#46~ HERO of the YEAR - charity & research

As we end~ this 1st decade of this new 
millennium I would like to Dedicate this

last blog to a Charitable Organization

that has been the Source of MUCH

HOPE and Research News during this 

last year.... They get my 

"HERO for 2009" Award.... the 

Whittemore Peterson Institute

located on the campus of the University
of Nevada at Reno. 

Within the last 4 years "from an idea 
to formation" to doing actual
*Ground Breaking Research* solely with 

Private donations and grants has been 

nothing short of a Miracle for "more than"
28 Million people Worldwide.. that 
suffer from neuro-immune diseases
and have been "be-littled" and told these
illnesses were "all in their head" 
for YEARS.

The WPI's discovery of the link between

ME/CFS and XMRV- the ONLY 3rd known 

Retrovirus to effect humans, has effects 

and ramifications that HAVE YET to be felt

and dealt with around the world. 

EVERY Countries' BLOOD SUPPLY needs 

to be "screened" for this, ASAP !!! just 
like they are for HIV, the last retrovirus 
discovered that also effected 
immune systems.

I watched the online webcast of the 

NIH- CFSAC meeting at the end of Oct

and cried with Joy and Validation along 

with 400 others from around the world 

as we bonded LIVE via Facebook...

We even, for those that could not 
view RealPlayer, had to do a sports-like
play by play report of what was taking 
place. We watched Dr. Peterson's 
Presentation and Annette Whittemore's
Testimony on behalf of the millions
of us that have suffered with it for 
over 20 years , not to forget the many

that have already passed away because

they could not take any longer the 

disgrace & stigma the CDC has labeled

us with and the financial & emotional

ruin this has caused many families...

Dr Bell's testimonies of what families

that had young children with this and 

their families went they as they could 

NOT Dr's to validate their illness and 

thus cause the families to resort to be

submitted to the Family Social Service 

System and go to Court to be able to 

even KEEP their own children, was just

literally appalling...and took some

families UP to 10 YEARS to settle

these cases... THIS HAS to STOP NOW !

In the USA this is a Total disgrace.

I am chosing this time also to write 

this particular blog topic, in memory of 

my stepdad that at the end of the year

always wrote out all of his donations to

charities that he wanted to donate to that 

year..so it could be listed as a 

"charitable deduction" on his taxes before 

the end of the calendar year.. 

I would like to Remind those of you in 

the USA that the WPI "is" a 501c3

and qualifies for such deductions..

If you ONLY give to one charity this year

I BEG YOU Please Give to WPI....

I will share with you Now the letter from
Annette Whittemore as this year ends..
and then I will give you info about where
you can send in your charitable donation
to a Place that has already done SO MUCH 
for the Spirits and Hopes of SO Many ♥

Bless Dr Peterson for all of his YEARS
of help and support and persistence
to help find a cure for ME/CFS folks..


Bless Mr. & Mrs. Whittemore for chosing
to "back him" and help FORM "WPI."
and deal with all of the legalities to 
form the 501c3.



Bless Dr Judy Mikovits for coming to 
work for WPI and dedicating her life
and energies to research to help us.

*******

Letter from Annette Whittemore

December 19, 2009

Dear Friends,

On behalf of all of us at the Whittemore 
Institute, I hope this holiday season finds 
well. While 2009 has been challenging for 
so many of us, this year saw unprecedented 
progress at WPI: progress that would not 
have been possible without you.

The unquestioned highlight is our joint 

discovery of a retrovirus, XMRV, in 

patients with chronic ME/CFS. 

Through collaboration with the National 

Cancer Institute and the Clinic, 

Dr. Judy Mikovits and her research 

colleagues were able to discover this 

retroviral link. Our findings were 

published in Science, one of the world’s 

leading journals. This groundbreaking 

research has been reported around the 

world. You may have seen our coverage 

in the New York Times or The Wall Street 

Journal, or seen or heard it on 

Good Morning America or 

National Public Radio.

This discovery will lead to diagnostic 

tools using reliable biomarkers of disease,

and is a major step toward identifying 

drug therapies, and potentially a vaccine.

Laboratory testing for XMRV has already

been made available to patients. 

We have been overwhelmed with words

of support and encouragement from 

patients around the world who have a 

new hope, and a very real validation 

of their suffering:

“I had the honor and excitement of 

watching the live broadcast of the NIH 

presentation of your research... I quietly 

cheered as Mrs. Whittemore gave her 

speech about the sufferings of those of 

us with ME/CFS. Thank you so much for 

your bravery and persistence in fighting 

this disease.”
Kristi H.

“I do not have words to thank you for 

the work you have done. It has now 

been 30 years since I fell ill and I truly 

never thought I would see the day 

this terrible knot was untied.”
Christina M.

This discovery has brought worldwide 
attention to WPI, and to the University 
of Nevada School of Medicine, our home. 

Next summer we will be moving into 

the new Center for Molecular Medicine: 

a move that will expand our research 

capacity as well as opportunities to 

collaborate with other great researchers 

and institutions. You can see the new 
building taking shape on the Nevada 
campus right here in Reno.

