#51~ Nominate Annette Whittemore for CNN 2010 HERO

Welcome to Spring...my pretties...♥♥♥


OK, Now that we in the northern hemisphere are all getting cheerie 
cuz Spring is here, it's time to finish a project I started at the end of last year...
Back then I was ahead of myself...I guess. Who knew ?


Many of us for the last 25 or so years, many from all over the world have been
frustrated because in the USA the CDC has been either ignoring us 
or mis-naming our illness or using OUR research monies for OTHER projects...


the list goes on and on.. and in the UK they have their own list of abuses and insults by their 
Ministers of Health also and the psychos of the med world that have been given orders to 
corral us like they were part of the cast of "New Moon"...LOL


NO, we don't have the Yuppie Flu, or we are NOT just lazy and tired all the time, and 
YES we have TRIED "Every" blessed test, pill, supplement and therapy you have subjected us to....
well....NO MORE..     You are abusing us NO MORE...
GOT IT ???  We're DONE. We found some REAL Dr's & Scientists that CARE and Honor their Hippocratic Oath.

No, it is NOT "just Chronic" Epstein-Barr Virus, 

No, it is NONE of the many things you tried to pin on us.. 

We are NOT your little voodoo dolls to be pricked poked and

exercised and GET/CBT to the grave and until we are ready to SCREAM....

You have already killed enough of us.. made enough of us GO Crazy cuz of your YEARS of ignoring us, insulting us and abusing us....to the point of PTSD.
We became even afraid to come back and have an appt. with you....
THAT IS VERY Pathetic !!! and in fact, probably criminal....tbd later.

Years of making Families FIGHT in Court to Keep their children because YOU were too lazy to do the REAL research to find out what they REALLY had....Dr. Bell has it ALL documented.

You have given WAY too many of us PTSD from YEARS of unending abuse...

when we trusted you with our very LIVES... we even Paid YOU to help us..

Want a few examples to SEE We're NOT joking or exaggerating at all?  OK.
"NO problem"... we have videos and lists... 25 year's worth..... Here's one of each...



There has also been MANY online advocates that have worn themselves out
or been threatened with additional harassment to the point that the added stress made them stand down for their own health and there is one I would like to
Make sure they KNOW we miss them and I hope they see this video making the rounds... 
and thanks to the creator for speaking for us *Hugs*



One last page I would like to list is a memoriam page for all of those (that we KNOW of) that have passed on before us because of this TOO LONG Ignored 
illness...Here is a short list we have been able to compile from our beds
being the lazy people we are.... 

Thank You Andrea Martell for putting this BRC4ME site together.

Blue Ribbon 4ME Memorial Site

So FINALLY a New Millennium has arrived and YES even a New Decade and we even have NOW 
our VERY OWN Institute started because as the old movie Network said 
"I'm mad as HE**, and I'm NOT going to take it any more."

So this courageous woman and mother became Founder and President

of an Institute "devoted" to ignoring all of the nay-sayers ALL OVER THE WORLD,

and with a single-minded purpose established a non-profit organization in the USA called a 501C3 and teamed up with the University of Reno negotiating for some grants and room to get started using their lab years before "their building" was even started or a shovel turned.... and Voila ! 

We HAVE the


Whittemore-Peterson Institute for Neuro-Immune Disease<--Mouse OVER for WPI Link.

by jiggers.... someone I think that's really "got it" !!!! They UNDERSTAND ♥♥♥

And here is a little background history for those that haven't been with us here
for the last few years, a video, so you can meet the other participating partners

helping DO the Research and flip all the switches backstage like the Wizard of Oz.

PLEASE BE SURE TO WATCH BOTH PARTS OF THE VIDEO TO THE END...
and KEEP in Mind that this was "just 2 years ago" and NOW already
they have "accomplished Scientific HISTORY" published in Science magazine
regarding the 3rd HUMAN Retrovirus XMRV with a link to CFS ...
...and Seriously ... The Do NOT even HAVE their OWN LAB YET folks....think about it...seriously.. THAT takes Dedication !!!
They are still building it.. So this is cutting edge and they NEED
Research AND Building Fund Raising so they can provide EVERYTHING
you will HEAR in these 2 videos, OK? Thanks.....

Part #1~


Part #2~


Their website even says on their front page....
"NOT for the lazy buggers" BUT

“The Whittemore Peterson Institute for Neuro Immune Disease exists to bring discovery, knowledge, and effective treatments to patients with illnesses that are caused by acquired dysregulation of both the immune system and the nervous system, often resulting in life long disease and disability.”

May they be Blessed by Every God by Every Name..... 

And especially the LADY, the Mother, the Woman that is it's Leader 
and Face to the World for us..... Annette Whittemore... 

OUR HERO for 28 million people worldwide.....

That IS.....SO Far..........more testing to determine actual totals

                         

 I started early at the end of last year and asked on Facebook who would like to 

Join me and Name her Mother of the YEAR for 2010 and the number of Facebook

members that joined in was amazing....

NOW I see there is this CNN 2010 HERO Contest and I said... well...

She OUR HERO...absolutely not even ONE question about THAT....

So Let's get cracking mates and get this BRAVE Lady that has stood UP

for ALL of us "Far AND Wide", has Campaigned in Washington DC for us.

Has spoken in front of the CFSAC meeting for us... If there is ANYTHING

she could/can do for us she would and WILL... make NO Bones about that....

So let's ALL Join together and FILL OUT Those CNN 2010 HERO Forms and 

Help get her OFFICIALLY  Named the 2010 HERO, OK?

