on many different
even within his paid section, so we CAN
get some info just not ALL of it...
I know this "sucks" but I know he
needs the Research money also...
...what to do???

In the meantime we can gleen
what we can from his expertise & research
and see if we can find a way to maybe
talk him into not penalizing the patients
that have already suffered enough
for the last 25 years...

So here are the different links
with some info I have located:

Public blog 

Subscriber's Intro

Cardiology

CFS Diet

Epidemiology

Hormones in CFS

Stem Cell Therapy 
This tells me he IS using
Placental Stem Cell implants

Treatment

XMRV- evolution, flu shots, etc

I know this probably leaves you
with MORE Questions..
But hopefully it also gives you
a bit more info...
Some days we live by the Nuggets that
are tossed in our direction and we try to
make sense of things like good detectives do.

I am posting these  NOT to frustrate you
but because I found some Nuggets that
answered a few things for me and I sincerely
hope that you will also... if you ARE able
to subscribe to his newsletter, I sincerely
HOPE that you will reply to my posts and
maybe feed us some MORE additional
nuggets to let us piece this puzzle that is
our lives a little more together...

Knowledge is Power...
may we gain a little more EVERY Day.

#18~ XMRV~Dr Mikovits "suspects" it Causes ME/CFS

Howdy again,


Yup, you read the title correctly.
I located this article where Dr Mikovits
actually commented that she "suspects"
that XMRV "CAUSES" ME/CFS....


Humm....


Kinda flies in the face of what
Dr Wessely has been saying for YEARS.
But then, you don't expect a surgeon to 
tell you NOT to Operate...
Don't expect a Psych to tell you it's
NOT all in your head...Duh...
Consider the Source of the Comment.


Hadn't seen this comment in Print
before by Dr Mikovits, so thought 
I should share it with you..


Time will only tell what the 
Reality is.. but I thought it was 
interesting that THIS is what she 
"suspects"...ya know?


Sometimes it pays to listen 
to the "gut feelings" of the  Researcher 
that HAS been working with it,
as opposed to those that ONLY
"talk about it"...
Reminds me of what another
Psych Dr Said.. He thought it was 
insane that they were the ONLY
part of the Medical Profession that
did NOT look at the organ they were treating.
Made sense to me... How about you?
Needless to say, he does SPECT scans
of the brain and that helps him with
his Diagnosis and Treatment plans.
What do these other jokers use?
Intuition or Voo-Doo?


I trust those that Question things..
and I prefer to be leery of those that 
do NO questioning of their own process
or don't do any Research or ONLY give
it lip service...


Is chronic fatigue linked to a cancer virus?


Forget the Editor's "Eye-grabbing" Title...
Did it shock you? Then They DID their job.
Just Read the Article...
You mean you've never watch Jay Leno's
"Headline" segment???

#15~ Reply from WPI - testing for XMRV?

Thank you for your interest in the Whittemore 

Peterson Institute and our new research findings 

on XMRV.  We have been overwhelmed with both 

your encouraging comments and the volume of 

email and traffic to our web site.  We are working 

on answering many of the general questions posed 

in the last few days.  Individual specific questions 

will be evaluated and responded to as appropriate.

- XMRV Testing:   The number one request has 

been? How do I get tested for XMRV?  The WPI is 

negotiating an agreement with a clinical laboratory 

to allow for limited testing. These limited test services

will be made available as soon as possible and we 

will provide information on this website as to how 

the test can be requested.  We cannot offer 

individual testing and results from our research lab.

Please check back to our website for updates.

- Research Studies:   If you are interested in 

possibly being selected to participate in ongoing or

future WPI research studies, we are working on an 

interactive form for our website.  It should be 

available in the next few days, and we encourage 

you to complete the form at  

WP Institute for Neuro-Immune Disease.  

While every study has specific requirements and 

not all who volunteer will be accepted, your 

willingness to participate is both crucial 

and deeply appreciated.

- Becoming a Patient:      WPI is currently 

constructing our new home on the campus of the 

University of Nevada School of Medicine.  

It will open in the summer of 2010.  At this time 

we are not able to accept patients, but would be 

happy to add your name to our interest list.  

With the rapid pace of research discoveries, we 

hope that there will be new treatment and 

diagnostic options available when we celebrate 

the opening of the new building.

The discovery of XMRV in ME/CFS patients 

opens an entire new avenue of neuro-immune 

disease research and our discovery has brought 

to this field world-renown immunologists and 

retrovirologists.  Our team of collaborators is 

working daily to translate our discoveries into 

new treatments as soon as possible. 

The discovery also raises many new questions 

about the role of XMRV in these diseases, 

how it is spread, what new or existing treatments 

may help combat the virus, and how treating the 

virus might improve the health of patients.  

For access to what we know to date, please see 

our XMRV Q&A.  

We will update it regularly and keep you informed. 

Whittemore Peterson Institute - XMRV Q & A

We know many of you have been waiting years 

for answers, accurate diagnoses and some kind 

of effective treatments.  All of us are dedicated 

to finding these, and we will continue to work as 

hard and as quickly as possible.  

Please remain hopeful, and keep in contact with 

us via the website or email.  

Making sure we have all of your contact information 

will ensure we are able to contact you with 

further information as it becomes available to us.

Angelina Gordon, WPI