Our 5th annual "I Hope You Dance" 
fundraiser was a great success, and 
guests heard a moving preview of the
XMRV discovery from one of our friends 
and scientific advisors, Dr. Carl Ware of 
the La Jolla Institute of Allergy and 
Immunology. That we have partners the 

caliber of Dr. Ware is a testament to the 

high quality of the work at WPI. 

That we have reached this level of respect
in such a short time is a testament to the
generosity of people like you.

There are millions of Americans suffering 

from ME/CFS, a debilitating acquired disease 

that often leaves its sufferers too ill to 

leave home; alone and without a source 

of income or health insurance they begin 

to lose hope that a better day will come. 

Countless others around the world suffer 

from diseases such as MS, autism and 

fibromyalgia without treatments for the 

underlying causes of their disease. 

Our research is literally changing the field 

and expanding the network of researchers 

and clinicians who want to help further this work.

Although we have accomplished much 

this past year it is only the beginning of 

our quest for answers to neuro-immune 

diseases such as ME/CFS, autism, MS, 

fibromyalgia and others that affect both 

the brain and the immune system.

The word is out about WPI and we have 
the focus of hope for so many patients who 
have longed for the proper diagnosis and 
care of their conditions.

“Thank you from a grateful CFS patient. 
I am a single Mom who has suffered from 
CFS for 18 years. It has left me frequently 
bedridden, unable to work and dependent on 
Social Security for most of this time. 
My children, family, and I have hoped and 
prayed for such a find for all of these years.”
Ann S.

Now, you can join me in this vital 

groundbreaking work which is being done 

right here in Northern Nevada. 

Doctors and patients, the world over, are 

watching and waiting. We are thankful to 

friends like you to help make this vision come

true for the countless patients who suffer.

Thank you for thinking of us as we end a truly
productive and thrilling year. I wish you and 
yours peace, health and happiness today, 
and as we look to the year ahead.

Sincerely,
Annette Whittemore
Founder and President 
***************************

PLEASE Share this article with any of

your friends that have a neuro-immune

illness and any of your friends that

still need to make their year end 

charitable donations made in time..OK?

Simply click on the WPI link and 
it will take you to their website
and the page on which you may
Donate via Paypal and it also has
their address in case you wish to 
write a check and mail it to them..
This will also give you a chance to 
check out their website and read
about all of the research they 
are working on..

WPI-Donate

Since the WPI has brought the 
"feeling of the Sun" back into many 
of our Lives.. I dedicate this song to 
them  to represent this coming year...

Bless you ALL and may we ALL have 

a Happy Healthier next Decade !!!

#45~ Happy Holidays and More CDC bad news

*Report finds "Poor Ethics" 

policing at CDC*

By MIKE STOBBE (AP) - 18 hours ago
(see link below)


Many of us have "ALREADY" known about 
this with regards to ME/CFS,  "and" I am 
Glad that maybe with our CFSAC meetings
a little more light has been shed on the 
shananigans that have been running
rampant at the CDC for WAY TOO LONG
now... I will ONLY be giving you tidbits

of this article to wet your whistle as a 

Promo teaser so as NOT to abuse any
© infringements, AND because I want

you to read the article, OK?

I feel after you read this article I HOPE

it will motivate you to WRITE those letters

we have been talking so long about to 

President Obama with CC: to ....

Sec. Sebilius of HHS, the Surgeon General,

Your Federal Senate & House Reps, Your

State Governor, Rep. Rosa DeLauro, D-Conn.

Please also remember the "shadie" 

History of the CDC that has ALREADY 

been documented AND "investigated by 

Congressional hearings and the GAO" 

and reported in the Osler's Web Blog....

In case you forgot or Never Read the 

corrupt history please read THIS First

then the New article from yesterday, OK?

 and now on to some article tidbits:

ATLANTA

"The government's top public health 

frequently failed to police its outside 

experts for conflicts of interest, 

according to a new government report 
released Friday."

"The report concluded that the CDC 

failed follow-up with some of the

experts who disclosed potential 

conflicts: 

85 because of jobs or grants, 

28 with stock ownership and 

13 who received consulting fees."

Ok, that's all I can tempt you with...
but please read the other History FIRST
and then read this "in context" so you
can see that this is NOT a new issue
and WHY the entire CDC needs a 
HUGE OverHaul... 

So that the Interests of ALL USA citizens 

and the rest of the world that pays 

attention to what the USA does... 

Will be based on  REAL Honest, 

non-corrupted opinions based

ONLY in Science.. not kick-backs.

That is a BIG part of WHY we have ALL
respected SO MUCH the recent research
done by Whittemore Peterson Institute

in conjunction with the Cleveland Clinic

and the National Cancer Institute....

At least these were 3 reputable facilities

working "together" and had the SAME

Results... and thus have MORE Validlity
and has made such a HUGE Splash in the
News.... cuz they are MORE trustworthy
than an agency already guilty of corrupt
actions NOT based in the Best Interest
of the citizens they are suppose to 
be working for and Representing...


In addition, the WPI has been given 
research grants and lab space to work 
for the last 2 years and will be building
a research facility on the grounds of the
University of Nevada, Reno...


~ recent CDC article ~

*Source Link*

****************
I have been working on trying to 
create my own Holiday Miracle but 
want to give it TIME and don't want
to jinx anything... so I will report to 
you about this in a Future post and 
until Then...