Remember it's NOT just for us, but for the Millions that have already gone on
ahead of us, and those that will come after us... we MUST DO OUR PART
as she has done her's... to also Help Bring more Publicity to our illness
and Research monies via the PR to WPI to help our cause....





HELP ME Nominate her for CNN 2010 Person of the Year !!! by using this link:
http://www.cnn.com/SPECIALS/cnn.heroes/nom/

For this contest PLEASE use the WPI contact info for her address and phone and email, as she IS the President there, they can contact her thru the Admin offices there...OK?


If needed her Birthday is April 26, 1952.
For the forms: contact info....

Annette Whittemore
Whittemore Peterson Institute
6600 N Wingfield Pkwy
Sparks, NV 89436
(775) 348-2335
email: info@wpinstitute.org


Annette's Pres. message from
WPI :http://www.wpinstitute.org/about/about_presmsg.html

I think the rest of you KNOW how to express how what she has done and how it has changed our lives this year 'so far' after waiting 25 years for the CDC

or "someone" to do SomeTHING... we...can NOW with this little thing to try in some small way to THANK Her..

For the FIRST TIME after ALL of these years.. HER WORK has not only given us a medical reason to undertand WHY SO many of us have different symptoms YET "just how" they ALL fit together and WHY. 

NOW we can see HOW BIG our Family of sufferers REALLY is....

There is even some PROOF that XMRV is also a source of Gulf War Syndrome.. So the soldiers have fought for the country, and then come home and "Join US" and fight this INSULT, especially in the way the Medical Profession.... EVEN those at the Veteran's Admin. has been mistreating the military that already given above and beyond.... 

Annette is as BRAVE and any Soldier... She IS OUR Hero !!!

She WILL Fight THIS WAR.... until this WAR is WON...and you KNOW there is NO Question about THAT... no reason to even question it.

Can you at least Help our Cause by Nominating her for this 

Worldwide Honor and THIS is a Worldwide Illness ???

YOU know she is deserving and has been ALREADY Fighting right there

in the trenches along with us.. in fact, she was OUT THERE when we were stuck in bed...and couldn't get out into the trenches.. 

Bless you and "Thank YOU" for Helping us Nominate

such a Loving Worthy Humble Deserving Lady and Mother to US all....

We all LOVE you Annette and everyone at WPI......♥♥♥♥♥  
You have "Inspired US" and Given us back our HOPE 
that was LOST and forgotten for SO many years!!

#50~ CFS says BBye Reeves at CDC, ~ and Mikovits/Bell videos

My, my... there has just been TOO much News and for once "This is a GOOD Thing" my relapse from the excitement tho.. not so good.


Since my last post we have had 2 BIG Lecture/Presentations (videos below) and FINALLY after YEARS of Disgust and "United Complaints" one of our Goals to help our Research in the USA move Forward and be led by a Scientist that KNOWS something is almost
here....

"Change of leadership" ANNOUNCED for **CDC’s ~ CFS Research Program**

**********************************************************
The U.S. Centers for Disease Control and  Prevention (CDC) has announced that Dr. William C. Reeves, head of the agency’s CFS Research Program, will be taking a new position within the agency
effective Feb. 14, 2010 (Happy Valentine's Day)
and that "he will no longer lead" the agency’s CFS research. 

Dr. Elizabeth Unger will serve as  "acting chief" of the Chronic Viral 
Diseases Branch, the unit within CDC that houses the CFS Research Program. On Feb. 14, Dr. Reeves will begin an assignment as Senior Advisor for Mental Health Surveillance in the Public Health Surveillance Program Office within the CDC’s Office of Surveillance, Epidemiology, and Laboratory Services.

Do we need to actually mention just HOW hilarious this actually IS ?

For YEARS, he has been the one to say that WE were ONLY depressed and that there were NO biomarkers for CFS, when actually HE was probably the ONLY one that believed thatand needed "Mental Help" as he has been in Total Denial of the Truth for many decades and could USE

some Mental Health Intervention himself...  LOL

**********************
Bio of Dr. Elizabeth R. Unger

Unfortunatley, like Dr. Suzanne Vernon now with the CFIDS Association, 
Dr. Elizabeth (Beth) R. Unger PhD, MD  was originally doing research for the CDC in Human Papillomavirus Program which was under Dr. William C. Reeves. (Hopefully HE didn't have much influence over her thoughts and she kept an Open Independent Mind.)

A native of Pennsylvania, Dr. Elizabeth  R. Unger received her bachelor’s degree in chemistry from Lebanon Valley College (Annville, PA). She received her doctorate in experimental pathology and medical degree from The University of Chicago. 

After completing her residency in anatomic pathology at The University 
of Chicago and The Milton S. Hershey Medical Center, Pennsylvania State University, she was certified by the American Board of Pathology in 
Anatomic Pathology.

She was a post-doctoral research fellow of the American Cancer Society and The W.W. Smith Charitable Trust in the pathology department of The M.S. Hershey Medical Center and joined the faculty of the Emory University School of Medicine as an academic surgical pathologist in 1990. While there she was involved in several studies associating 
EBV with various cancers.

She accepted a position at the Centers for Disease Control and Prevention in 1994 and became the Team Leader of the Human Papillomavirus (HPV) Program in the Viral Exanthems and Herpesvirus 

Branch of the Division of Viral and Rickettsial Diseases, National Center 

for Infectious Diseases.

Dr. Unger’s research interests have been in molecular diagnostics, viral oncogenesis and molecular epidemiology and she pioneered colorimetric in situ hybridization methods for detection of HPV in diagnostic
samples. The HPV program utilizes a multidisciplinary team to conduct 
laboratory-based epidemiologic research to inform control strategies to reduce the incidence of new HPV infections as well  as the major HPV-associated chronic diseases such as cervical cancer and recurrent respiratory papillomatosis. They worked with the National Cancer 
Institute’s Early Detection Research Network to discover and validate novel molecular markers to improve cervical cancer screening.

