#112~ "If this was HIV, it would be 1983"

For those that do only have dial-up and can not watch videos I wanted to post the text of one statement that needs to be heard Around the World. I would like to also thank the person that did this transcribing and gave me permission to repost  it for everyone to read.. cuz this needs to be known.. 

I am one of the SeroPositive XMRV plus co-infection people that has been sick since 1987 and maybe before because I have NOT had any vaccinations since the 1970s and you can't grow antibodies to something you have never been exposed to.. so any lab contaminations that may have taken place after 1992 had nothing to do with my blood or what antibodies I have created. 


The fact that there are also now literally 3 generations of sick people and some have them within one family, and some even have adoptions so that would rule out bodily fluids.. so the Real Question here also is.. is this merely Infectious or also Contagious ???


And Now~ Here's Judy ♥ 
from the NIH State of Knowledge April 8th, 2011
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Mikovits: I would like to say that what I've seen here this week says that, clearly, XMRV at best, what we originally set out to do 5 years ago was a systems biology approach. We used those genomic technologies by Gene and Mary Carrington. We used a microarray from the NCI to screen all the pathogens. And what we saw was what we heard from Mary Schweitzer, that a lot of active pathogens and things like shingles, things like enteroviruses, things like EBV, CMV, HHV6--they're all totally on in that microarray. In NCI's infinite wisdom, it didn't put XMRV on it, so that's how we ended up going back. But we didn't look with a hypothesis for retroviruses.

We took the systems biology approach, collected samples from patients who had the well-defined characteristics that Tony Komaroff talked about and that were in the Lo Study and Dan Peterson had done--these patients--had data on them for decades. We took samples over three years. So it wasn't that we found the virus in every sample. It was like the macaque study, where it quickly went into the tissues, like the mouse study that came out this week that said the antibody responses were weak and transient. We don't know everything about this virus.

But HIV does not cause AIDS. The CDC definition is HIV and one of 25 co-pathogens. So the Lyme, the EBV, the enteroviruses, Martin Lerner's patients who don't get better with Valcyte. This is a reasonable hypothesis because we see the same thing. We've developed a cytokine signature that is distinct from Nancy's cytokine signature and from Ben Natelson's. So this is a marker to follow on clinical trial improvement, but there's no doubt these people are infected. With HTLV-1, if you're seropositive and you're sick, you can get some kind of treatment.

I'm not saying antiretrovirals. I'm saying immune modulators. So the patients that are found to be infected now--and there are thousands of them--need something now, not three years from now when Lipkin decides there is an association. Whatever their disease is, they're sick. And I know John--Chia--has patients who are co-infected and they don't treat the same way, so we can get together with the physicians who have co-infected patients. Even Lyme doctors, whom we are working with across the country. We can start doing something now. Take it out of CFS. It's not about CFS. It's about a retrovirus we don't understand very well. As Frank Ruscetti said at a meeting a month or so ago, "If this were HIV, it would be 1983." That's all. 
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Thank You Patricia Carter of the  http://www.mecfsforums.com/ for permission to repost this transcription for the World to read. ♥
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If THIS is not a Call to Help the Thousands of us that ARE sick and Need Help NOW I don't know what is... Thank You, Dr. Judy, for "Caring About us" and for taking on this extremely HARD job during these challenging times while 

"The Band Plays On"............................................

Next on Deck is the CFSAC meetings on May 10th + 11th and then the International Awareness Day on May 12th.

May everyone Please "Help Raise Awareness"  ~This YEAR, HERE and NOW ♥

If XMRV proves to be Contagious... you might be Next.


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#111~ Dear CFSAC~ One last time- Getter' DONE !

Dear Dr.'s Wanda Jones , Chair Chris Snell and all CFSACommittee members and attendees,

I HAD wanted to be Polite and respectful in this letter but the NIH meeting has brought out my "Outside Voice" 

cuz the WE patients are ticked off and as the Movie "Network" says~ "We are Mad as Hell and are NOT going to Take it ANY MORE" Got it ? Is that Clear ?

 

Do you need it in a few more languages ? Is everyone putting down the blackberries long enough to even read this??

Remember you ARE on Camera and all nose-picking Will be ( and has been)  observed.... Wake UP you ARE on Camera and this should NOT be another version of the World's Funniest Videos of 2011." 

I had been wanting to be in a Happy Mood when I wrote this letter but after the actions of Dr.'s Coffin and Vernon at the NIH State of Knowledge Workshop, I must say I am extremely Upset and in disbelief that #1~ Dr Vernon does NOT represent us in ANY WAY and the patients do NOT want her to utter "ONE WORD" to us or ABOUT US. Period. We have even created a Petition to that effect that has already gathered many signatures.. 

 

Who died and made her the MC at the end of the meeting ?  And she demonstrated her lack of courtesy when she was interrupting "what the viewing audience was seeing as a VERY Important discussion between 2 researchers"... How DARE Her ?

We have waited almost 30 years to HEAR these discussions.... Shame on Dr Vernon........... "Black Mark Given." by MANY !!!

Dr. Monroe of the CDC's  "poor Joke" at the NIH about not wanting to miss his plane was NOT Lost on the patients...

Especially, since it was the CDC that shot down Elaine DeFeitas in 1990 when another Retrovirus was in the early stages of being linked with ME/CFS.

 

Elaine made her BLT with Best Foods Mayo and the CDC decided to use Miracle Whip> Guess what> Garbage IN Garbage OUT> Then, they claim that "they can't replicate her findings".so... . She invites them UP to her lab to watch every step she takes.. and their excuse is that "they can't afford the 2 plane tickets to get up there." PALEESE... How Lame> When they ARE the ones that have the Name" Centers for Disease CONTOL and Prevention. Did they FORGET THAT ???

