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Wednesday, April 28, 2010

#59~ CFSACmeeting~ 4/10/10 Public Comment ???

Would YOU wait bedridden for 6 months for a 3 min. public comment?

I was SO Shocked and Personally INSULTED when I saw this that I just HAD to post about it to all of you... Are you AWARE that not ONLY will this be a ONE DAY (instead of the usual 2 ) meeting BUT the Public Comments have been reduced 
to 3min each ( instead of the usual 5 minutes ) AND NOW I SEE that there will 
ONLY be 30 minute IN TOTAL allowed for Public Comment ??? 

That is a HUGE Slap in the FACE to the Constituents they ARE Being PAID to Represent and they won't even give us adequate time to comment ?  I HOPE all commentators have brought FAST SPEAKING Helpers or a prerecorded version 
that they can play in FastForward Mode "chipmunk voice" so that their entire statement  CAN be made.. Sheez.. 25 years of PTSD and now this ???

THANKFULLY, Annette Whittemore of WPi HAS been granted 3 minutes to speak. Hallelujah ~

If the QUALITY of this MEETING is NOT EXCELLENT enough to make up for the lack of time/days allowed... I think it is TIME for there to be a VERY Vocal 
Public Input... I won't say exactly WHAT and to WHOM yet we will be directing
all of our input, (obviously Elected Officials ) among MANY Other PLACES...

I'm talking a HUGE Patient UNITED Campaign... WAY MORE than the CFIDS Assoc has ever done.. as WE WILL BE HEARD THIS TIME .... IT IS TIME FOR THIS 
DISGRACE AND Lack of HELP to those of us that WANT to be WORKING AND PAYING TAXES AGAIN.. Hello ? Help this Economy ?? Do I need to add up for you the MILLION of Dollars/Sterling/Euros that the NEGLECT of the ME/CFS Community has COST not only the USA but the UK and other countries
around this world.. It might be truthfully enough to make a REAL dent 
in the deficit.

But FIRST, some folks NEED to Take the PLUGS OUT Of Their EARS
and "Get a CLUE"...

I *Thought*  we were having a World Recession...TOO BAD they decided NOT to help 28 million people that COULD be Working and Helping our countries... but NO.... We ARE Being ignored and falling thru the cracks and unless this meeting BLOWS the ROOF OFF the Building...because it is SO FANATASTIC.... then our plans WILL be put into action...
Enough is Enough...
We WILL Be Silent NO MORE. Period !!!

Please Be SURE to "Tune IN" on May10th or whatever DAY/Time it is based on your timezone ♥♥♥ 

For further contact:
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Office of Public Health and Science
U.S. Department of Health and Human Services
Hubert H. Humphrey Building, Room 712E
200 Independence Avenue SW.
Washington, DC 20201
(202) 690-7650 (Voice)
(202) 401-4005 (FAX) (Email)

                                    May 10, 2010

             9:00 am
Call to Order

Opening Remarks
Roll Call,

Dr. Christopher Snell
Chair, CFSAC

Dr. Wanda Jones
Designated Federal Official
            9:15 amWelcome Statement from the Assistant Secretary for Health
New Members Statement on CFSAC Interests/Goals
Dr. Howard K. Koh

CFSAC New Members
          10:00amRemarks from Dr. Elizabeth UngerDr. Elizabeth Unger
          10:30amBlood Safety Update on XMRVDr. Jerry Holmberg
          11:00amReview/Update of past CFSAC recommendationsCommittee Members
          12:30pmSubcommittee LunchSubcommittee Members
            1:30pmPublic Comment
(on CFSAC charter)
            2:00pmReview and Discussion of CFSAC Charter and ByLawsCommittee Members

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