In 2000, she first appeared as an author on a CFS study. Chronic fatigue syndrome is not associated with expression of endogenous retroviral p15E. Gelman IH, Unger ER, Mawle AC, Nisenbaum R, Reeves WC.Mol Diagn. 2000 Jun;5(2):155-6.

(huummmm....)

Dr. Unger is a member of the College of American Pathologist’s 

Committee on Molecular Pathology and a founding member of the 

Association for Molecular Pathology. 

She is on the Council of the American Society for Investigative Pathology and The Histochemical Society as well as a principle scientist with the 

American Society of Microbiology. She has served as an advisor to the 

FDA and WHO on HPV testing and vaccine issues. She is on the editorial board of four journals including Technology in Cancer Research and Treatment.

Centers for Disease Control and Prevention 

1600 Clifton Rd Mail Stop G41, NE
Atlanta, GA 30333.
Div. of Viral and Rickettsial Diseases
E: eru0@cdc.gov 

We PRAY she will be True to her Hippocratic Oath, unlike her predecessor. May we send her *Good Thoughts* this Valentine's Day and HOPE that she will be ever searching for the REAL cause of this nasty

disease and Help us and the  Entire world eradicate this  illness that is ruining families as well as individuals and costing ALL of our countries economies & families TONS of $$$ in loss of productive energy as we ALL

WANT to be Healthy and able to work and FEEL like functional humans

again... We are NOT "simply depressed." WE have many thing we WANT to do.. May she HELP us reach that Goal.

*********************************************************

ON a Lighter note..  a "non-commercial break here" 
to Remind you.. that  People ARE getting BETTER right now
from this illness because of the Research that is being done... 
so KEEP Dreaming and Keep wishing... and your Dreams
WILL be answered.......

**********************************************************
Now for the Santa of CFS ~ God luv him ♥

 "XMRV retrovirus and CFS,  ME (Myalgic Encephalomyelitis), 

Fibromyalgia and aggressive prostate cancer" 

David S. Bell, MD, FAAP, a Harvard graduate, with an MD degree from 

Boston University School of Medicine in 1971 has come out of retirement to lecture and research XMRV (xenotropic murine leukemia virus-related virus).

The U.S. Dept. of Health and Human  Services appointed Dr. Bell to "Chair" the CFSAC committee from 2003 - 2005.

Dr. David S. Bell's XMRV Presentation
from Barborka on Vimeo

********************************************************************
On January 22, Dr. Judy Mikovits, PhD, director of research for the 
Whittemore Peterson Institute for Neuro-Immune Disease, conducted 
a 2½-hour XMRV seminar in Santa Barbara, CA.

The patient-oriented event was sponsored by the HHV-6 Foundation 
and ProHealth.com, and was introduced by WPI Founder and President 
Annette Whittemore.

This highly informative presentation and Q and A cover a multitude of intriguing details and plans that patients and researchers worldwide have been speculating about for months, since discovery of the XMRV retrovirus in ME/CFS patients’ blood was reported last October in the journal "Science."

Please BE Prepared to Concentrateso put your legs UP and get comfortable.  You can replay this later to take notes 
if you wish.... Just Listen this 1st time.


Dr. Judy Mikovits XMRV Presentation
from ProHealth on Vimeo



Dr. Judy Mikovits XMRV Q and A
from ProHealth on Vimeo

There is even MORE news to Come...but that is ALL I will put in this post.
So let this soak IN and then we will move on to the next set of news releases, OK?

If you have any opinions or comments to share..Please DO.. and PLEASE
SHARE the videos with your friends & family that need to learn MORE
about what ME/CFS is and what the discovery of XMRV means to us.

#49~ Wake UP Kaiser, HMO's, AMA & medical schools

I am writing today's post because I just found out about something that
in light of recent medical news, events over the last 4 months, have been such a game-changer to 4 million Americans, and the 28 million worldwide and today I find out that KPMG aka Kaiser Permanente Medical  Group an HMO throught-out the USA is NOW in some of its facilities NOT going to be replacing the Rheumatologist/Infectious Disease MD's and is referring their ME/CFS patient back to their Primary Care MD's.

What the Heck is this ??? Going backwards in Medical Care?
SHAME on you Kaiser...   Henry J. would be ashamed of YOU..

NOW when ME/CFS patients are mostly likely being shown to have
a Retrovirus, you are dumping them  back on their GPs ???



Hope you have MANY hours of CME credits planned for them to
(continued medical education) take to come UP to speed and
Suddenly turned INTO RetroVirology Specialists ??
Wouldn't it be MORE Practical to have at least ONE Virology MD
on your Staff? Who treats your AIDS patients now ??? 
That's a Retrovirus also, in case you forgot...???

..as recently come to light, to the "public," but LONG-KNOWN by
the long suffering patients, the regular MDs that most of us have
learned to TRUST over the years have NEVER BEEN Educated about
ME/CFS and the Professors that try to educate the Medical Groups
around the country/world have been threatened with Termination and
others already have been.
Even future medical students have testified that they KNOW ME/CFS
is REAL yet they fear they will  not be properly educated about it and
will be threatened if they even discuss it as others in medical schools have been.