Hey, CDC, Dr Monroe, How MUCH IS YOUR LIFE WORTH? A plane ticket ???

Give me a fricken break.. and for THAT we go another 20 years without Help or Treatment ?

Right now the CDC is an acronym for us that stands for "Can't Detect CR*#" = until they start acting with INTEGRITY toward their citizens... They TRULY ARE a Worldwide Embarrassment to the USA.

And I am equally dismayed and repulsed and almost made physically SICK, by Dr. Coffin's wish to discontinue all XMRV Research... How DARE He...??
A REAL Research Scientist would WANT to Keep Looking > when they already have Thousands of patients that ARE Testing Positive, either by PCR or Serology or Culture and DO have antibodies and>  Hello many were sick before Dr Collins 1992 date, whatever that was about... We have been sick since the mid 1980's~ Was he NOT even listening ??? There are NOW 7 cohorts, in 7 countries that have tested XMRV+ from different labs... So his arguments are MUTE points... Maybe he needs to buy a Hearing AID> poor baby should we chip in to buy him one ??

 

I think NOT, he has wasted enough of our money and can't replicate anything because HIS fricken lab is the one that is contaminated..

I respected him in the beginning, but he has now lost all of our respect... Until IF and When he chooses to EARN it back...

by Continue Researching what we already Have> a retrovirus called XMRV, and starts doing the proper tests and using the proper proteins.

I don't think he had his hearing Aid ON "At ALL" during the NIH SoK unless someone other than Dr Judy was talking...

Not too much Prejudiced there, especially to have the cajones to call for Research to STOP when we are sick with it... Disgusting !!!

Maybe it is True ? That "That Takes Ovaries" and that is WHY Only Elaine DeFrietas and Annette Whittemore and now Dr Judy Mikovits been the ONLY ones to NOT worry about their cajones and have learned to Speak UP FOR THE Patients...

Which is what you, the CFSAC,  SHOULD BE DOING NOW.......................................

We are getting the feeling that either:

#1) "Some of these Researchers" do NOT Care about the Truth...........Thank you Dr Coffin> aptly named I might say.....

            Those that DO Care, we could Easily tell who they are and "We Thank Them Whole-Heartedly" ♥

#2) That our Government and this committee does not really care about us or the millions around the world being effected.

#3) that this government is being penny-wise and pound Foolish, because we DO want our Lived Back like Robert Miller Said and we would LOVE to be paying Taxes and helping the deficit.. but many of us because the lack of knowledge after YOUR and YES I mean ALL of YOU> is literally embarrassing and you have NOT Cared one iota about REALLY Helping us~ or you would have Meant what you have said and Done something about it !!! All we get here, until NOW,  literally IS Empty Words..

Where ARE your Consciouses ? You very well KNOW How sick we are and you Demand NOTHING >>>>>>>>>>>>>>

You KNOW as Dr.'s Leonard Jason and Chris Snell pointed out Extremely Well at the NIH> that we DO HAVE 

"Post Exertion Malaise".. that is a HUGE Part of what sets us apart from those that only have depression..
The Canadian Case Criteria KNOW it , We ALL Know it, Many Drs KNOW it, now its time for the CDC to KNOW it and OWN it, Period.

 

Was Anyone Listening ???? Did you listen about the OI/POTS parts that effects our Oxygen intake and our ability to stand UP ?? and YES>effects our hearts ??

I hereby not only request, but a an insulted 17 year hospital worker that had to quit my job because of this illness 

and now cant even get Disability because it took TOO Fricken Long to get a Diagnosis, which was NOT MY Fault cuz no Doctors have been educated about us,

but I DEMAND that this committee Send a message to the CDC in their STRONGEST Language to Cease and Desist with the infantile psychobabble that they have 

on their website about this illness and start acting and behaving like REAL Scientists and Take DOWN THAT "GET" junk that Physically HARMS our hearts and 

many of us have already had therapy because of the abuse of our Dr's and the CDC "not believing us" for 20+ YEARS... SO THEY HAVE ALSO INFLICTED

PTSD on many of us, Yet we Fight ON, because we KNOW the Truth and the world is also learning the Truth... that the CDC and NHS are Puppets

of the Psych Dept and the Insurance companies... We have had enough of this.. and you WONDER WHY our the Health Coverage in the country sucks ?

Emory University wrote a paper A YEAR AGO about those of us infected with XMRV+ and co-infections and What Meds would help us...

Where the Bleep are these Drug Trials ??? Magic Johnson is FINE on his meds and God KNOWS you are NOT letting us have any meds to get better so we can Have our Lives back and be Functional citizens again and get jobs and Pay taxes... What are you hiding ???Who are you covering-UP ??

WHY DO YOU WANT US to be SICK ? OH, so you can carry on this charade of doing non-relevant research for another 25+ years... WRONG !!!!

Like Dr Ruscetti said a month ago... If this were HIV this would be 1983.......

Wake UP>  The Band IS Playing ON......... and you are NOT getting us any help NOR cleaning the blood supply...

You should all be ashamed of yourselves that you have let this Crime against Humanity GO ON THIS LONG>...

It is now World-wide and not only within the confines of the USA.

I was was Proud working in a hospital for 17 years that REALLY Cared about their Patients like Dr Bateman does..

and like WPI and Dr Judy Mikovits do.... but I have seen NO medical ethics displayed here recently..

I have felt NO Urgency to Help those with a RETROVIRUS and co-infections Get Treatment... NOW

Shame on ALL of you>>>>>>>>>>>>>>>>>>>>

 

You are literally watching as Rome burns or better yet as this Holocaust plays out and kills another Generation...