May you all be having a Holiday
Filled with LOVE and Merriment
and a time for you to Feel the Joy
of those that LOVE you.... and if even

just for a few days... forget as much

as possible about the PIA that our

illnesses cause us... and Feel Blessed

by the Good Things we DO have 

in our lives.. Just as in the timely
movie of the season.....
"It's a Wonderful Life."

No Matter HOW bad we think we have it

most of us do NOT realize just how much 

we touch each other's lives also...

and bring Joy and Hope to them..

Share your "one candle of Light" with 
the World this Season and together we
can Shed some Light on the World and 
Help bring Joy to many that need even 
MORE than we already HAVE....


One of my learned talents is photography
and my local ME/CFS Group had our 
Holiday party this last weekend...
I have run the online forum for 2 years
but have been too sick to EVER even
attend even ONE meeting....until NOW.
I went and offered to make portraits
of anyone that wanted one....
Many did want them and one lady

even admitted that she had no family

and had NEVER had a portrait made....

THAT was why I did it... for HER....

If we can make ONE person feel Loved
and Worthy and Bring them JOY this 
season...
THAT is the Reason for the Season..

Be the LOVE you want to SEE..

Not EVERY Present is bought or wrapped.

One's from the heart are Priceless and 

many times Worth a LOT More....

YOU are NOT your illness....

Your Heart & Spirit speak 

to who you ARE inside...

Let your Love Flow and no matter

what your body says... 

Please "Listen"/Read these words and 

let them sink in and OWN them

and Radiate them... as this Really 

IS.... the Time of Our Lives...


How many Remember Mattie Stepanek
and HOW MUCH he accomplished
in his "far too few" years on this earth?
But the Love & Joy he brought to 
everyone either in Person or those
who read his poems and books
called his "Heartongs" ??

How is your Love waiting to be 

expressed to the world?

We ALL have a way to let it out...

Find your Special Gift and this 

year "Give it Wings" and 

as you share YOU will feel an 

Inner Glow of LOVE that will

let you ride the wave of love

even further...

May you be blessed this Holiday Season.

#44~ New "Post Dr." 4 XMRV & CFS & UK Research

ATTN: Please SHARE this Info with 

anyone you know that might be 

interested in This  Position..

....to Help us Study this, OK?


News fresh from the field.... 

Share ASAP!!!

Post Dr Assoc
Cornell University
Cornell University, located in Ithaca, 
New York, is an inclusive, dynamic, and 
innovative Ivy League university and New 
York's and-grant institution. Its staff, faculty, 
and students impart an uncommon sense 
of larger purpose and contribute creative 
ideas and best practices to further the 
university's mission of teaching,
research, and outreach.

The Department of Molecular Biology and 
Genetics seeks a postdoctoral research 
associate to study the role of the newly 
discovered retrovirus XMRV in chronic 
syndrome (CFS).  Blood from a cohort of 
CFS patients and controls in upstate 
New York will be examined for the presence
of virus, viral proteins, and antibodies to
viral proteins.  Sequences of XMRV from 
different patients will be obtained in order 
to characterize the diversity of viruses in 
the population.  Whether virus sequences 
correlate with functional status of CFS 
patients will be determined.  This project 
will be undertaken in collaboration with the 
Whittemore-Peterson Institute in Reno,
Nevada and the Columbia University Center 
for Infection and Immunity as well as with 
several physicians treating CFS patients.  
For more information regarding the 
Department of Molecular Biology and
Genetics, visit http://mbg.cornell. edu/.

Qualifications:
PhD degree in an area of Molecular Biology 
and/or Biochemistry or Virology.  
Prior experience with mammalian cell 
culture and/or retroviruses is desirable 
but not required.

Please send cover letter and CV with 
names of three references to 
Prof. Maureen Hanson, 
Dept of Molecular Biology and Genetics, 
323 Biotechnology Bldg., 
Cornell University, 
Ithaca, NY   14853 or to
cfs.study@gmail. com.  
Applications will be received for 
consideration until a suitable candidate 
is identified.

Cornell University is an equal opportunity, 
affirmative action educator and employer.

Job: Molecular Biology & Genetics
Primary Location: Ithaca
Requisition Number: 11845
Organization:  
Molecular Biology & Genetics - AG

~posted originally by~ 
 ***********************************
New Research FINALLY in the U.K...
but then Dr Peterson is in London <;-)))

ME Solutions and Invest in ME are
working together to maximize the
opportunities to fund research into
ME/CFS. The research project is -
The role of XMRV in modulation of NK
cell cytotoxicity and NK cell gene
abnormalities in ME/CFS patients and
normal blood donors.
The project will be carried out by
Dr Jonathan Kerr and his team from
St. George's University, London, and
Dr Amolak Bansal of the Department of
Immunology, Epsom & St Helier
University Hospitals NHS Trust.


Full article HERE

*gentle Hugs* and keep those Letters 
heading to your Ministers of Health or 
Congress, HHS, Surgeon General, or
whomever has Power in your Country, OK?

#43~ CDC Re: XMRV Inter-Agency Working Group

NEWSFlash...  both Good and Questionable......

The CDC will be part of an interagency working group 
on XMRV, led by Dr. Jerry Holmberg. 
A three-part study will be initiated:

#1) The first part will consist of standardizing and 
validating laboratory methods and reagents for 
XMRV testing. This stage will use samples provided 
by samples collected by Dr. Judy Mikovitz. 
The intention is to create an FDA approved test.