This info has been documented  and presented to the CFSAC meeting
(under the HHS.gov) webcast LIVE and it has been backed up by other testimonies and the experiences of many patients because " your average Joe MD" has NOT been taught about this disease
and has been advised to pigeon-hole everyone with a "Psych label" and
told that it was "all in your head" when there IS actual clinical criteria
(SEE Dr Donnica's article below) and forms of testing that can PROVE
that this illness is REAL and yet Kaiser in this 21st Century, who pays for these TV commercials about how much they care about you ONLY cares about their bottom line..
Another example of a Health  Maintenance Org. that is ONLY
trying to maintain THEIR Financial health..not your physical/emotional
health ~ NOT yours...



"Chronic Fatigue Syndrome (CFS) has received relatively little consideration since it was first described in 1988,  but the recent finding published in the prestigious journal Science showing an association between CFS and a retrovirus, XMRV has focused media and medical attention on this serious, devastating and debilitating neuro-immune condition.

While there are some people with CFS (PWC) who are able to continue
working and doing some of their activities of daily living, there are
many at the opposite end of the spectrum who are bed-ridden,
completely disabled, and can’t even get to the bathroom without assistance. While CFS doesn’t kill many people, it does take away their lives and, in many cases, their livelihood."

Excuse me, but because of the PTSD and many YEARS of Mental abuse 

perpetrated by the Medical Profession upon these victimized patients

trying to honestly get HELP and Medical CARE from their Dr's they are "suppose to  be able" to TRUST.. that have sold them down the river, caused their families YEARS of unnecessary mental and financial abuse, bankrupted families because of the Court Costs for parents of children with  ME/CFS having to PROVE that they are 

"fit parents" cuz the kids are too sick to attend school and the DSW

shows up at their door.... and MANY other abuses over the years..

I am sorry to say that there are MANY that havd died because of 

ME/CFS, just as we have had soldiers commit suicide from the PTSD from the sites of war...Well, many patients with ME/CFS have PTSD from

the years of Medical abuse and  I am sad to say that Suicide is a Sad but 

Often END to the Abuse and Pain.

Disagreements over how the condition is dealt with by health care systems has resulted in an expensive and prolonged conflict and the EARLYDeath of many patients...

(Dr. Donnica 12/02/2009 article)

KPMG this current plan on non-action on your behalf I fear is a step backwards for the medical profession and will cause patients to trust their Dr's even LESS... and show that YOU are NOT staying "current" with what is already known WorldWide and ignored by you like an
ostrich sticking your head in the ground to play ignorant & play Dumb ?
If you are Ignorant of This Game changing News.. Please avail yourself of the MANY places the info has been posted.. maybe
even watch the CFSAC Meeting ?May I suggest you WATCH BOTH Days?

Many ME/CFS patients would LOVE to be able to GO back to work  or work from home online and Have a Life again and even be able to Pay Taxes...Why are you NOT Helping this country by Helping it's citizens have better health care so we can work?

And SHAME on the AMA and whoever is  in charge of the Rules governing the Medical Education and Schools in thisCountry... You are definitely complicit in this cover-up and "intentional"lack of education and thus trauma you are and have been causing the millions of ME/CFS patients that you have been shoveling over to the Psych Dept when they have a VERY Real Biological Disease that is NOT "all in their head."

YOUR illusion that this will "go away" and that we will NOT stand UP to you and demand to be treated like HUMAN and not the mice that passed this retrovirus on proves it is all in YOUR Head... WAKE UP..

In fact, the Blood Supply of the Country and World needs to be screened just as it was for HIV and the Dr's on the  CFSAC Committee have even passed that VERY same Recommendation on to the Secretary of the HHS so we will NOT have another "an the band played on" situation like we did during the 1980's with HIV being passed on to many people
having transfusions...not to forget all of the organ and tissue transplants.

WAKE UP KAISER ~ WAKE UP Citizens~ WAKE UP HHS Sec. Sebelius~
WAKE UP CDC & FDA~ WAKE UP MD's around the world~
WAKE UP Minister's of Health~

Ignorance we HAVE a Cure for.. but Stupidity we do NOT...
If you choose to NOT educate and teach about a subject, WHY should we TRUST you? Trust needs to be EARNED. You are currently Losing it....
SHOW us you have the Guts to Be Honorable and Live up to your
Hippocratic oath of "Do NO Harm."





I am asking everyone that is reading this to either write to their Congressional Reps, Ministers of Health, HMO's, Letters to their
Editor, anyone they can think of and MORE to bring this subject to the forefront.

How many poor patients of catastrophe's are going to receive transfusions w/o knowing if the blood they receive has  XMRV in it ?? that they might develop one of the MANY Neuro-immune diseases 

or Cancers that  is linked to..

Why do you think Michael Jackson had to HIDE the fact that he had 

Lupus and Vitiligo... because the  medical world had NOT done their 

part to learn and educate themselves and the public so that this GREAT

Star did not have to live the Life of a Recluse as do many of the patients

with other neuro-immune diseases.

WE understand the problems he HAD sleeping because we have them 

ALSO. We understand the Stigma the CDC and medical profession

had imposed on these patients...

Not to forget the PTSD they have inflicted on them by abusing their

Trust and sending them to Psych....SHAME on you.....

You have made their illness WORSE by your action/OR "Lack thereof" and you HAVE caused HARM.

Why wait for Big Pharma to invent a  med to treat EACH and every illness Choose to Back the Researchers that  are Helping to find the Cause and Cure these diseases... such as in the USA...  
the WPI in Reno, NV.

WRITE THOSE LETTERS...  Give to the Researchers...
Speak UP and Question.     It's YOUR Life.. Keep it ♥

#48~ Maybe I'll do a 3 day Medical Study & Publish it?

If psychiatrists can research retrovirology,
and publish medical research papers on 
the same Hey..maybe I can also?  