We ARE on our 3rd Generation now and the Family Trees are showing up things like Lymphoma

and Autism..Breast Cancer and oh yeah >  Thanks My mom died from Lymphoma and I have XMRV...

 and you play your fiddles..... and yet YOU collect your pay checks..

GIVE YOUR PAYCHECKS BACK TO PAY OFF THE DEFICIT OR "DO SOMETHING TO HELP US" > NOW

YOU HAVE 2 DAYS TO GET IT RIGHT, THIS TIME... PLEASE....

EARN YOUR PAYCHECKS... Speak UP and actually DO something to get the Huge Ball Rolling to get the CDC off their Butts

and the FDA off their Butts and get us some Clinical Trials... We have "ToDo Lists" we are NOT simply depressed

like the CDC website seems to think.... That website is an atrocity...and an embarrassment to the citizens of the USA.

If they have NO Respect for us, WHY on God's Green earth should we Respect them ??

If they don't believe XMRV is Real ? are they willing to receive a transfusion of blood tainted with it ???

This ostrich game everyone is playing is getting really OLD>...Older than I am... and the World IS seeing Right thru it..

The DHHS>NIH can't Afford any Centers of Excellence> Hello> The WPI already Exists... Help them dang it !!!!

I also hereby "Officially request that the NIH Create an Additional SEP for the study of XMRV~ NOW" >
Cuz otherwise there is NO Place that Grants can be written and sent to study this,... unless they come in 

a back door thru some other of the MANY co-infections and that is BS> to the Hilt...

PLEASE Tell me> HOW MANY PEOPLE BEING SICK CONSTITUTE AND EPIDEMIC OR PANDEMIC ??
NOW answer truthfully here ??? Please....

There are at least 17 million worldwide in this new 21st, Airplane bug hitch-hicking era Century and that's

ONLY including the 20% that they say HAVE been diagnosed...

How about the Millions with Lyme that are testing XMRV+ ?

How about the 25% of Breast Cancer samples that are also testing XMRV+ ?

How about those with OI/POTS and XMRV ?

How about those with NO adrenal function or Thyroid function and XMRV ?

How about those on our Family Trees that now have Autism ?

How about all of the families brought to Bankruptsy trying to care for their "sick member" ??

How about the thousands that not ONLY do not HAVE any medical coverage OR Disability, 

but have NO ONE to care for them and are Bedridden ?

Is the USA ~ Really a 3rd World country again ?? 

That seems to be the way you treat your citizens...

Dr Jones, How much is your Life worth to you ?

Dr Snell, How would you feel if you were bedridden for YEARS but your brain STILL worked fine ?

Where are the "Job Fairs" for the bedridden ????

We can't get Disability cuz the Dr's didn't know what we had..

We can't get jobs that aren't scams from home in bed..

WHAT do you expect us to LIve on and How do you expect us to Exist ?

And we were Hospital workers, professionals, professors, etc, Please Help us..

Where is your consciouses ???

We Demand a NIH SEP for the Research of XMRV and all cohorts connected with it NOW< Period.

 

If you do NOT make this a recommendation to Sec. Sebilius than we WILL KNOW where the CFSAC stands

and how much they Care NOT about the thousands of us that are NOT getting ANY Treatment or medical care

and are being simply left here to die.... so put THAT on your conscious... OK ?

HOW MANY YEARS MUST WE BEG FOR THE SAME THING ??

Do your salaries NOT Pay you enough to Buy Hearing aids ???

At this point , I really do NOT give a Rats A*# where or How we got it, but we HAVE IT and are testing Positive for it and HAVE Antibodies> Hello !!!

YES OLD ANTIBODIES> so not obtained after 1992....capiche ??

Sick Before Coffin's 1992 date = a Mute Point..  What's your Next excuse ?? For NOT Helping us ??

Continue your other Research, but for Gosh Sakes,  "KEEP Researching the thing we ARE and Have antibodies for"  = DUH 

The poor Medical MDs that that you put on the front lines to treat us are the ones that catch ALL of the FLack ALL Year Long...

SHAME ON YOU> EDUCATE THEM... WITH OUR BIO-MARKERS SO THEY CAN KNOW WHAT TO TEST FOR...

 

My CD4CD8 is off and backwards, I have had HSV since I was 5, had EBV/Mono when I was 19, but to went away

and I was able to get married and work in the hospital for 17 years until I had my Triggering Event...

I had  HIGH Fever "Sudden ONset" with a low grade fever that last for over 2 years....

I was on the couch living alone during that period. I could not even go to the hospital to say Good-bye to

My closest thing to a sister that was dying from AIDS as NO ONE could tell me what I had...

My EBV at the tome was very LOW> so NO it was NOT EBV> Get it ??

It had taken me 23 years to even obtain an written letter from my Dr that says I have > OH yes..  CFIDS and it is Spelled out... as well as OI< but she forgot the POTS part... and YES I have my own BP cuff and I use to work in a BP clinic, so I know how to take it. My thyroid gland is shot and so are my adrenals now.. so I must take expensive meds to supplement what my body can not make.... Where is ANY Mention of the deterioration of the body that THIS ILLNESS COSTS us so we can KNOW "what NOT to do" or "What to do to Help ourselves" = NO Where !!!

 

If you had DONE or Listened to Elaine DeFreitas maybe many of us would NOT even BE this sick now...

So you NOW have a Second  Chance to get it Right... Your Center of Excellence is WPI>

Get that through your Brain Please.. They are the ONLY one to already be using Translational Medicine

which Dr Vernon to her detraction, tried to adopt and claim and a New idea, when WPI was already set UP that way 5 years ago !!! Vernon, maybe YOU need some Hearing Aids also, cuz we will NOT put up with your Revisionist History either.. capiche ???

