As we end~ this 1st decade of this new
millennium I would like to Dedicate this
last blog to a Charitable Organization
that has been the Source of MUCH
HOPE and Research News during this
last year.... They get my "HERO for 2009" Award.... the
Whittemore Peterson Institute
located on the campus of the Universityof Nevada at Reno.
Within the last 4 years "from an idea
to formation" to doing actual
*Ground Breaking Research* solely with
Private donations and grants has been
nothing short of a Miracle for "more than"28 Million people Worldwide.. that
suffer from neuro-immune diseases
and have been "be-littled" and told these
illnesses were "all in their head"
for YEARS.
The WPI's discovery of the link between
ME/CFS and XMRV- the ONLY 3rd known
Retrovirus to effect humans, has effects
and ramifications that HAVE YET to be felt
and dealt with around the world. EVERY Countries' BLOOD SUPPLY needs
to be "screened" for this, ASAP !!! just like they are for HIV, the last retrovirus
discovered that also effected
immune systems.
I watched the online webcast of the
NIH- CFSAC meeting at the end of Oct
and cried with Joy and Validation along
with 400 others from around the world
as we bonded LIVE via Facebook...
We even, for those that could not view RealPlayer, had to do a sports-like
play by play report of what was taking
place. We watched Dr. Peterson's
Presentation and Annette Whittemore's
Testimony on behalf of the millions
of us that have suffered with it for
over 20 years , not to forget the many
that have already passed away because
they could not take any longer the
disgrace & stigma the CDC has labeled
us with and the financial & emotional
ruin this has caused many families...
Dr Bell's testimonies of what families
that had young children with this and
their families went they as they could
NOT Dr's to validate their illness and
thus cause the families to resort to be
submitted to the Family Social Service
System and go to Court to be able to
even KEEP their own children, was just
literally appalling...and took some
families UP to 10 YEARS to settle
these cases... THIS HAS to STOP NOW !
In the USA this is a Total disgrace.I am chosing this time also to write
this particular blog topic, in memory of
my stepdad that at the end of the year
always wrote out all of his donations to
charities that he wanted to donate to that
year..so it could be listed as a
"charitable deduction" on his taxes before
the end of the calendar year..
I would like to Remind those of you in
the USA that the WPI "is" a 501c3
and qualifies for such deductions..
If you ONLY give to one charity this year
I BEG YOU Please Give to WPI....
I will share with you Now the letter from
Annette Whittemore as this year ends..
and then I will give you info about where
you can send in your charitable donation
to a Place that has already done SO MUCH
for the Spirits and Hopes of SO Many ♥
Bless Dr Peterson for all of his YEARS
of help and support and persistence
to help find a cure for ME/CFS folks..
Bless Mr. & Mrs. Whittemore for chosing
to "back him" and help FORM "WPI."
and deal with all of the legalities to
form the 501c3.
Bless Dr Judy Mikovits for coming to
work for WPI and dedicating her life
and energies to research to help us.
*******
Letter from Annette Whittemore
December 19, 2009Dear Friends,
On behalf of all of us at the Whittemore
Institute, I hope this holiday season finds
well. While 2009 has been challenging for
so many of us, this year saw unprecedented
progress at WPI: progress that would not
have been possible without you.
The unquestioned highlight is our joint
discovery of a retrovirus, XMRV, in
patients with chronic ME/CFS.
Through collaboration with the National
Cancer Institute and the Clinic,
Dr. Judy Mikovits and her research
colleagues were able to discover this
retroviral link. Our findings were published in Science, one of the world’s
leading journals. This groundbreaking
research has been reported around the
world. You may have seen our coverage
in the New York Times or The Wall Street
Journal, or seen or heard it on
Good Morning America or
National Public Radio.This discovery will lead to diagnostic
tools using reliable biomarkers of disease,
and is a major step toward identifying
drug therapies, and potentially a vaccine.
Laboratory testing for XMRV has already
been made available to patients.
We have been overwhelmed with words
of support and encouragement from
patients around the world who have a
new hope, and a very real validation
of their suffering: “I had the honor and excitement of
watching the live broadcast of the NIH
presentation of your research... I quietly
cheered as Mrs. Whittemore gave her
speech about the sufferings of those of
us with ME/CFS. Thank you so much for
your bravery and persistence in fighting
this disease.” Kristi H.
“I do not have words to thank you for
the work you have done. It has now
been 30 years since I fell ill and I truly
never thought I would see the day
this terrible knot was untied.” Christina M.
This discovery has brought worldwide
attention to WPI, and to the University
of Nevada School of Medicine, our home.
Next summer we will be moving into
the new Center for Molecular Medicine:
a move that will expand our research
capacity as well as opportunities to
collaborate with other great researchers
and institutions. You can see the new building taking shape on the Nevada
campus right here in Reno.
Our 5th annual "I Hope You Dance"
fundraiser was a great success, and
guests heard a moving preview of the
XMRV discovery from one of our friends
and scientific advisors, Dr. Carl Ware of
the La Jolla Institute of Allergy and
Immunology. That we have partners the
caliber of Dr. Ware is a testament to the
high quality of the work at WPI.
That we have reached this level of respectin such a short time is a testament to the
generosity of people like you.
There are millions of Americans suffering
from ME/CFS, a debilitating acquired disease
that often leaves its sufferers too ill to
leave home; alone and without a source
of income or health insurance they begin
to lose hope that a better day will come.
Countless others around the world suffer
from diseases such as MS, autism and
fibromyalgia without treatments for the
underlying causes of their disease.
Our research is literally changing the field
and expanding the network of researchers
and clinicians who want to help further this work. Although we have accomplished much
this past year it is only the beginning of
our quest for answers to neuro-immune
diseases such as ME/CFS, autism, MS,
fibromyalgia and others that affect both
the brain and the immune system. The word is out about WPI and we have
the focus of hope for so many patients who
have longed for the proper diagnosis and
care of their conditions.
“Thank you from a grateful CFS patient.
I am a single Mom who has suffered from
CFS for 18 years. It has left me frequently
bedridden, unable to work and dependent on
Social Security for most of this time.
My children, family, and I have hoped and
prayed for such a find for all of these years.”
Ann S.
Now, you can join me in this vital
groundbreaking work which is being done
right here in Northern Nevada.
Doctors and patients, the world over, are
watching and waiting. We are thankful to
friends like you to help make this vision come
true for the countless patients who suffer. Thank you for thinking of us as we end a truly
productive and thrilling year. I wish you and
yours peace, health and happiness today,
and as we look to the year ahead.
Sincerely,
Annette Whittemore
Founder and President
***************************
PLEASE Share this article with any of
your friends that have a neuro-immune
illness and any of your friends that
still need to make their year end
charitable donations made in time..OK?
Simply click on the WPI link and
it will take you to their website
and the page on which you may
Donate via Paypal and it also has
their address in case you wish to
write a check and mail it to them..
This will also give you a chance to
check out their website and read
about all of the research they
are working on..
WPI-Donate
Since the WPI has brought the
"feeling of the Sun" back into many
of our Lives.. I dedicate this song to
them to represent this coming year...
Since the WPI has brought the
"feeling of the Sun" back into many
of our Lives.. I dedicate this song to
them to represent this coming year...
Bless you ALL and may we ALL have
a Happy Healthier next Decade !!!
No comments:
Post a Comment