Heck, why don't we get
a few photographers in, a philosopher 
or two and make it a real party. Not to 
mention an astronomer, a comedian and 
an arborist to keep it balanced! 
Anyone else in?  Look how much 
"media" attention it would get! 

Aren't you TIRED of listening to False

BAD news every day? Let's go 

"on Strike" and only watch/read

THE GOOD NEWS & The TRUTH

from Now ON.. and "Most Importantly" 
Expose the Imposters & Scammers, OK?

Earlier this month that's exactly what
happened in the U.K. regarding a VERY
Important Medical Issue of 
World Importance.

As opposed to waiting for the REAL
Medical Researchers to complete a
REAL study that would replicate the
findings of a new Retrovirus that has
World Health implications...
...tiny minded folks in the pysch
community tried to whip out a
3 day study & write a paper...

When knowing that to do "REAL Research"
takes TIME and meticulous repetition of
not only the EXACT technique originally
used, but also looking for the same strain
of the retrovirus, and using a pool of
test subjects that have been
drawn from the SAME diagnostic criteria
as the original study was...
or else.. 

this Imposter is just THAT..
..and TOTAL SHAM and a disgrace out 

there to the REAL Psychiatrists that are
trying to do some REAL help for their
patients.. 

Especially, if the psychiatrist
that in this study has been previously
involved in muddy situations of possible
child/patient abuse in the past.

And SHAME on the Newspapers &
Magazines and ezines that have so quickly
"jumped onto" this story instead of doing
PROPER "Investigative Reporting."
Obviously, these issues are what we
call in the industry "rags" and not really
producers of Real NEWS, but rather
gossip and BS attention headline grabbing
garbage.... which result in articles that
match the quality of the 3 day study paper
they were "supposedly" reporting on..
aka "Garbage IN = Garbage OUT."

It's HARD enough to get the money
to get REAL Scientific Research funded..
We do NOT need to waste time nor money
for these sham studies or give them ANY
Credibility.... When you read an article,
read the "fine print" also... the details of
who was involved in the study, did they
use proper techniques and reputable
research partners and take the proper
amount of time and use the proper
controls of whom was involved in the
study ??

Just like everything else in life
"Caveat Emptor" = Buyer Beware.
BE an Informed Reader/Patient
/Traveler/ whatever the topic du jour.

My friend that was a reporter taught 
me WELL..
Just because something is in Print
does NOT mean that is it TRUE...
Just because you hear on the radio
doesn't mean it's TRUE...
Just because you read it on the
internet doesn't mean it's TRUE..
Seeing a pattern here?
You mean to tell me you believe every
stupid commercial and ad you read ??
I don't think so....
Unless you are a scammers Dream?

with THAT.. I will give you the Statement
provided from the Original researchers
that did the Original Study that also
collaborated with the Cleveland Clinic 
and the USA National Cancer Institute.

*******************************
Official Statement from the 
Whittemore Peterson Institute 
Regarding UK Study
 
Wednesday, January 6, 2010 at 1:00pm
FOR IMMEDIATE RELEASE

Frankie Vigil
R&R Partners for
Whittemore Peterson Institute
775-336-4555
frankie.vigil@rrpartners.com

Official Statement from the 

Whittemore Peterson Institute 

Regarding UK Study

The Whittemore Peterson Institute (WPI) 

has reviewed the paper entitled 

“Failure to Detect the Novel Retrovirus 

XMRV in Chronic Fatigue
Syndrome.” This study did not duplicate 

the rigorous scientific techniques used 

WPI, the National Cancer Institute and 

the Cleveland Clinic, therefore it cannot 

be considered a replication study nor can

the results claim to be anything other 

than a failure not just to detect XMRV, 

but also a failure to suggest 

meaningful results.

The scientific methods used by WPI are
very exact and require specific techniques
 to ensure accuracy. Differences in
techniques employed by Erlwein et al.
not only explain their failure to

replicate the WPI study, but also render 

the conclusions meaningless.
These differences include, but are
not limited to the following:

1) blood sample volumes and processing;
2) patient criteria/population differences;
3) number and type of tests done to assure
       accurate results, including white blood 
       cell culture;
4) use of a molecular plasmid control in water
       versus a positive blood sample; and
5) different primer sequences and 
       amplification protocol used to find 
       the virus, which were not 
       validated by a clinical control.


The WPI study was published after 

six months of rigorous review and three 

independent lab confirmations, proving 
that contamination had not taken place 
and that infectious XMRV was present in
67 percent of CFS patients diagnosed 
according to the Canadian and
Fukuda criteria. 

In contrast, this latest study
was published online after only three days
of review. Significant and critical questions
remain as to the status of patient samples
used in the UK study as those samples may
have been confused with fatigued psychiatric
patients, since the UK has relegated
“CFS” patients to psychiatric care and not
traditional medical practices.

“Little is known about the prevalence of
XMRV world-wide, much less the incidence
of XMRV in ME/CFS or prostate cancer”
emphasizes Dr. Judy Mikovits.
“WPI and its NCI collaborators are actively
engaged with international research teams
to investigate these important questions.”

WPI does not recommend the use of
anti-retroviral drugs that have yet to be
proven to be effective in treating XMRV
infection. However, several large
pharmaceutical companies have expressed
interest in developing anti-retroviral and
immune modulating drugs that will
effectively treat XMRV associated 
diseases.

WPI looks forward to the results of other
scientific groups around the world, 

serious about replicating its scientific 

results, by using the same techniques as

WPI and its collaborators. The fact that 
XMRV was detected in 67 percent of the 
CFS samples in the U.S. study determined
a significant association between XMRV
and CFS, demanding a much more 

serious inquiry by responsible health 

agencies around the world as to the 

cause of this debilitating disease.

