ShareThisThank you for your interest in the Whittemore
Peterson Institute and our new research findings
on XMRV. We have been overwhelmed with both
your encouraging comments and the volume of
email and traffic to our web site. We are working
on answering many of the general questions posed
in the last few days. Individual specific questions
will be evaluated and responded to as appropriate.
- XMRV Testing: The number one request has
been? How do I get tested for XMRV? The WPI is
negotiating an agreement with a clinical laboratory
to allow for limited testing. These limited test services
will be made available as soon as possible and we
will provide information on this website as to how
the test can be requested. We cannot offer
individual testing and results from our research lab.
Please check back to our website for updates.
- Research Studies: If you are interested in
possibly being selected to participate in ongoing or
future WPI research studies, we are working on an
interactive form for our website. It should be
available in the next few days, and we encourage
you to complete the form at
While every study has specific requirements and
not all who volunteer will be accepted, your
willingness to participate is both crucial
and deeply appreciated.
- Becoming a Patient: WPI is currently
constructing our new home on the campus of the
University of Nevada School of Medicine.
It will open in the summer of 2010. At this time
we are not able to accept patients, but would be
happy to add your name to our interest list.
With the rapid pace of research discoveries, we
hope that there will be new treatment and
diagnostic options available when we celebrate
the opening of the new building.
The discovery of XMRV in ME/CFS patients
opens an entire new avenue of neuro-immune
disease research and our discovery has brought
to this field world-renown immunologists and
retrovirologists. Our team of collaborators is
working daily to translate our discoveries into
new treatments as soon as possible.
The discovery also raises many new questions
about the role of XMRV in these diseases,
how it is spread, what new or existing treatments
may help combat the virus, and how treating the
virus might improve the health of patients.
For access to what we know to date, please see
our XMRV Q&A.
We will update it regularly and keep you informed.
We know many of you have been waiting years
for answers, accurate diagnoses and some kind
of effective treatments. All of us are dedicated
to finding these, and we will continue to work as
hard and as quickly as possible.
Please remain hopeful, and keep in contact with
us via the website or email.
Making sure we have all of your contact information
will ensure we are able to contact you with
further information as it becomes available to us.
You might like to see this from ME/CFS google alerts The article has a link into a TV program well worth reading and watching.
ReplyDeletehttp://www.huffingtonpost.com/david-kirby/is-autism-associated-with_b_316986.html