Dr. Jamie Deckoff-Jones is resuming her OWN Practice and has moved back to Hawaii and her opinions are ONLY that, and she even states that.. Many KEEP ignoring the rest of the patients all over the world that do not live in the USA ?
Please ask WHY many pretend like this is still ONLY about Incline Village and "the non-defining and everchanging naming" done the CDC ?
This is NOW a WORLD ISSUE .. Why would we still be only looking for "regular pneumonia" if many others had "pneumocystis pneumonia" and then they discovered that they also had a retrovirus ? Not everyone is still stuck in Incline Village and diseases/viruses of whatever kind mutate with time, esp. 30 yrs, and YES just like illegal immigrants can cross country borders and even hi-jack a ride on a plane or in a mosquito or tick. If a mosquito can tramit Malaria and West Nile Virus, why should it not be able to pass on a retrovirus after it bites someone that is XMRV+ ? Many methods are being tested and there is a lot more to learn about this very fruitful path that is ALEADY Helping Many.
There is also a thing called new tests and new research resulting in new results and findings.. It's like testing out a new dish to eat and then going home and 30 yrs later trying to re-create it w/o the recipe. IF Elaine DeFreitas had continued her work, whose to say where we would be now ?
Also, we now have this new Retrovirus in 9 countries, testing positive in different labs... with patients with many of these co-infections. IMHO, that is a "game-changer to anyone's immune system" AND how it will respond to any other incoming disease.
DESPITE ALL OF THE NEGATIVE BS RESEARCH PAPERS THAT EITHER ARE ALL NEGATIVE OR THE ONES THAT COME OUT 0/0......
Science and Research IS moving beyond CFS and working on The Bigger Inter-Connected Picture. That can also be called Progress and may be Finally getting closer to the REAL Truth~ No matter Where the origin of a particular version/branch of the disease came from.
Many ONLY want ME or Original description of CFS cured, BUT the Original description of CFS despite newer info and research joining many NIDs together showing a connection and now even MORE involvement to a retrovirus FAMILY ! But THAT is not the issue right now.. THAT's the part we have moved on from, because MORE Evidence is showing how much more this interconnected web of diseases is effecting our many organ sysyems and many of these illnesses are really triggered by a Master Puppet that then allows the Domino effect and we catch more other things like the things the CDC considers "experimental or not relevant for CFS testing"... BUT they ARE when you are looking at the Bigger PIcture with a Retrovirus in that picture..
Sometimes Research locates the tail of the elephant before it locates the trunk. What matters is that they finally locate the elephant in the room.
SOOOOOOOO, with THAT said.. it is of UTMOST Urgency that anyone that REALLY Cares fo Help us FIND Trreatment and Cures ASAP after the last 3 decades we have already waited...
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