-###-

Whittemore Peterson Institute
The Whittemore Peterson Institute for
Neuro-Immune Disease exists to bring
discovery, knowledge, and effective 
treatments to patients with illnesses that
are caused by acquired dysregulation of 
the immune system and the nervous 
system, often results in lifelong disease
and disability. 

The WPI is the first institute in the world
dedicated to
X associated neuro-immune disease 
(XAND), and other X associated diseases,
integrating patient treatment, basic and
clinical research and medical education.
*******************************

Wouldn't the world be in even a worse 
mess if all the people from different 
walks of life could do a 3 day Medical study
and then publish them as if they were 
Medical FACT, while trying to negate the 
work of the Real Scientific Researchers
that have devoted their lives to doing 
REAL WORK in any certain specific field
of Medical Research ?

Besides the Investor Scammers let's

start throwing a wider net and keep 

and eye Open for the Scammers in

other areas of life that are also

Important to us also....like our Health !!!

Doesn't matter WHAT country or 

continent they are from... wrong is 

wrong.

As one my old Favorite movies use to say:

"I'm MAD as Hell and I'm 

NOT going to take it any more."

#47~ SHOW your Support- add a Twibbon 2 UR Avatar ♥

As my 1st project for the New Decade

I have created 2 Twibbons for you to

display on your Avatars to “SHOW”
your support- as actions
“speak louder than words.”

The purpose is not to look pretty but to
provide a "visual demonstration" of
Solidarity in our struggle to :

a) see ME/CFS recognized internationally as
a disease with a physiological pathology, and

b) to promote awareness of the need for
further ACCURATE...and RELIABLE
research and replication studies.

You can Add a Twibbon to your
Twitter and/or Facebook Avatar~
For Twitter just follow the directions
on the the page as is…

If you ONLY want the Twibbon
on your Facebook Avatar please
Follow the directions below:

#1) There are 2 sizes AND angles
       to choose from

#2) after you decide, then click
        the Facebook "tab"

#3) Sign-in to Facebook

#4) Deny permissions to allow
         them to share

#5) Preview and "move" your Ribbon
around on your avatar to where you want it,
remembering that when your avatar is “small”
as in “comments”...the edges will get cut off..
so center it a bit if you can , OK?

#6) Complete the process....Hopefully success!
Please Enjoy and PROUDLY Spread the Word!

Inspired by 2 ladies whose names start with "A"

Please "Share" this around, let US see a
few of you wearing it! and SEE some
Solidarity out there for
ME/CFS/FM and XMRV, OK?

http://twibbon.com/cause/XANDXMRV/Join
(for Right shoulder)

http://twibbon.com/cause/brc4ME/Join
(for Left shoulder)

I will add these links on my Right Side column
also for those that might be wanting to
Access these later when this post is
Further down the “older post” section..
As I expect this Campaign to GO ON
Until we ARE Successful, capiche ??

We need to Saturate the Avatars all
Over Twitter/Facebook and all other
Social media with Avatars so people
Will eventually associate the Blue Ribbon
With ME/CFS/FM and XMRV as they
Do now the Pink Ribbon for breast cancer.

The “public” is a bit distracted right now
So it will take time and a LOT of
“ground-UP” work by us to INFORM
them ….via every means possible..
blogs, letters to your Gov’t Rep, to
your local newspaper, replying to
every news ezine that prints anything
that calls for us to INFORM them
“Correctly” of the TRUTH…
USE your Avatar EVERYWHERE...

Thanks for Jumping on Board this
PR wagon and SHOWING your support.
For your friends on other boards that
also use avatars and want to support us
you can send them the url for this blog
and they can access the links for the
Twibbons via this page …

I'm REALLY Getting Excited about ALL
of the New Activities as we Ramp UP
The Research and Get Ready for the
"2010 Awareness Day in May" this year..

So we are starting Early so everyone
Can be participating NOW and help
Spread the Word..

This is just the First step in our PR
Campaign Blitz, so jump on board NOW
So you don’t get “behind” and ride
This Info train with us this year
As we help spread the word about
Finding a “Cure 4 ME” and
Informing the World about XMRV.

56 Million hands clapping..
in Thanks...

If you have any other PR ideas
for this year's Campaign PLEASE
feel FREE to share them in the 
Comments section Below..OK?
Feedback is always appreciated
and encouraged...

** Gentle Hugs**

#46~ HERO of the YEAR - charity & research

As we end~ this 1st decade of this new 
millennium I would like to Dedicate this

last blog to a Charitable Organization

that has been the Source of MUCH

HOPE and Research News during this 

last year.... They get my 

"HERO for 2009" Award.... the 

Whittemore Peterson Institute

located on the campus of the University
of Nevada at Reno. 

Within the last 4 years "from an idea 
to formation" to doing actual
*Ground Breaking Research* solely with 

Private donations and grants has been 

nothing short of a Miracle for "more than"
28 Million people Worldwide.. that 
suffer from neuro-immune diseases
and have been "be-littled" and told these
illnesses were "all in their head" 
for YEARS.

The WPI's discovery of the link between

ME/CFS and XMRV- the ONLY 3rd known 

Retrovirus to effect humans, has effects 

and ramifications that HAVE YET to be felt

and dealt with around the world. 

EVERY Countries' BLOOD SUPPLY needs 

to be "screened" for this, ASAP !!! just 
like they are for HIV, the last retrovirus 
discovered that also effected 
immune systems.

I watched the online webcast of the 

NIH- CFSAC meeting at the end of Oct

and cried with Joy and Validation along 

with 400 others from around the world 

as we bonded LIVE via Facebook...