#2) The second part will test a much larger sample 
than the initial study, trying to determine the 
prevalence of XMRV in the general population, 
and the blood supply.

#3) The third part will consist of how XMRV is 
transmitted, how it causes disease, and how it 
affects various subgroups of the population.

Some are "claiming".... but "I'm NOT Convinced yet"

CDC ~  Face saving action:

CDC ME/CFS Group Relieved of XMRV Research

"In a stunning move, responsibility for XMRV research
has been taken away from the ME/CFS working group
within the CDC, and re-assigned to the division of
HIV/AIDS prevention. "

I hate to sound like a downer.... 
but I see a different side to this coin..


"This group will be in charge of replicating findings 
of the Whittemore-Peterson Institute, rather than 
the group under the control of Dr. Reeves. "

  Reeves had ALREADY told us that HIV/AIDS 
was NOT in his CFS working group..
and that HE did NOT work on Viruses... 

Remember all of those long many emails sent
back and forth between him and another about 
WHY he would not come to a conference about 
HHSV or any such thing...?? about a year ago???

"The move is highly significant: it appears that the 
CDC is now acknowledging the serious nature 
of XMRV. "

They are allocating the research of a "retrovirus" 

to the HIV/AIDS section  ----> as it should be.
They are "Simply" researching a virus DUH...

in the the Viral Dept... if they Didn't we would have 
MORE to complain about..and I mean the 
Entire Public..NOT ONLY the ME/CFS folks...

"The forceful demotion of Dr. Reeves is a sign that 
the CDC is in damage control mode." 

They have NOT yet declared that THEY believe 

that XMRV "IS" the Cause of ME/CFS.
This just says to me... that they could also 

be giving Reeves "cover" because

they don't feel that ME/CFS is a virus... get it??? 

It's from Depression.. .Remember? ??

"The HIV/AIDS prevention group in the CDC has 
many capable retrovirologists, who can provide 
years of expertise. This turn of events should lead 
to balanced, common sense research."

I am Hoping that this IS TRUE for XMRV and 
the general Health of ALL of us...
Whether they AGREE with the findings of
WPI.. is yet to be determined...
They de-faced Dr. DeFreitas... 

Will this time be any different??
Be Aware.... VERY aware...study every 
bit of wording.. to NOT read it the way
YOU want it to read..  
Remember they have PAID "PR folks" to 
word things so they will be "spinned" a certain way.

This is the UN-Spin Zone... 

ONLY  in the #3 part at the top would the studying 
of ME/CFS and XMRV come into play and possibly 
interract... THIS tells me that the CDC is studying 
XMRV...NOT that they are studying ANY connection
between XMRV and ME/CFS..... YET>.. like I said...
Maybe in Part #3 IF we stay ON them....
so do NOT Party YET ...Please...

I don't see HOW this YET changes anything 
regarding Reeves or ME/CFS.
It'll take a BETTER argument than this...
PLEASE...Convince me...I "beg" you..... 

BUT....they are supposedly taking action
on "Part of this" ....Do NOT let up the Pressure..
We have Made Great Strides This Year...
Let Us ALL OVER Continue United 
Gentle with ourselves but STRONG against
anyone that tries to perfrom any Cover-up 
OR any more Delays....OK?

**GO TEAM GO** 

#42~ Thanx DrOz, Dr Donnica and Gina

wOw.. what a "wild ride" the last few months
have been... Was THIS an "E-ticket" ride ???
(Old Disneyland reference )


On the research front, there are a few more
new studies being done in Norway and Sweden
to confirm the link between XMRV & ME/CFS.

WPI is infatigable with the list of research 
studies they are undertaking. Also, even if you
don't live close by your "Info" CAN Help WPI
and their CFS Info Database for Research by 
completing their "questionaire" which IS
on a Secure site.. notice the "https"...



A Federal Agency is now Finally responding and 
checking into XMRV.


Unfortunately, Hemispherix was dealt a blow by 
the FDA regarding Ampligen and a new 
Larger Trial has been ordered.


**************** 

A Big Thank You to Dr. Oz, Dr. Donnica L. Moore, 

and Gina! for the REAL 1st Show segment of DrOz

dedicated to ME/CFS with a REAL distinction made

between it and "simple chronic fatigue."
..aired on Thursday Dec. 3rd.

I feel that for the "SHORT" time allotted that a 
Tremendous amount of Info was covered... 
(the segment was approx. 13 min)
Granted it was not the 3 hour program we would
have "wished for"...
BUT, it was the equivalent of our 1st step & 
Landing on the National Moon and it's Website. 
Can we give Thanx
Please for the TRUTH that WAS imparted 
to the Public on OUR behalf ??

May I "2nd the suggestion" to write a note 
of Thanks to Dr Oz and to the Producer for the show. 
Her name is Judy Rybak and her 
email is JRybak@zoco.com
..a little Gratitude goes a LONG way....

Thank you Dr Moore for that 2 page article
and getting DrOz to put it on his website.. 
That Helps a LOT as we can send it to others 
and it is SO well written !!!
Thank You, also, for "talking as fast as you can" 
and enunciating to get all of those extra little 
details in... that tidbit about the salt tablets 
was a PLUS for our POTS, esp. as Dr Oz was doing 
a "Salt-FREE Challenge" in the next segment..
Timing IS everything...



