the papers that have recently been
published "AFTER" the NCI, CC, WPI
paper were published about XMVR...
So these seem to be papers published
to counter the "new" NEWS Headlines...
and IMHO these papers are..well...
you know.. what's the phrase?? FOS?
Here's one that deals with the whether
the patients chosen had to be determined
IF they had some other disease "actually"
besides ME/CFS ..and of course, done
on "rural" folks, not those of us that are
highly education, type A-s that were
leading Productive BUSY lives and NOT
depressed and NOT are NOW, even with
this sucky illness....
"NEED" I "bother" to state that Reeves
is part of these?????? nuff said....
The 2nd one even goes MORE into the
issue of whether there are Depressed
Issues that need to be considered when
dealing with CFS. IMHO... it is another
re-directed issue of "DENIAL" that needs
to be addressed by these folks that
"hand-pick" the patients that choose to
interview, cuz maybe the ones that
"KNOW the difference" & I, personally,
ReFUSE to deal with anything that
includes Reeves in the title...
always will... I don't give Private
Info to Spin Dr's that are in Denial
and have already pro-conceived
notions instead of remaining OPEN to
the looking for NEW/REAL answers and
"actively" looking for the TRUTH that
contradictes the answers they
Denied 25 years go..at Incline Village !
CDC do U need 2cents to "Get a Clue" ??
NOT sure "IF" Enjoy is the correct
word. However, please read these and
let me know if I am way off base and
feel free to share your
...and have a Great weekend where ever
you are, and KNOW that YOU are NOT
your illness and that you ARE "worth"
MORE than the sum of your parts...
There IS a HUGE Group of us out here
that Support you... and we are NOT
Depressed, we are Angry at the Lack of
Intelligent Research done by the CDC
over the last 25 years..and hurt by the
denial and "choosing to mislabel" the
28 million of us that have worked HARD
to stay SANE in the face of
Federal Ignorance, by the Agency that
is charged with looking out for
"OUR BEST INTEREST."
Can I Please request that those that
have "not yet" signed the petition
for the CDC to "remove" the OLD
definition of CFS, please sign this
petition.....ASAP before the CFSAC
meeting Oct 29th !!! Please circulate
as much as you can, OK? *hugs*
CDC- "change the definition"