Vernon talk about Everything that XMRV has done to bring ME/CFS into the Light of the Press and Scientists was done by the WPI not simply XMRV... sheez.... XMRV did not research anything. XMRV did NOT bring together the NCI and Cleveland Clinic, and it was the WPI that with them got the Science paper Published.. Vernon you can NOT claim what is not yours and you jealousy of them is showing as Green and your lack of knowledge and Expertise...

Last time I wrote you, I thought it might be my last, but NO Thanks to YOU I have found HOPE in WPI and learned a few things to help and my money has not quiet run out YET
so I am not on the streets YET, but I do NOT have enough to last until I am 66, so I will either die, or get meds, or lose the house I PAID for like a good citizens, and will probably have to go live in my trailer God knows where cuz I can't even drive to pull it anymore.. I use to travel to do my Nature photography in it.. to take me away from the stress of the  hospital politics during the early days of HIV and AIDS....

but here we are again.... "And The Band PLays ON... 

PLEASE REMEMBER THE

WORLD IS WATCHING YOU AND ALL OF THESE MEETINGS AND THEY KNOW  WHETHER YOU CARE OR ARE ACTING SPINELESS.

 

For God's Sake DO something to Help us... Help those NOW that are XMRV+ Plus co-infections and Please get the Psychobabble OUT of the CDC's website and let's start acting like Adults here and Clean the Fricken Public Blood Supply NOW> NOT Years from now.. 

You are continuing to commit Crimes Against Humanity by your "Lack of Action." Period.

Own your Cajones or Ovaries and STand UP for what is Right... This Time NOW

Even Dr's Bell's Lyndonville kids tested 70% Positive for XMRV~

You want our blood FINE we'll donate it to you Personally~

You ARE Taking our lives... so what else do you want ?

We will NOT shut up for you or anyone at this point...

We have had enough > Got it... 

We will speak up until our dying Day or until you get us some Meds to Help us  as you are suppose to do !!!

It's Your choice... Give us Meds and DO More Research including a SEP for XMRV or we WILL start being heard in more ways than Egypt planned for...

Many around the world are not taking what is handed out bay their dictators any more and you have been not representing us effectively for the last 20 years.. nor the CDC/NIH for the last 30 years.......while "The Band IS PLaying ON>.

So HERE"s your chance NOW> Do it and show us what you are made of....

Cuz your actions will show more than your mere lip service

that we have been getting for decades.. while children die and the 3rd Generation gets infected...

WAKE UP and PLease SPEAK UP> NOW

The world is watching you and what you say and DO.............

Sadly, I remain,  w/o hope unless you create a XMRV SEP and get us Help........

I might remain a while longer but I will NOT go down quietly and will broadcast to everyone, everything this government, AND every other Gov't  has NOT done to take care of this NOW worldwide PANDEMIC. Wake UP !!

I had the Test, Now I need the meds..........

"Kill/Incapacitate the BIG BUG, then deal with the co-infections"

or does THAT make TOO Much sense ?

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#109~ The Birth of "Advocates 4 Answers"

OH Happy Day ♥ Happy Birthday Dr Judy  

and for the birth of "Advocates 4 Answers"

Happy April 1st everyone... and it's NO Fools Joke !

Please Help us wish our very own, Dr Judy Mikovits' Birthday today !!  

Birthday Greetings  for Dr. Judy maybe emailed HERE

Also, Congratulations to Dr. Judy in her New Position at WPI as the 
Director of Translational Research. What a perfect fit for her and blessing for WPI and the patients.

What a Perfect Day to Launch the New Website and New Advocacy Campaign  
for Neuro-Immune Diseases. 

Dr. Judy and WPI epitomize the essence of real

science, passion and compassion~ along with now a new advocacy campaign ~

 The website is UP and Available NOW for you to Sign the Guestbook, so you can Help be one of the "Advocates 4 Answers" and becoming a part of WPI's "May Awareness Month" for neuro-immune disease.

 

Throughout the month of May, we are inviting you to join us in raising awareness and funds for the important research into the underlying causes of neuro-immune diseases. Every day there will be an opportunity to show your support. By signing our guest book, you are pledging that you want to be a part of our movement and will participate at a level you are comfortable with to show your support.

You will receive an email prior to May 1 to help get you started. 

You will also be show the link for the New Facebook page link for this Campaign also...

Be an "Advocate 4 Answers" and sign up today~ by going here ~

Please SHARE this post and  get everyone you know 
friends, family, and care-takers to help and participate. 

http://anida.com

We look forward to an Exciting 2 months of Advocacy and Beyond......

Mobilize and "Join Our Energies TOGETHER" so we can be Positive Source for advocacy at this much needed time with all of the recent research developments thanks to WPI and our Heroes "on the Reno Hill."

I sincerely look forward to Joining with you ALL and taking part in this 

"much needed" long over-due United Campaign for the millions that these illnesses effects.. 

Its it TIME to Unite behind the diseases and drop any political illusions of us being separate and work with the one place that we already KNOW and TRUST ♥

We are as Powerful as our United Voices.

Our time HAS come.. Let's Grab this Brass Ring and Run with it, OK ?

We are now on our 3rd Generation that is being effected with these illnesses and it is Time NOW for us since the Universe has seen fit to unite us with this technology to help Be "Our Own Voice" ~ 

Please Come Join us... 30 years is long ENOUGH

It is TIME for the People to USE their Voices..



XMRV will NOT Quit and Neither will WE or WPI, OK

Heartfelt Thanks for Participating and Joining us 

on this New Campaign of Advocacy !

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#100~ Please SPREAD this video NOW! THx♥ OUR WikiLeaks

Please make your Holiday present to the World, just a few emails about this video and to the NIH~ Thx♥


Guest Blog~

Ladies and Germs, I think that Dr. Judy and Annette Whittemore did was HEROIC! I would like to nominate them for the "Heroes of the year for 2010" . Are there any takers?