We even, for those that could not 
view RealPlayer, had to do a sports-like
play by play report of what was taking 
place. We watched Dr. Peterson's 
Presentation and Annette Whittemore's
Testimony on behalf of the millions
of us that have suffered with it for 
over 20 years , not to forget the many

that have already passed away because

they could not take any longer the 

disgrace & stigma the CDC has labeled

us with and the financial & emotional

ruin this has caused many families...

Dr Bell's testimonies of what families

that had young children with this and 

their families went they as they could 

NOT Dr's to validate their illness and 

thus cause the families to resort to be

submitted to the Family Social Service 

System and go to Court to be able to 

even KEEP their own children, was just

literally appalling...and took some

families UP to 10 YEARS to settle

these cases... THIS HAS to STOP NOW !

In the USA this is a Total disgrace.

I am chosing this time also to write 

this particular blog topic, in memory of 

my stepdad that at the end of the year

always wrote out all of his donations to

charities that he wanted to donate to that 

year..so it could be listed as a 

"charitable deduction" on his taxes before 

the end of the calendar year.. 

I would like to Remind those of you in 

the USA that the WPI "is" a 501c3

and qualifies for such deductions..

If you ONLY give to one charity this year

I BEG YOU Please Give to WPI....

I will share with you Now the letter from
Annette Whittemore as this year ends..
and then I will give you info about where
you can send in your charitable donation
to a Place that has already done SO MUCH 
for the Spirits and Hopes of SO Many ♥

Bless Dr Peterson for all of his YEARS
of help and support and persistence
to help find a cure for ME/CFS folks..


Bless Mr. & Mrs. Whittemore for chosing
to "back him" and help FORM "WPI."
and deal with all of the legalities to 
form the 501c3.



Bless Dr Judy Mikovits for coming to 
work for WPI and dedicating her life
and energies to research to help us.

*******

Letter from Annette Whittemore

December 19, 2009

Dear Friends,

On behalf of all of us at the Whittemore 
Institute, I hope this holiday season finds 
well. While 2009 has been challenging for 
so many of us, this year saw unprecedented 
progress at WPI: progress that would not 
have been possible without you.

The unquestioned highlight is our joint 

discovery of a retrovirus, XMRV, in 

patients with chronic ME/CFS. 

Through collaboration with the National 

Cancer Institute and the Clinic, 

Dr. Judy Mikovits and her research 

colleagues were able to discover this 

retroviral link. Our findings were 

published in Science, one of the world’s 

leading journals. This groundbreaking 

research has been reported around the 

world. You may have seen our coverage 

in the New York Times or The Wall Street 

Journal, or seen or heard it on 

Good Morning America or 

National Public Radio.

This discovery will lead to diagnostic 

tools using reliable biomarkers of disease,

and is a major step toward identifying 

drug therapies, and potentially a vaccine.

Laboratory testing for XMRV has already

been made available to patients. 

We have been overwhelmed with words

of support and encouragement from 

patients around the world who have a 

new hope, and a very real validation 

of their suffering:

“I had the honor and excitement of 

watching the live broadcast of the NIH 

presentation of your research... I quietly 

cheered as Mrs. Whittemore gave her 

speech about the sufferings of those of 

us with ME/CFS. Thank you so much for 

your bravery and persistence in fighting 

this disease.”
Kristi H.

“I do not have words to thank you for 

the work you have done. It has now 

been 30 years since I fell ill and I truly 

never thought I would see the day 

this terrible knot was untied.”
Christina M.

This discovery has brought worldwide 
attention to WPI, and to the University 
of Nevada School of Medicine, our home. 

Next summer we will be moving into 

the new Center for Molecular Medicine: 

a move that will expand our research 

capacity as well as opportunities to 

collaborate with other great researchers 

and institutions. You can see the new 
building taking shape on the Nevada 
campus right here in Reno.

Our 5th annual "I Hope You Dance" 
fundraiser was a great success, and 
guests heard a moving preview of the
XMRV discovery from one of our friends 
and scientific advisors, Dr. Carl Ware of 
the La Jolla Institute of Allergy and 
Immunology. That we have partners the 

caliber of Dr. Ware is a testament to the 

high quality of the work at WPI. 

That we have reached this level of respect
in such a short time is a testament to the
generosity of people like you.

There are millions of Americans suffering 

from ME/CFS, a debilitating acquired disease 

that often leaves its sufferers too ill to 

leave home; alone and without a source 

of income or health insurance they begin 

to lose hope that a better day will come. 

Countless others around the world suffer 

from diseases such as MS, autism and 

fibromyalgia without treatments for the 

underlying causes of their disease. 

Our research is literally changing the field 

and expanding the network of researchers 

and clinicians who want to help further this work.

Although we have accomplished much 

this past year it is only the beginning of 

our quest for answers to neuro-immune 

diseases such as ME/CFS, autism, MS, 

fibromyalgia and others that affect both 

the brain and the immune system.

The word is out about WPI and we have 
the focus of hope for so many patients who 
have longed for the proper diagnosis and 
care of their conditions.

“Thank you from a grateful CFS patient. 
I am a single Mom who has suffered from 
CFS for 18 years. It has left me frequently 
bedridden, unable to work and dependent on 
Social Security for most of this time. 
My children, family, and I have hoped and 
prayed for such a find for all of these years.”
Ann S.

Now, you can join me in this vital 

groundbreaking work which is being done 

right here in Northern Nevada. 

Doctors and patients, the world over, are 

watching and waiting. We are thankful to 

friends like you to help make this vision come

true for the countless patients who suffer.