Hopefully, Dr.Oz will make the CFS segment 
of his video/show available for us  to send 
around the World to Educate everyone...
We have been Invisible for SO long...
This Segment by him, with HIS Voice
will Speak LOUDLY to the public and 
all of our family that are still in disbelief..

If the Science was able to Convince him..

WHO are THEY to doubt US ..now ???

As far as mentioning WPI... I don't think DrOz felt 
comfortable/OR his legal Dept? would allow him 
to mention it... BUT  
"all anyone has to do is Google XMRV & CFS" 
and they will find out the WPI ~ Dr Mikovits link 
IMMEDIATELY....very easily...

Last night I was feeling melancholy thinking of all of
my friends that died about 20 years ago from AIDS 
and how we NOW have the internet and FB and 
youtube to pass ALL of this Info AROUND the World
SO Fast... like they Didn't....so I was also feeling 
Humble and Grateful..
Additionally, thinking of those that could not  
"hang-on" and be here with us for this next decade 
that will be SO Important for us..

Having worked in Western medicine and studied 
& practiced Eastern Medicine I know they have both
been around for hundreds/thousands of years
respectively, and I do NOT expect them to be 
"Instantaneously Harmonious"...altho many of us 
have found places for BOTH of them in our Lives.. 
I was "in shock" back in the 1980's when Kaiser 
allowed a form of acupuncture to be practiced in 
the facility where I worked..albeit a 
watered-down form.

I AM a Happy Grateful Camper and will celebrate
this Holiday Season with a renewed Gratitude..
and be Thankful for my NEW "chosen family" 
I have discovered HERE < ;-))) 

For those of you traveling for the holidays
may the wind be at your back and may you
stay safe and warm and share your  holidays
surrounded by those you love and love you back.
For those of you staying home, may you  be
blessed with all the love that comes your way
and may we ALL be grateful for what we DO have
and  feel blessed by those near or far that are
sharing their time and love with us..

We have a 2nd Full Moon coming up this month
also known as the Blue Moon on New Year's Eve
and 2 week's later a Solar Eclipse New Moon
all within the Mercury Retro that straddles the 
New Year.. so PLEASE Travel Safely....
Don't sign any IMPORTANT  papers, 
and it is best used as a time of Introspection
recharging your batteries reflecting on
the new lessons you have learned in 2009 
and how you plan to implement them to better 
your life and those around you in the next year....


Safe Sane Love to all for the Holidays !!!


All Ratings and Comments Appreciated.



*gentle hugs* to ALL

#41~ Happy Thanksgiving USA & laws, clinics & MORE

My, my, this has been such a busy 2 weeks that I 

have been without my MAIN computer and it feels 

like I'm been missing my right arm...and NO I'm not 

left-handed. I have had a hard time even keeping up

with all of the news & posts on this 7 tear old laptop

that has been working it's heart out for me to keep 

me informed, but It has been working at the speed 

of ME/CFS and thus even has made what I thought

took me a long time to do, even longer...Hence

I am behind in blog posting. OK, I apologize

and will NEVER catch up.. but that's the LIFE

of ME/CFS even with an old computer that has it.

May I First & foremost WISH "Happy Thanksgiving"

to all of the readers in the USA, and we SURE know

what we HAVE to give thanks for THIS year... 

Even tho we don't physically FEEL any better yet

our Spirits & Hearts have been LIFTED UP again

and we have HOPE that was for SO many years

missing....We FEEL again like we have a supportive 

"chosen online Family" that Understands us and 

does NOT Judge us. Just accepts us AS we Are..

We have in the last month cried together, rejoiced

together, and supported one another like I have 

not felt in MANY years... so I definitely KNOW

what I will be giving Thanks for Today....

ALL of you, ALL involved in  WPI, and ALL

involved in Supporting us...Bless you !!!

25 years is a LONG TIME to Feel Abandoned..

and that is what we have Felt...

esp those that are alone...those w/o families.

So CHEERS to the NEW "Chosen Families" that

now exist and we are one HUGE extended family

now...and forever.

Just a little news and some updates to those that 

might have missed it..

The XMRV/CFS Dr Oz Show WILL Air on Thursday

Dec 3rd on NBC, check your local channel for times.

Maybe someone can make this segment available

on youtube for those that miss it? I have not seen

Dr OZ on hulu.com...any other ideas?

ALSO, Dr Oz is NOW going to do a show on

Fibromyalgia... so HERE is the link to get YOUR

story told and as it is thought that XMRV might be 

at the root cause of that ALSO, be sure to let him 

know  if you started with a flu or anything that might

sould likje our ME/CFS soory as SO many of us have

BOTH, OK? Even if you can't attend he may choose

you to do a Skype interview with.. or at the least you

are Helping the Cause by helping us flood him with

the Numbers of us that have this also... So PLEASE

send your story in THIS weekend...OK? Thanx

There has been another families interesting story

that "may" prove of benefit to us...

Questioning if XMRV feeds on HIGH cholesterol 

in our systems? Has yours been checked lately?

Read the Hempel Story. 