I can say what they are "too polite" also. Dr. Ruscetti is WORLD famous in retroviral research. He discovered the second ever kNOWN human retrovirus: HTLV-1. He was also RIGHT there at the founding of HIV-1. Along with Dr. Luc Montagnier from France, and Dr. Jay Levy of UCSF in the USA. in 1989, Dr. Jay Levy told me that "THIS CIAS (chronic immune activation syndrome) {this was HIS name for M.E. and CFS} will be the AIDS of the 1990's". 

Dr. Robert Gallo, who was working at the NIH at this time STOLE the working papers of Ruscetti, Levy and Motagner. they were being HONEST and very Careful, and when told to double and triple check all their work, Gallo used that time to steal their work and to go to the US patent office and he got HIS name on the HIV patent and thus got MANY accolades and speaking engagements and $125,000 a year in royalties. Dr. Ruscetti was VERY angry at his work being stolen, and he vowed to NEVER let the NIH and CDC bosses see his work until it was completed, so they could not steal it or squash it! He did this with his HTLV-1 work which is also a human retrovirus that can cause lymphoma's and various cancers. 

NOW, we have the 3rd known Retrovirus, XMRV, and Dr. Ruscetti is right there again with the brilliant and determined Dr. Judy Mikovits and her partner Lombardi, and the equally brilliant, classy and determined Annette and Harvey Whittemore, and their lovely daughter, Andrea. These people are fighting for TRUTH and JUSTICE and FAIRNESS for all of US!. If you know anyone with a foundation or a bequest, PLEASE make a donation to the WPI! We have a link on our site at www.rescindinc.org. you can go there and sign our M.E. Petition and make a donation to the WPI at the same time. You can also listen to Susan Wenger's excellent song about M.E.  

Harvey Alter's comments from last week at the FDA blood working group meetings. Dr. Alter said in effect, that he knew NOTHING about M.E. and CFS six months ago. But he has learned a lot in the past six months. and He now says "Maybe XMRV plays a role in this illness, and maybe it doesn't. But either way, this illness is REAL and it is SERIOUS! and we need to do the work to find out what is causing all this misery to so many people!

 Also, Dr. Kenny de Merlier said two days ago, BIG insurance companies and MAJOR world government agencies are scared to death! this could cost BILLIONS of dollars to treat us. and the liabilities of having government bureaucrats denying treatment to people who were gravely ill with  M.E. and CFS, and Autism, and Chronic Lyme and other illnesses like Gulf War Illness could SUE our various governments for LYING to the public for decades. This could cost MORE billions. And when there is Deliberate MALICE, we can go for TRIPLE damages!!!

So, when people like Ruscetti, MIkovits, Lombardi and Dr. Shyh-Ching Lo, (who discovered various mycoplasmas in the early 1990s relating to sick gulf war veterans). Dr. Lo is, like my friend Garth Nicolson, one of the TOP Cancer Tumor experts on the planet, with more than 500 Peer reviewed articles, who had a daughter who was a helicopter pilot in the First Gulf WAR. She was a smart, hard charging woman who came home deathly ill after the first Gulf War.... and the Pentagon "lost" medical records written in ink. Someone "erased" millions of medical records that were on Pentagon Hard drives, and somehow thousands of HARD copy CDs and DVDs of medical records went missing..

Funny, how 3 separate mediums of medical data went missing....just when 285,000 soldiers got SICK! and many of the soldiers from POOR countries did not get sick and soldiers from France, that did NOT take the toxic vaccines jammed full of squalene, and who took prophylactic antibiotics did NOT get sick, and our soldiers who were jammed full of toxic vaccines, and who ate  Pyridostigmine Bromide tablets like "chiclets". These tablets were to be ONLY taken after a direct exposure to chemical weapons. Professor Thomas Tiedt, an expert in cholinesterase problems testified that a single dose in about 5% of all people will cause lifelong neurological problems, and that just a few dozen exposures will damage the nervous system of about 1/3 of all people who take these tablets. 

Years ago surveys showed that 1 in 4 Gulf war veterans were SICK AS DOGS! even though they only fought for 4 days! 25% of our returning soldiers are now sick! and guess what their disability claims say on them? drum roll please......Fibromyalgia Syndrome, Chronic Fatigue Syndrome, Environmental Illness, Multiple Chemical Sensitivities. and 95% of these veterans are MEN! so, these illnesses are NOT just for women! and the US Pentagon has put $300 MILLION aside to research and care for these soldiers! WE need a piece of that pie! and IF and this is still a big IF, but what if XMRV and other MLV's help TRIGGER these condtions in people with certain genetic or psychological predispositions who have already been exposed to multiple enteroviruses, and HHV6, and the whole world has been exposed to EBV? 

If you watch the "Nevada Newsmakers" clip with Sam Shad. Here is their link: http://www.nevadanewsmakers.net/podcast/downloadfile.asp?file=nnm12222010.m4v 

If this toxic soup adds up to such a mess that even a small amount of XMRV, that could damage our HPA axis. I said 22 years ago, that Louis Pasteur, one of the fathers of modern medicine claimed more than 100 years ago, that "the Terrain is everything, the antigen is NOTHING!" If we have terrains of teachers and nurses and other health care workers and people in the travel industry who are in and out of various countries every month for their jobs. IF these people have a "toxic load" of various insults to their central nervous systems and their immune systems, and if Dr. Elaine DeFreitas was correct 20 years ago, and she had a PIECE of the puzzle, and instead of trying to HELP her work along, the CDC and the NIH tried to SHUT her down, because they were already fighting the First  retroviral epidemic of HIV/AIDS, they did NOT need a second retroviral epidemic of middle class white, nurses, teachers and travel professionals, so they decided to CRUSH the Wistar Institute. 