Thank you for thinking of us as we end a truly
productive and thrilling year. I wish you and 
yours peace, health and happiness today, 
and as we look to the year ahead.

Sincerely,
Annette Whittemore
Founder and President 
***************************

PLEASE Share this article with any of

your friends that have a neuro-immune

illness and any of your friends that

still need to make their year end 

charitable donations made in time..OK?

Simply click on the WPI link and 
it will take you to their website
and the page on which you may
Donate via Paypal and it also has
their address in case you wish to 
write a check and mail it to them..
This will also give you a chance to 
check out their website and read
about all of the research they 
are working on..

WPI-Donate

Since the WPI has brought the 
"feeling of the Sun" back into many 
of our Lives.. I dedicate this song to 
them  to represent this coming year...

Bless you ALL and may we ALL have 

a Happy Healthier next Decade !!!

#45~ Happy Holidays and More CDC bad news

*Report finds "Poor Ethics" 

policing at CDC*

By MIKE STOBBE (AP) - 18 hours ago
(see link below)


Many of us have "ALREADY" known about 
this with regards to ME/CFS,  "and" I am 
Glad that maybe with our CFSAC meetings
a little more light has been shed on the 
shananigans that have been running
rampant at the CDC for WAY TOO LONG
now... I will ONLY be giving you tidbits

of this article to wet your whistle as a 

Promo teaser so as NOT to abuse any
© infringements, AND because I want

you to read the article, OK?

I feel after you read this article I HOPE

it will motivate you to WRITE those letters

we have been talking so long about to 

President Obama with CC: to ....

Sec. Sebilius of HHS, the Surgeon General,

Your Federal Senate & House Reps, Your

State Governor, Rep. Rosa DeLauro, D-Conn.

Please also remember the "shadie" 

History of the CDC that has ALREADY 

been documented AND "investigated by 

Congressional hearings and the GAO" 

and reported in the Osler's Web Blog....

In case you forgot or Never Read the 

corrupt history please read THIS First

then the New article from yesterday, OK?

 and now on to some article tidbits:

ATLANTA

"The government's top public health 

frequently failed to police its outside 

experts for conflicts of interest, 

according to a new government report 
released Friday."

"The report concluded that the CDC 

failed follow-up with some of the

experts who disclosed potential 

conflicts: 

85 because of jobs or grants, 

28 with stock ownership and 

13 who received consulting fees."

Ok, that's all I can tempt you with...
but please read the other History FIRST
and then read this "in context" so you
can see that this is NOT a new issue
and WHY the entire CDC needs a 
HUGE OverHaul... 

So that the Interests of ALL USA citizens 

and the rest of the world that pays 

attention to what the USA does... 

Will be based on  REAL Honest, 

non-corrupted opinions based

ONLY in Science.. not kick-backs.

That is a BIG part of WHY we have ALL
respected SO MUCH the recent research
done by Whittemore Peterson Institute

in conjunction with the Cleveland Clinic

and the National Cancer Institute....

At least these were 3 reputable facilities

working "together" and had the SAME

Results... and thus have MORE Validlity
and has made such a HUGE Splash in the
News.... cuz they are MORE trustworthy
than an agency already guilty of corrupt
actions NOT based in the Best Interest
of the citizens they are suppose to 
be working for and Representing...


In addition, the WPI has been given 
research grants and lab space to work 
for the last 2 years and will be building
a research facility on the grounds of the
University of Nevada, Reno...


~ recent CDC article ~

*Source Link*

****************
I have been working on trying to 
create my own Holiday Miracle but 
want to give it TIME and don't want
to jinx anything... so I will report to 
you about this in a Future post and 
until Then...


May you all be having a Holiday
Filled with LOVE and Merriment
and a time for you to Feel the Joy
of those that LOVE you.... and if even

just for a few days... forget as much

as possible about the PIA that our

illnesses cause us... and Feel Blessed

by the Good Things we DO have 

in our lives.. Just as in the timely
movie of the season.....
"It's a Wonderful Life."

No Matter HOW bad we think we have it

most of us do NOT realize just how much 

we touch each other's lives also...

and bring Joy and Hope to them..

Share your "one candle of Light" with 
the World this Season and together we
can Shed some Light on the World and 
Help bring Joy to many that need even 
MORE than we already HAVE....


One of my learned talents is photography
and my local ME/CFS Group had our 
Holiday party this last weekend...
I have run the online forum for 2 years
but have been too sick to EVER even
attend even ONE meeting....until NOW.
I went and offered to make portraits
of anyone that wanted one....
Many did want them and one lady

even admitted that she had no family

and had NEVER had a portrait made....

THAT was why I did it... for HER....

If we can make ONE person feel Loved
and Worthy and Bring them JOY this 
season...
THAT is the Reason for the Season..

Be the LOVE you want to SEE..

Not EVERY Present is bought or wrapped.

One's from the heart are Priceless and 

many times Worth a LOT More....

YOU are NOT your illness....

Your Heart & Spirit speak 

to who you ARE inside...

Let your Love Flow and no matter

what your body says... 

Please "Listen"/Read these words and 

let them sink in and OWN them

and Radiate them... as this Really 

IS.... the Time of Our Lives...


How many Remember Mattie Stepanek
and HOW MUCH he accomplished
in his "far too few" years on this earth?
But the Love & Joy he brought to 
everyone either in Person or those
who read his poems and books
called his "Heartongs" ??

How is your Love waiting to be 

expressed to the world?

We ALL have a way to let it out...

Find your Special Gift and this 

year "Give it Wings" and 

as you share YOU will feel an 

Inner Glow of LOVE that will

let you ride the wave of love

even further...

May you be blessed this Holiday Season.