 Many of us during this Holiday time when so 

many are going crazy with Holiday shopping..

WE are asking them to NOT "buy" us something

but Rather.. to donate for us to the WPI that is 

doing the Research to Help find us a CURE.

That can be done either directly on their 

Homepage via Paypal http://www.wpinstitute.org

Or if they belong to Facebook they can Donate

thru Andrea Whittemore's Cause CURE 4 ME

Also after the much appreciated part that

Dr Nancy Klimas played during the CFSAC meetings

and her recent NBC interview has decided to 

Open the Klimas Clinc doors !!!

The time has finally arrived!  Dr. Nancy Klimas 

will open the new Chronic Fatigue & Immune 

Disorders Research and Treatment Center
(Chronic Fatigue Center for short) in 

December.  Located in Kendall at 

8720 N. Kendall Drive, Suite 108, Miami,

FL 33176, the clinic will begin seeing patients

on Friday, December 4th.  Clinic days will be 

Mondays and Fridays for the near future.  

The clinic is a private fee-for service clinic, 

meaning that full payment will be requested 

at the time of service, and forms will be given

to you to submit to your own insurance 

provider.  Labs will be drawn at the clinic 

but will be billed directly through your 

insurance provider.  For more information, 

visit the web site http://www.cfsclinic.com

  If you have any questions or want
to make an appointment, email the clinic at 

info@cfsclinic  or call 305-595-4300.

The Chronic Fatigue Center is a private clinic, 

separate and apart from the CFS Clinic at the 

University of Miami, so everything at UM will
remain the same.

Here is the  only article I have seen from the

Cleveland Clinic Conference of researchers..

They are playing it VERY "close to the vest."

It's OFFICIALLY LAW Now...in the USA

You can NOT be Discriminated against

because of the results of a DNA test for 

employment and they are including the 

NO "Pre-existing Conditions" Clause in the 

Health Care reform Bill so Hopefully 

This will end all of this BS.

The law took Effect Nov. 20th 2009.

HERE it is.....

OK, time for some sleep here on this end...

almost 4am and a Holiday & food to fix...

Let me leave you with a song that has

unexpectedly worked it's way into my heart

and become my New Theme Song... 

I have a few others that you can listen to,

but this one has become "A Call to Arms"

for me.  May it serve us during this next leg

of our ME/CFS/XAND Campaign......

All Ratings & Comments are always Welcomed

on my Blog as well as my youtube page. 

*gentle HUGS* to you ALL.....

#40~ 2nd Chance 4 Dr. Oz w/Dr Mikovits & WPI news, Osler's Web, CDC

From WPI:

"A 'new' Dr. Oz show is being "taped"

November 20th. Dr. Mikovits had a

phone interview yesterday :)"

~HOLD Positive thoughts that THIS time
he HAS HEARD ALL of OUR emails & Tweets & FB notes...
I Will post when I hear about an "air date"
It is usually about 2 weeks later.

I heard him state that he tapes shows 2 days a week.
Reminds me of when I was young in Hollywood and
the "game shows" would do the same thing...
and record 2 -3 shows back to back in one day.
Saves on studio/staff costs..
****************

***ALSO: Dr. OZ is ASKING for us to

email HIM Directly because of this new viral link

and  tell him OUR story and possibly

be  ON the SHOW!

Here's Your chance top have your Truth HEARD.
http://doctoroz.com/plugger?tid=1465

**************
a note from Andrea on behalf of WPI:

We raised $14,000.00 this month. We couldn't have

done it without you :) thank you so much for your 

support , donations , advocacy , awareness 

and letter writing!!! WPI fans are awesome ! 

Together we can find a Cure 4 ME and XAND!!! 

If I don't answer a question it's ...usually because 

I don't know the answer. I am a patient too so 

I share in the same Hopes, Dreams , Fears and 

Questions you have . I will always do my best 

to answer what I can. 

Thank you so much for supporting 

the crucial work going on at WPI:)

************************ 

Everyone PLEASE Remember that the 

X+ AND is all of the other illnesses that 

also can be included in the list to be tested

such as autism, FM, atypical MS, MCS, etc...

If there are "only" 28 Million around the World 

with ME/CFS if you add in FM and the rest of 

these... if these tests pan out ~ we HAVE a

TRUE Epidemic that the CDC "Let Happen"

PLUS just HOW many carriers in addition ?

"ALL the Nations" (NOT JUST USA)

Blood supplies need to be

screened for DEAD viruses !!! 

***add to that***

This week's smoking gun:

From: Osler's Web Blog--> see Link in Right column 

 While discussing the topic of lymphomas

and other cancers in his Tahoe cohort,

he mentioned Jerry Crum, who died of lymphoma

in 2008. WPI had been able to grow XMRV

from Crum's blood, frozen in 1984

during the first year of his illness.

"We were able to take serum frozen in 1984

”at the time I asked for the CDC's help 

with this disorder” thaw it, and infect cells

[with XMRV] and that is very dramatic to me.

It's somewhat frightening, the doctor continued,

"that you can take blood that's been frozen for

twenty-five years and obtain active infective virion."

An aside, a parenthtical phrase setting the time frame;

Peterson didn't even have to mention it, but he did.

Jerry Crum, and by inference the other patients in

that outbreak, was fulminantly infected with XMRV

in 1984, the year Peterson had asked CDC for help. 

