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Dec.2014 LauraHillenbrand FaceTheNation
ME+Unbroken Interview HERE -

Dec 2014 ~ "NIH"P2P4ME"

NIH="InsufficientResearch"=DUH !
Treatment= more"SELF Management"
DraftReport HERE
Nov.2014- "Plague"-Published !!
VOA-PodcastAudioInterview HERE
Amazon USA Link HERE

Tuesday, October 13, 2009

#15~ Reply from WPI - testing for XMRV?

Thank you for your interest in the Whittemore 
Peterson Institute and our new research findings 
on XMRV.  We have been overwhelmed with both 
your encouraging comments and the volume of 
email and traffic to our web site.  We are working 
on answering many of the general questions posed 
in the last few days.  Individual specific questions 
will be evaluated and responded to as appropriate.

- XMRV Testing:   The number one request has 
been? How do I get tested for XMRV?  The WPI is 
negotiating an agreement with a clinical laboratory 
to allow for limited testing. These limited test services
will be made available as soon as possible and we 
will provide information on this website as to how 
the test can be requested.  We cannot offer 
individual testing and results from our research lab.
Please check back to our website for updates.

- Research Studies:   If you are interested in 
possibly being selected to participate in ongoing or
future WPI research studies, we are working on an 
interactive form for our website.  It should be 
available in the next few days, and we encourage 
you to complete the form at  
While every study has specific requirements and 
not all who volunteer will be accepted, your 
willingness to participate is both crucial 
and deeply appreciated.

- Becoming a Patient:      WPI is currently 
constructing our new home on the campus of the 
University of Nevada School of Medicine.  
It will open in the summer of 2010.  At this time 
we are not able to accept patients, but would be 
happy to add your name to our interest list.  
With the rapid pace of research discoveries, we 
hope that there will be new treatment and 
diagnostic options available when we celebrate 
the opening of the new building.
The discovery of XMRV in ME/CFS patients 
opens an entire new avenue of neuro-immune 
disease research and our discovery has brought 
to this field world-renown immunologists and 
retrovirologists.  Our team of collaborators is 
working daily to translate our discoveries into 
new treatments as soon as possible. 
The discovery also raises many new questions 
about the role of XMRV in these diseases, 
how it is spread, what new or existing treatments 
may help combat the virus, and how treating the 
virus might improve the health of patients.  
For access to what we know to date, please see 
our XMRV Q&A.  
We will update it regularly and keep you informed. 

We know many of you have been waiting years 
for answers, accurate diagnoses and some kind 
of effective treatments.  All of us are dedicated 
to finding these, and we will continue to work as 
hard and as quickly as possible.  
Please remain hopeful, and keep in contact with 
us via the website or email.  
Making sure we have all of your contact information 
will ensure we are able to contact you with 
further information as it becomes available to us.

Angelina Gordon, WPI

1 comment:

  1. You might like to see this from ME/CFS google alerts The article has a link into a TV program well worth reading and watching.