NOW, 20 years later, the same Establishment mentality is trying to CRUSH and STARVE the WPI of the funds they need to find out IF XMRV is the trigger, the final straw that breaks the camel's back,  Then our national governments and various insurance disability companies will have to PAY a portion of our former salaries, PLUS medical expenses, and Housing allowances, and clothing and for Millions of people for DECADES! 

So, Please do NOT let this attack go unanswered! PLEASE get a copy of Dr. Judy Mikovits and Annette Whittemore from "Nevada Lawmakers" with the link listed above. you can google Sam Shad, the reporter, who has interviewed these same all stars at other times over the past several years, and spread that video FAR and wide! Make that Video VIRAL! That is your job over the holidays. We want that video in the hands of every major newspaper editor in the world who published a NEGATIVE  report on the WPI and XMRV in the past week. 

NOTHING that was said in those studies this week in Retrovirology REFUTES a single data point in the October 8th, 2009 SCIENCE article by Lombardi, Mikovits et al. NOTHING  has to be apologized for, or changed. not a single comma. THIS study told the truth. Dr. Judy and Annette were sitting there calmly refuting all negative claims and answering all charges. WE have the truth on our side. The WPI can back up every claim. We need to write to the head of the NIH, Dr. Francis Collins and the NEW head of the CDC and ask them "what have you done today to REFUTE these scurrilous lies and half truths?

WHY are you allowing these buzzards to pick apart the WPI ?"

Until proven WRONG, the NIH and the CDC should be PUBLISHING every word that the WPI all stars are writing up, and our government should be FUNDING the WPI to the HILT, until they prove themselves wrong. The NIH and the CDC have been WRONG at every turn on these conditions for 30 years! The NIH and the CDC should be sending their BEST scientists and BUCKETS of money to the WPI, so that we can find out WHY so many people are soo sick and find out HOW we can fix them and get them back to paying taxes and being productive citizens again! 

Finally, it is OUR time, and we need to 

"kick off these ankle biters" and 

Fund the Winners! 2011 is OUR TIME!

We are NOT sick of being TIRED,  

We are TIRED of being SICK!

Peace to all men and women of Good will! and 

Beware all of those who try to deny the truth! 

The good guys and girls are going to win this time! 

PEACE! Ciao for now. TMH

 Guest blog, by request, from TMH~

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#78~ Dr Judy in Spain's "AIDS Review"-abstract only

For the FULL article you much purchase the the pdf at this site:
But here is the abstract that they put out to the public...

Distribution of Xenotropic Murine Leukemia Virus-Related Virus (XMRV) Infection in Chronic Fatigue Syndrome and Prostate Cancer Judy A. Mikovits, Ying Huang, Max A. Pfost, Vincent C. Lombardi, Daniel C. Bertolette, Kathryn S. Hagen and Francis W. Ruscetti |Full Article in PDF| Whittemore-Peterson Institute for Neuroimmune Diseases, University of Nevada, Reno NV, USA
Abstract
In 2006, sequences described as xenotropic murine leukemia virus-related virus (XMRV) were discovered in prostate cancer patients. In October 2009, we published the first direct isolation of infectious XMRV from humans and the detection of infectious XMRV in patients with chronic fatigue syndrome. In that study, a combination of classic retroviral methods were used including: DNA polymerase chain reaction and reverse transcriptase polymerase chain reaction for gag and env, full length genomic sequencing, immunoblotting for viral protein expression in activated peripheral blood mononuclear cells, passage of infectious virus in both plasma and peripheral blood mononuclear cells to indicator cell lines, and detection of antibodies to XMRV in plasma. A combination of these methods has since allowed us to confirm infection by XMRV in 85% of the 101 patients that were originally studied. Since 2009, seven studies, predominantly using DNA polymerase chain reaction of blood products or tumor tissue, have reported failures to detect XMRV infection in patients with either prostate cancer or chronic fatigue syndrome. A review of the current literature on XMRV supports the importance of applying multiple independent techniques in order to determine the presence of this virus. Detection methods based upon the biological and molecular amplification of XMRV, which is usually present at low levels in unstimulated blood cells and plasma, are more sensitive than assays for the virus by DNA polymerase chain reaction of unstimulated peripheral blood mononuclear cells. When we examined patient blood samples that had originally tested negative by DNA polymerase chain reaction by more sensitive methods, we observed that they were infected with XMRV; thus, the DNA polymerase chain reaction tests provided false negative results. Therefore, we conclude that molecular analyses using DNA from unstimulated peripheral blood mononuclear cells or from whole blood are not yet sufficient as stand-alone assays for the identification of XMRV-infected individuals. Complementary methods are reviewed, that if rigorously followed, will likely show a more accurate snapshot of the actual distribution of XMRV infection in humans.
To purchase the FULL article pdf:

http://www.aidsreviews.com/buyarticle.asp?articulo=1098

#75~ The Ribbon is CUT at WPI.

The Ribbon  has been CUT on the REAL Game Changer.

“We have immune system profiles and we can tell by the immune system how the XMRV is doing the damage,” she said. “So we could have a diagnostic test to follow clinical treatment and show that people’s immune systems go back to normal. That’s the latest data that’s really amazing. That’s what we’re after.”

                                          ~ per Dr Judy Mikovits

Press Release from WPI ~


FOR IMMEDIATE RELEASE
August 16, 2010


The Whittemore Peterson Institute Celebrates Formal Dedication of New Building
Innovative research facility to offer unique collaboration of science and medical treatment

Reno, Nev. – Today, the Whittemore Peterson Institute (WPI) celebrated the completion of its new facility at the Center for Molecular Medicine. 