Had CDC actually helped when he asked in 1984, 

maybe it would have been the CDC growing XMRV 

out of that frozen blood, not the Nevadans, and 

maybe it would have happened a decade or two ago.

Chew on THAT for a WHILE and SEE why we ask

YOU to HELP US ~ Raise Research $$ for the 

Institute that bears HIS Name along with his original

Benefactors.. The Whittemore-Peterson Institute...

"They HAVE a dog in this race."

Or to be more polite.. a Daughter that also has this,

but their money only HELPED get the Ball Rolling...

We have a LOT MORE Research to DO, not to 

mention that they have already done ALL of THIS

without their building even having been buildt YET.

*******************

So Please keep doing those Searches if you have 

no money or way of raising any other funds..OK?

I have been doing my 5 searches a day.. 

First thing in the morning, then I know I'm done.

It's EASY and Quick and I can SEE the Amounts 

Growing already ...So PLEASE "Pass this ON"

They will need a LOT more Research staff 

and Dr's & nurses for when they have the 

buiding finally Opened.. IMAGINE what they

can DO then ???

We can HELP NOW by simply being 

Searching Fools for WPI and 

instead of "Paying it forward"....

We will be "Searching it Forward" to help

EVERYONE as SOON as Possible..

Search Link to HELP WPI

THINK of Creative eways to get your 

family & friends to use this Search for YOU

"only 5 times a day" is NOT a LOT to ask 

when it is FREE ...Be Excited & Energetic LOL

and let then know HOW excited you ARE and '

how Easily THEY can Help Daily...

Bless you ALL and  **GO TEAM GO**


*****************


For those working on their Letters to Congress:

Addresses:
Senate
House

If you want to know if your representatives
are on a health committee, that information
is here:

Committees

Also:
KATHLEEN SEBELIUS
The U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Washington, D.C. 20201

#39~ Raise Research $$ while you are Searching

In an attempt to quickly 

"Kick-Start" this Fund Raising Campaign 

for the Whittemore-Peterson Institute

that is a "bottom UP" Grass Roots WORLDWIDE

organizing machine who's TIME HAS COME...

Here is a Simple way we can get started

to raise some money WHILE we are
doing our research to write our letters
to send out to our local & federally
elected officials, newspapers, etc.

It is "SO simple" in fact it was posted 
on Facebook by a number of "Great Thinkers"
that think alike and have started the rest 
of us using it already...

Simply "Search" AWAY and pass it on to 

EVERYONE and Repeat OFTEN ;-)

Each search will earn $.02 for the WPInstitute.
If all the 1,190 fans of WPInstitue on Facebook
did 5 searches a day for a year, 

it would earn $43,435.

If all of the 4 million PWC in the USA 

did it = a lot MORE.
If all of the 28 million in the World 

did it = a GINORMOUS Amount.

Who the heck said 

"Your 2 cents wasn't worth much?"

HERE it is worth a LOT 

and it will ADD up FAST if we all do it 
together and ask  others to 
"Simply Search" when they think of us..
It will cost them NOTHING to Help us
in this way.. 
Suggest that they Bookmark/Favorite 
this url / Link and go there Often...

Please share with your Friends & Family.
Ask them to "simply SEARCH" as 

part of their Holiday gift to you.

They don't have to wrap it, use any 

gas to go get it, or pay any postage

to send it to you..

Go here to participate:
http://isearch.igive.com/index.cfm?b=15271

Happy Searching and you can 
Literally add up the Good you are
doing Daily with each search.. 

So don't think you don't have any $$$

to donate for Research... if you can read this

than you CAN Search and Help us Raise

Research money for the Whittemore

Peterson Institute that helped to bring us

and ME/CFS into the current World Spotlight

and there we WILL stay until they can do 
enough Research to help us find a CURE
so our "28 million Voices 4 a CURE" 
will NO longer need to be quiet whispers 
and we will be helped, 

so "Go Forth and "Search."

#38~ "Call to Arms" WPI~Pres. & NYT article

Hail WPI fans :-) we HAVE "news" from
one of our Chiefs.. sent to us Nov 12th.

...and with this NEWS comes OUR
"Marching Orders.."

For those in the U.K. you have the
addresses & letter that I posted in
a previous blog post.

Enough blathering.... READ Annette's Letter
and then read my notes Below...
Then......***GO TEAM GO***

*******

Since we published the XMRV study the WPI

has been extremely busy establishing new 

collaborations and moving the work forward. 

This is truly a world changing event for the 

field of neuro immune diseases and patients 

who suffer from them. 

First I want to thank you for all of your kind

words of support and very generous donations. 

They give everyone at the WPI the added strength

and motivation to continue full speed ahead. 

Secondly, let me explain some of the things 

we have doing to since the article was published.

We have been working for you. We have been in 

Washington, DC explaining the significance of 

these findings to our representatives of the 

state of Nevada and our country. 

We have spoken to representatives of the 

institutes' of health encouraging them to 

dedicate funding to XMRV research. 

Patient studies must be done outside of the

NIH to bring answers that will end this 

cycle of disease.

We are overwhelmed but very excited 

about the possibilities this finding will 

bring for our loved ones. 

