display on your Avatars to “SHOW”
your support- as actions
“speak louder than words.”
The purpose is not to look pretty but to
provide a "visual demonstration" of
Solidarity in our struggle to :
a) see ME/CFS recognized internationally as
a disease with a physiological pathology, and
b) to promote awareness of the need for
further ACCURATE...and RELIABLE
research and replication studies.
You can Add a Twibbon to your
Twitter and/or Facebook Avatar~
For Twitter just follow the directions
on the the page as is…
If you ONLY want the Twibbon
on your Facebook Avatar please
Follow the directions below:
#1) There are 2 sizes AND angles
to choose from
#2) after you decide, then click
the Facebook "tab"
#3) Sign-in to Facebook
#4) Deny permissions to allow
them to share
#5) Preview and "move" your Ribbon
around on your avatar to where you want it,
remembering that when your avatar is “small”
as in “comments”...the edges will get cut off..
so center it a bit if you can , OK?
#6) Complete the process....Hopefully success!
Please Enjoy and PROUDLY Spread the Word!
Inspired by 2 ladies whose names start with "A"
Please "Share" this around, let US see a
few of you wearing it! and SEE some
Solidarity out there for
ME/CFS/FM and XMRV, OK?
I will add these links on my Right Side column
also for those that might be wanting to
Access these later when this post is
Further down the “older post” section..
As I expect this Campaign to GO ON
Until we ARE Successful, capiche ??
We need to Saturate the Avatars all
Over Twitter/Facebook and all other
Social media with Avatars so people
Will eventually associate the Blue Ribbon
With ME/CFS/FM and XMRV as they
Do now the Pink Ribbon for breast cancer.
The “public” is a bit distracted right now
So it will take time and a LOT of
“ground-UP” work by us to INFORM
them ….via every means possible..
blogs, letters to your Gov’t Rep, to
your local newspaper, replying to
every news ezine that prints anything
that calls for us to INFORM them
“Correctly” of the TRUTH…
USE your Avatar EVERYWHERE...
Thanks for Jumping on Board this
PR wagon and SHOWING your support.
For your friends on other boards that
also use avatars and want to support us
you can send them the url for this blog
and they can access the links for the
Twibbons via this page …
I'm REALLY Getting Excited about ALL
of the New Activities as we Ramp UP
The Research and Get Ready for the
"2010 Awareness Day in May" this year..
So we are starting Early so everyone
Can be participating NOW and help
Spread the Word..
This is just the First step in our PR
Campaign Blitz, so jump on board NOW
So you don’t get “behind” and ride
This Info train with us this year
As we help spread the word about
Finding a “Cure 4 ME” and
Informing the World about XMRV.
56 Million hands clapping..
If you have any other PR ideas for this year's Campaign PLEASE feel FREE to share them in the Comments section Below..OK? Feedback is always appreciated and encouraged...
THANK ANY Journalist that reports that ME/CFS "is" a SERIOUS Disease, Please!!.
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Most Recent Readers
Notable "Public" sufferers with ME/CFS
nurse with ME/CFS-post
Crimean War (1853–56) * Michael Flatley "Lord the Dance"~"RiverDance" *Susan Harris screenwriter for: Golden Girls, All in the Family, Soap, Benson & Advocate Michelle Akers soccer player
Brian Aldiss author Susan Blackmore parapsychologist, author Howard Bloom evolutionary psychologist, author Neil Codling formerly of Suede Blake Edwards *RIP 12/22/2010* writer and director of such movies as 'Breakfast at Tiffany's', '10', and 'The Pink Panther', Julie Andrews husband John Fahey folk guitarist Flea musician Clare Francis international yachts-woman and author Laura Hillenbrand author of the book 'Unbroken: A WW2 Story of Survival' Kelly Holmes athlete Keith Jarrett jazz pianist Katharine Duchess of Kent Alastair Lynch Australian footballer Stuart Murdoch of the band 'Belle & Sebastian' Randy Newman musical composer, performer, singer Lauren Cuthbertson The Royal Ballet Barry Sheen motorcyclist
Documenting the Life of Surviving with ME/CFS and OI/POTS and Invisible Illness since 1987. Back then I got what I thought was a virus and thought I would only be down the usual 7-10 days. WRONG I kept fighting it for a few months, but in the end I had to Surrender to it, which is NOT Easy for someone that has always been very active, a multi-tasker, and a "Get it Done" kind of person my Whole life.
Here I was in the prime of my life about 38 yrs old and going strong until this. then WHAM Bang. I ended up Flat on the living room couch, awake or asleep, for the next 1.5yrs. Living alone I couldn't
even go grocery shopping or I would get the fever back. I was lucky enough to find someone to cook for me once a week. The funny part is that until then I had working in a hospital for the previous 17 yrs, I get sick and they have NO idea what it is. Ran many tests, everything came back normal, so I get NO help/NO disability/nothing.
Even when I did calm things I liked the fever & associated feelings would come back. Yuppie flu? Never was ~ Never will be. Ever known anyone that had EBV ? Well THIS is it's BIG Brother, but a LOT Nastier at this point now 28 years.
I am SO sorry to announce that lately I have had to implement "moderating comments" due to SPAM comments that are trying to come thru, and I do NOT want you OR this blog subject to the type of inappropriate material that these SPAMs contain.. so Please KNOW that I WILL "approve your post" ASAP~ Thanks for your understanding... Hope you will be AWAP ♥ and Even BETTER Soon.
ALERT: If you are posting in a language OTHER than English, "PLEASE use a Google translator to translate it INTO English FIRST." If I can NOT even use the Translator to READ your post... It WILL BE DELETED.
❤ LIVE ❤ LOVE ❤LAUGH❤ Each Day We HAVE is "Precious." ********************************
**************************************************** Please be advised that NOTHING in any of the posts on this blog OR its associated links is meant as Medical Advice by this blog. Please consult with your Medical Professional before doing anything new or adding anything new to your daily routine of how you care for your health.