#59~ CFSACmeeting~ 4/10/10 Public Comment ???

Would YOU wait bedridden for 6 months for a 3 min. public comment?

I was SO Shocked and Personally INSULTED when I saw this that I just HAD to post about it to all of you... Are you AWARE that not ONLY will this be a ONE DAY (instead of the usual 2 ) meeting BUT the Public Comments have been reduced 
to 3min each ( instead of the usual 5 minutes ) AND NOW I SEE that there will 
ONLY be 30 minute IN TOTAL allowed for Public Comment ??? 


That is a HUGE Slap in the FACE to the Constituents they ARE Being PAID to Represent and they won't even give us adequate time to comment ?  I HOPE all commentators have brought FAST SPEAKING Helpers or a prerecorded version 
that they can play in FastForward Mode "chipmunk voice" so that their entire statement  CAN be made.. Sheez.. 25 years of PTSD and now this ???


THANKFULLY, Annette Whittemore of WPi HAS been granted 3 minutes to speak. Hallelujah ~


If the QUALITY of this MEETING is NOT EXCELLENT enough to make up for the lack of time/days allowed... I think it is TIME for there to be a VERY Vocal 
Public Input... I won't say exactly WHAT and to WHOM yet we will be directing
all of our input, (obviously Elected Officials ) among MANY Other PLACES...


I'm talking a HUGE Patient UNITED Campaign... WAY MORE than the CFIDS Assoc has ever done.. as WE WILL BE HEARD THIS TIME .... IT IS TIME FOR THIS 
DISGRACE AND Lack of HELP to those of us that WANT to be WORKING AND PAYING TAXES AGAIN.. Hello ? Help this Economy ?? Do I need to add up for you the MILLION of Dollars/Sterling/Euros that the NEGLECT of the ME/CFS Community has COST not only the USA but the UK and other countries
around this world.. It might be truthfully enough to make a REAL dent 
in the deficit.


But FIRST, some folks NEED to Take the PLUGS OUT Of Their EARS
and "Get a CLUE"...


I *Thought*  we were having a World Recession...TOO BAD they decided NOT to help 28 million people that COULD be Working and Helping our countries... but NO.... We ARE Being ignored and falling thru the cracks and unless this meeting BLOWS the ROOF OFF the Building...because it is SO FANATASTIC.... then our plans WILL be put into action...
Enough is Enough...
We WILL Be Silent NO MORE. Period !!!


Please Be SURE to "Tune IN" on May10th or whatever DAY/Time it is based on your timezone ♥♥♥ 

For further contact:
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Office of Public Health and Science
U.S. Department of Health and Human Services
Hubert H. Humphrey Building, Room 712E
200 Independence Avenue SW.
Washington, DC 20201
(202) 690-7650 (Voice)
(202) 401-4005 (FAX)
cfsac@hhs.gov (Email)

Agenda

May 10, 2010

9:00 am

Call to Order Opening Remarks Roll Call, Housekeeping

Dr. Christopher Snell Chair, CFSAC Dr. Wanda Jones Designated Federal Official

9:15 am

Welcome Statement from the Assistant Secretary for Health New Members Statement on CFSAC Interests/Goals

Dr. Howard K. Koh CFSAC New Members

10:00am

Remarks from Dr. Elizabeth Unger

Dr. Elizabeth Unger

10:30am

Blood Safety Update on XMRV

Dr. Jerry Holmberg

11:00am

Review/Update of past CFSAC recommendations

Committee Members

12:30pm

Subcommittee Lunch

Subcommittee Members

1:30pm

Public Comment (on CFSAC charter)

Public

2:00pm

Review and Discussion of CFSAC Charter and ByLaws

Committee Members

4:00pm

Adjourn