The recent conference at the Cleveland Clinic

of 75 Scientists included Dr. Mikovits, 

Dr. Vincent Lombardi and many others who

understand the role of retoviruses in 

human disease. They were able to develop

key relationships and collaborations in support 

of research of XMRV. 

We are confident that good science will 

ultimately lead to the answers. But we need you.

We need every person suffering from this

debilitating disorder to help by writing your 

congressmen and senators and asking for 

research funding for the WPI to continue 

its studies of XMRV in CFS and other 

neuro immune diseases. 

We must have funding to establish mechanisms

of disease and treatments for patients. 

Clinical research centers must be created 

to establish effective treatment protocols 

as quickly as possible.

There's so much more to come. 

Thank you for all your love and support,
Annette

--
Annette Whittemore
Founder and President
Whittemore Peterson Institute
for Neuro Immune Disease
6600 N Wingfield Pkwy
Sparks, NV 89436
775-348-2335 Phone
775-348-2350 Fax
annette.whittemore@wpinstitute.org

*************************

Here is another more recent article
about the Whittemore's and the
History of the founding of the Institute...
in the  New York Times
**************************
I have provided you with many
links to info, to the CFSAC meetings,
and places from which to acquire
statistics to add to your letters.

Remember to NOT make them whiney
letters, but statements of FACT about
How long YOU have been sick,
Were you a young child then or a 
working-tax-paying citizen doing what?

How much your Dr's have NOT been
educated about treating this illness,
the hardships it has placed on your 
family, the loss of your ability to 
work and be a Productive TAX-paying
citizen that you WISH to BE, but how 
you NEED to be well enough to do so.


How you have knowledge of Millions
in the USA, U.K., Europe, Australia,
New Zealand because we are 
ALL in Contact.... there are 28 Million
of us Worldwide.


For those in the USA:
Here is your link to find out who is
your Federal Congressional Rep/Senator:
http://www.visi.com/juan/congress/index.html

Refer them to the Oct CFSAC meetings
and testimonies given there by not ONLY
the Dr's & researchers, but also by all
of the PWC's and their Families.

Make reference to the 
Obama/Biden Transition letter that
was sent to the Administration-to -be 
back in Jan. but was written in Dec. 
after the Election.

Write as many "Drafts" as you need to..
Collaborate with other FB or PWC's friends.
Try to make your bullet points in Time Order
culminating with the Report in early Oct
published in Science thanks to the 2 yrs of 
work by WPI, after waiting 25 yrs for other
Governmental agencies to Help us for not.
...and then the Crescendo of the CFSAC
meetings and how this ALL ties in with 
Health Care Reform. NO Dr's can Help us
if the PROPER Research has NOT been done.


Try to be MORE Positive about How the 
HELP for Research NEEDS to be "Targeted
to Places such as WPI" that have a PROVEN 
Record of producing RESULTS, instead of 
places that  have floundered for years.
Time = $ = HEALTH = Life = Citizens = work = taxes
4 Million sick = loss of taxes & family stress. 


Ask them to HELP US ~ Help the Country..
Help us get Well and we will work and pay taxes.
Use your own wording, but I think you get 
my point.. work for a Win/Win... 
Give them a REASON To Help Us...
Use my list of Famous People to show
that all strata of the society get  this.
Use my list of articles and websites
to gather info...then edit it for concise
bullet points.


If you have NO idea what to write
please use the previous posted 
letter "as a guide" and change the 
names & figures as needed to make
it fit the USA or your location.

If you are as FB user, brainstorm on a 
Discussion Page Topic if you wish on

the WPI FB page. Otherwise, gather
together with YOUR "local" ME/CFS
group, use your local online Forum for
CFS, use Twitter, Use My Space, 
CALL IN ALL THE TROOPS.
Gather ALL of your thoughts...


1) Send letters IN...
2) Follow them up after with a phone call.
3) Follow that up with an email.

Maybe some of us can write a 
Main "Petition Letter" and we can
send you the text, you can print it out
and get ALL of YOUR Friends & Family
to Sign it and, make a copy of it, to keep
as PROOF, and IF Possible DELIVER  
the Signed Petitions to the Local Office 
of your Rep/Senator when they 1st get home
for the Holiday break.

Co-ordinate with your local groups and 
NOTIFY your local PRESS both TV & Radio.
Send a copy of your letter/Petition to your
local newspaper if you still have one.
Send a copy to your Largest Regional
Newspaper. Write Letters to the Editor.
Keep the Ideas coming and post them
for others to brainstorm about.

These are just my First few thoughts
off the "Top of my Head" ,as they say...
No one has urged me to say these things,
the words are all my own...
"Thoughts From the 4am Vault" ;-)


Post Ideas to Annette on the FB page
if you have any questions about anything
you feel you might need Permission to do.
That was Everyone can SEE the answer.
We ARE in contact with each other NOW..
Let's KEEP this ball rolling and make it 
HUGE like that ball in Raider's of the Lost Ark.
We are the Raiders now and  WPI is our ARK
that is trying to SAVE US...
May History Repeat itself...
NOAH, are you Listening???

As one of the old lines from one of my 

fav late night shows use to say.....

"Talk amongst yourselves." ;-)

Like my screen name says....

NOW is the TIME for 

ME+CFS=UNITE and GO FOR IT !!