The WPI is the first institute in the world to integrate research, education and treatment of neuro-­immune diseases. Located at the University of Nevada, Reno, the $77 million facility is the result of an innovative partnership funded by a combination of University Research grants, private contributions to the WPI, 

and public funding from the state of Nevada. The new WPI facilities, set to open in fall 2010, include executive and administrative offices, research and clinical labs and a medical clinic.

“The completion of this building is the realization of a dream and a beacon of hope for patients affected with neuro-­immune 
diseases,” said Annette Whittemore, president and founder of the Whittemore Peterson Institute. 

”Our strategic partnership with the University, combined with this dynamic setting gives us confidence that the research done here will translate into innovative medical care for patients around the globe. We are proud that our work will soon lead to new avenues of research and treatment for these diseases.”

Monday’s program included a reception for donors, government officials, and personal friends of the institute and University, followed by brief presentations on the topics of higher education, University and WPI research, and the
significance of this new medical research building.

Speakers included U.S. Senators Harry Reid and John Ensign, U.S. Representatives Shelley Berkley and Dean Heller, State Senator William Raggio, University President Milton Glick and Annette Whittemore.

“The WPI’s comprehensive medical program will bring together physicians, nurses, technicians, state-­of-­the-­art equipment and other resources to provide an incomparable suite of medical services and information.” said Mike Hillerby, director of operations at the Whittemore Peterson Institute. “This facility will offer a unique setting where medical care, clinical laboratory testing and research can be integrated to develop effective treatments for patients suffering from chronic debilitating diseases.”

The Whittemore Peterson Institute will hold an invitation-­only scientific symposium on Tuesday, August 17, bringing together leading researchers, clinicians, and key collaborators from the medical and research community to
discuss the latest XMRV research findings, medical research data and evaluate treatment outcomes since the publication of their 2009 XMRV study.
The symposium organized by the Whittemore Peterson Institute, entitled
XMRV in Human Disease, will be led by WPI Director of Research, Dr. Judy Mikovits.

On August 21, the University and WPI will host an open house at the Center for Molecular Medicine from 10a.m. to noon. The event will be open to the public and will include tours of the new facilities. Researchers and representatives of the Whittemore Peterson Institute and University of Nevada School of Medicine will
be on hand to discuss the new facility and its ongoing research.

For additional information about the Whittemore Peterson Institute and for a list
of upcoming news and events, please visit http://www.wpinstitute.org.

#60~ Thanks Dr Peterson for EVERTHING~ WPI ♥♥♥

Whittemore Peterson Institute announces search for medical director.

Planned transition paves a smooth path for the fall opening of the new Institute
Reno, Nev.
–
As part of a planned transition, the Whittemore  Peterson Institute (WPI) announces the national search for a full time Medical Director as 

Dr. Daniel Peterson retires from this position.
 

Dr. Peterson, a pioneering physician in describing methods of diagnosing, managing and treating myalgic encephalomyelitis (ME/CFS), was one of the
first physicians to identify this disease in the United States.

“Dr. Peterson was central figure in the establishment of the Whittemore Peterson
Institute,”
remarks Annette Whittemore, founder and president of WPI.
“We are deeply grateful to him for his significant advice and support through
the development of the Institute.”

“I am extremely proud to have been a part of the creation of this medical research
institute which promises to bring exciting new answers to patients with
complex neuro-­‐immune diseases,” states Dr. Peterson who will continue his
internal medicine practice in Incline Village, Nev.

The WPI will soon begin a national search for a new full-­‐time medical director
and practicing physician with extensive experience in infectious disease, clinical
trials and medical management.

The Whittemore Peterson Institute will move into a new 100,000-­‐square-­‐foot
state-­‐of-­‐the art research and medical facility, the Center for Molecular Medicine,
at the University of Nevada in the fall of 2010.
Dr. Judy Mikovits will continue to lead the comprehensive research program at the
WPI, which will be the first in the world dedicated to neuro-­‐immune diseases
integrating patient treatment, basic research, clinical trials and medical education.

To learn more about the institute and ongoing research, please visit
http://www.wpinstitute.org.


For the FULL article download the pdf.

http://www.wpinstitute.org/news/docs/NewMedicalDirector_042810.pdf.

#50~ CFS says BBye Reeves at CDC, ~ and Mikovits/Bell videos

My, my... there has just been TOO much News and for once "This is a GOOD Thing" my relapse from the excitement tho.. not so good.


Since my last post we have had 2 BIG Lecture/Presentations (videos below) and FINALLY after YEARS of Disgust and "United Complaints" one of our Goals to help our Research in the USA move Forward and be led by a Scientist that KNOWS something is almost
here....

"Change of leadership" ANNOUNCED for **CDC’s ~ CFS Research Program**

**********************************************************
The U.S. Centers for Disease Control and  Prevention (CDC) has announced that Dr. William C. Reeves, head of the agency’s CFS Research Program, will be taking a new position within the agency
effective Feb. 14, 2010 (Happy Valentine's Day)
and that "he will no longer lead" the agency’s CFS research. 

Dr. Elizabeth Unger will serve as  "acting chief" of the Chronic Viral 
Diseases Branch, the unit within CDC that houses the CFS Research Program. On Feb. 14, Dr. Reeves will begin an assignment as Senior Advisor for Mental Health Surveillance in the Public Health Surveillance Program Office within the CDC’s Office of Surveillance, Epidemiology, and Laboratory Services.

Do we need to actually mention just HOW hilarious this actually IS ?

For YEARS, he has been the one to say that WE were ONLY depressed and that there were NO biomarkers for CFS, when actually HE was probably the ONLY one that believed thatand needed "Mental Help" as he has been in Total Denial of the Truth for many decades and could USE

some Mental Health Intervention himself...  LOL

**********************
Bio of Dr. Elizabeth R. Unger

Unfortunatley, like Dr. Suzanne Vernon now with the CFIDS Association, 
Dr. Elizabeth (Beth) R. Unger PhD, MD  was originally doing research for the CDC in Human Papillomavirus Program which was under Dr. William C. Reeves. (Hopefully HE didn't have much influence over her thoughts and she kept an Open Independent Mind.)

A native of Pennsylvania, Dr. Elizabeth  R. Unger received her bachelor’s degree in chemistry from Lebanon Valley College (Annville, PA). She received her doctorate in experimental pathology and medical degree from The University of Chicago. 

After completing her residency in anatomic pathology at The University 
of Chicago and The Milton S. Hershey Medical Center, Pennsylvania State University, she was certified by the American Board of Pathology in 
Anatomic Pathology.

She was a post-doctoral research fellow of the American Cancer Society and The W.W. Smith Charitable Trust in the pathology department of The M.S. Hershey Medical Center and joined the faculty of the Emory University School of Medicine as an academic surgical pathologist in 1990. While there she was involved in several studies associating 
EBV with various cancers.

She accepted a position at the Centers for Disease Control and Prevention in 1994 and became the Team Leader of the Human Papillomavirus (HPV) Program in the Viral Exanthems and Herpesvirus 

Branch of the Division of Viral and Rickettsial Diseases, National Center 

for Infectious Diseases.

Dr. Unger’s research interests have been in molecular diagnostics, viral oncogenesis and molecular epidemiology and she pioneered colorimetric in situ hybridization methods for detection of HPV in diagnostic
samples. The HPV program utilizes a multidisciplinary team to conduct 
laboratory-based epidemiologic research to inform control strategies to reduce the incidence of new HPV infections as well  as the major HPV-associated chronic diseases such as cervical cancer and recurrent respiratory papillomatosis. They worked with the National Cancer 
Institute’s Early Detection Research Network to discover and validate novel molecular markers to improve cervical cancer screening.

In 2000, she first appeared as an author on a CFS study. Chronic fatigue syndrome is not associated with expression of endogenous retroviral p15E. Gelman IH, Unger ER, Mawle AC, Nisenbaum R, Reeves WC.Mol Diagn. 2000 Jun;5(2):155-6.

(huummmm....)

Dr. Unger is a member of the College of American Pathologist’s 

Committee on Molecular Pathology and a founding member of the 

Association for Molecular Pathology. 

She is on the Council of the American Society for Investigative Pathology and The Histochemical Society as well as a principle scientist with the 

American Society of Microbiology. She has served as an advisor to the 

FDA and WHO on HPV testing and vaccine issues. She is on the editorial board of four journals including Technology in Cancer Research and Treatment.

Centers for Disease Control and Prevention 

1600 Clifton Rd Mail Stop G41, NE
Atlanta, GA 30333.
Div. of Viral and Rickettsial Diseases
E: eru0@cdc.gov 

We PRAY she will be True to her Hippocratic Oath, unlike her predecessor. May we send her *Good Thoughts* this Valentine's Day and HOPE that she will be ever searching for the REAL cause of this nasty

disease and Help us and the  Entire world eradicate this  illness that is ruining families as well as individuals and costing ALL of our countries economies & families TONS of $$$ in loss of productive energy as we ALL

WANT to be Healthy and able to work and FEEL like functional humans

again... We are NOT "simply depressed." WE have many thing we WANT to do.. May she HELP us reach that Goal.

*********************************************************

ON a Lighter note..  a "non-commercial break here" 
to Remind you.. that  People ARE getting BETTER right now
from this illness because of the Research that is being done... 
so KEEP Dreaming and Keep wishing... and your Dreams
WILL be answered.......

**********************************************************
Now for the Santa of CFS ~ God luv him ♥

 "XMRV retrovirus and CFS,  ME (Myalgic Encephalomyelitis), 

Fibromyalgia and aggressive prostate cancer" 

David S. Bell, MD, FAAP, a Harvard graduate, with an MD degree from 

Boston University School of Medicine in 1971 has come out of retirement to lecture and research XMRV (xenotropic murine leukemia virus-related virus).

The U.S. Dept. of Health and Human  Services appointed Dr. Bell to "Chair" the CFSAC committee from 2003 - 2005.

Dr. David S. Bell's XMRV Presentation
from Barborka on Vimeo

********************************************************************
On January 22, Dr. Judy Mikovits, PhD, director of research for the 
Whittemore Peterson Institute for Neuro-Immune Disease, conducted 
a 2½-hour XMRV seminar in Santa Barbara, CA.

The patient-oriented event was sponsored by the HHV-6 Foundation 
and ProHealth.com, and was introduced by WPI Founder and President 
Annette Whittemore.

This highly informative presentation and Q and A cover a multitude of intriguing details and plans that patients and researchers worldwide have been speculating about for months, since discovery of the XMRV retrovirus in ME/CFS patients’ blood was reported last October in the journal "Science."

Please BE Prepared to Concentrateso put your legs UP and get comfortable.  You can replay this later to take notes 
if you wish.... Just Listen this 1st time.


Dr. Judy Mikovits XMRV Presentation
from ProHealth on Vimeo



Dr. Judy Mikovits XMRV Q and A
from ProHealth on Vimeo

There is even MORE news to Come...but that is ALL I will put in this post.
So let this soak IN and then we will move on to the next set of news releases, OK?

If you have any opinions or comments to share..Please DO.. and PLEASE
SHARE the videos with your friends & family that need to learn MORE
about what ME/CFS is and what the discovery of XMRV means to us.